New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 10/28/2008 7:21 PM (GMT -7)   
I will make this quick............I have chrons disease which is in remission for over a year.  have ongoing left abdominal pain they thought was chrons. no, its in remission. hada a hysterectomy.....pain still there even worse. now have severe pain in hip as well as back and still left abdominal pain.... .had epidural in spine still have all the pain. had rash on arms and neck over summer that dr put me on prednisone for........that went away. Now I have severe rash on scalp, it is killing me,er pains. and still have all the oth i cant see it but husband said they were red patches........Are the Drs crazy or am I. I looked up smptoms on line and a lot of sights came up with Lupus. I know that there are other symptoms and test for it. My Dr did mention  testing me for it over the summer but nothing ever came of it. I asked for the labs and the ANA ? test was not on it. i am going to a dermatologist for him to look at my scalp, I think my doctor my think that I am crazy, but there is something the can not find.....And this IS driving me crazy, as well as my family. andy advice would be great>
42 yr old female diagnosed in January of 07, asfter being sick for a while.  pentasa 500mg 4 times a day. probiotics,
prednisone (evil) 50 mg a day. Imuran 20 mg a day.
andibiotics.
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/29/2008 7:27 PM (GMT -7)   
Welcome to the Lupus forum Hydrangea!!

No you are NOT crazy. Dxing Lupus can be really difficult . . . especially when you are being treated for another autoimmune disease like Crohns. The Prednisone and the Imuran "could" make your ANA go negative. It is NOT necessary to have a + ANA to get a dx, but it is hard to get a dx w/o it. At the end of my signature, you'll find a couple of links. One is "4 of 11 Criteria". That one will show you the list of criteria and how Lupus is dx'd. It might be helpful to you . . . some of the symptoms might sound familiar and you'll have another item to add to your list.

I hope you do NOT have Lupus . . . but if you do, it would be good to know. Thing is, some of the meds are the same (prednisone and Imuran) . . .so you are actually being treated now.

Suggestion: See a rheumatologist. This is the the doctor who would be best at piecing things together for you.

Keep us posted

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/29/2008 7:34 PM (GMT -7)   
BTW: A dermatologist could (and should) take a biopsy of the scalp rash. This could give a dx.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 2:54 PM (GMT -7)
There are a total of 2,733,708 posts in 301,145 threads.
View Active Threads


Who's Online
This forum has 151278 registered members. Please welcome our newest member, northerner.
414 Guest(s), 20 Registered Member(s) are currently online.  Details
cupcakespinkgal, Alcie, Katie95, ewafromwarsaw, blueberrymuffin, KAR90, northerner, NiceGuyEddie, Hoshie, rocckyd, Mad Martha, Huddie, pmm73, FL, Fairwind, Hilander64, Jean123!, The king, gilly2, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer