medication questions

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

starzphalling
Regular Member


Date Joined Jul 2006
Total Posts : 82
   Posted 11/1/2008 12:41 PM (GMT -7)   
so i have a dr appt on tues and i am trying to prepare myself, previously i've been put on very high does generic NSAIDS (i do not remember what it was and the office is closed so i can't find out right now) and it was absolutely evil to my stomache, i discontinued use because of the side effects.

What im wondering from personal experiences what the medications with the least amount of negative side effects are. I've been doing research this morning but there are soooo many drugs to go through, so i figured you guys would be a bunch of help.

I'm going to be getting something for SLE/RA so thats the scope im looking for, its more for the RA than the SLE at the moment. I just need something that makes it so i can move around, sick of sitting around all day lol.

Thanks in advance everyone, and hope your all doing well :)

edit: forgot to mention, i was previously on planquenil, however had to discontinue because i was losing my night vision, and the doctors were afraid the eye side effects would continue to develop. and i am currently taking Cymbalta, Nirivam (as needed),and eating Aleve like candy.

Post Edited (starzphalling) : 11/1/2008 1:47:21 PM (GMT-6)


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 11/1/2008 2:36 PM (GMT -7)   
Hi Star,

I've tried several different NSAIDS. I couldn't tolerate Relafan, Celebrex & suldinac. Mobic didn't work well at all, I've had the best results from Piroxicam. THere are hundreds of NSAIDS to choose from and we each react differently. I hope you find one that works well.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/1/2008 5:31 PM (GMT -7)   
hey Starz,
 
What are you taking as an immune suppressant for your RA?  For pain, I've tried Tramacet (Tramadol is the more potent sister).  It did a great job with my pain, but made me REALLY drowsy and nauseated (even just a half pill).  But most people tolerate it well.  I was just prescribed Neurontin.  Can't take it until I'm home from the hospital. I'll be on post-op morphine, and Neurontin shouldn't be taken with Morphine.  So I'll see how that stuff works in about 10 days. Other than that, all I've been able to take is Tylenol.  Does squat for my joint pain.  I'm sure you'll get a bunch of great responses.  Good luck with your search!
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


starzphalling
Regular Member


Date Joined Jul 2006
Total Posts : 82
   Posted 11/1/2008 5:44 PM (GMT -7)   
thank you for both of your responses, currently i am on no meds for my ra/sle. i am only on the cymbalta, nirivam, and otc aleve.

(and ginny i hope everything goes well for you, once you get out :-) )

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/1/2008 5:48 PM (GMT -7)   
Hey Starz!
 
Thanks! I'm gonna celebrate by having a tampon/pad burning ceremony in my neighbour's fire pit.... (kidding)
 
Okay! You're not on anything for your RA.  This might be why you're having added pain issues.  If you can get your RA under control, it will knock the pain out quite a bit.  I wonder why your rheumy doesn't have you taking anything after stopping the Plaquenil?  Other options for you might be Prednisone, Imuran, Cellcept, Methotrexate.  I'm on Pred and Imuran.  Both have been miracle drugs for me.  You have to get the inflammation down or gone.  When you do that, I'll bet you feel remarkably better!!
 
 
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 11/1/2008 6:26 PM (GMT -7)   
Starz, my rheumy added methotrexate this year, it did wonders for my joint pain, that along with plaq & piroxicam. I still have pain, mostly in my hands and feet, I just figured I would never be 100% pain free.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/1/2008 7:11 PM (GMT -7)   
I would ask about enbrel or humira for the RA it did wonders for me.

As to anti-inflammatories I took vioxx with wonderous results and now take celebrex. I also take nexium to protect my stomach something absolutely necessary for any nsaid usage.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


starzphalling
Regular Member


Date Joined Jul 2006
Total Posts : 82
   Posted 11/1/2008 8:20 PM (GMT -7)   
Alrighty i've been reading more off of what you guys have given me so far, out of all the DMARDs...i can't take any that i've found so far (they all contain lactose). So then I went looking at the enebrel side of things, and have kinda limited it to three i'd be willing to go on... Enebrel, Humira, and Anakinra. I was leaning more towards the Anakinra just because its daily - and I don't like the idea of something lasting for up to two weeks with no turning back it if I really don't tolerate it well. I hope most of you understand this, i'm much better off dealing with the pain then being sick with a constant flu, so I want something I am more in control of timewise. So now my question is what has anyone's experience been with these three medications specifically the Anakinra.

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/3/2008 10:10 AM (GMT -7)   
I hate to suggest it, but I betcha prednisone would be your best bet. It has some killer side effects, but it's miraculous with joint pain/inflammation. Some people do well with a lost dose. Judy

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 11/3/2008 4:19 PM (GMT -7)   
I cannot tolerate any meds so am going it all naturally.

You did not say what you need the meds for? What symptoms are you trying to lessen or remove?
The world breaks every one and afterward many are strong in the broken places


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/5/2008 7:44 PM (GMT -7)   
Hi Star, I was wondering how your dr. appt went yesterday?hugs
Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 2:54 AM (GMT -7)
There are a total of 2,735,215 posts in 301,284 threads.
View Active Threads


Who's Online
This forum has 151388 registered members. Please welcome our newest member, ebinease.
200 Guest(s), 2 Registered Member(s) are currently online.  Details
scifigal2k, clo2014


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer