In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
I take MTX for my RA and when I read your post about going to the gym and working out a few times a week, I thought to myself, gosh that was me in August. I was taking Enbrel, MTX and Plaquenil and it was sort of my magic cocktail and I had that energy as well. I lost the Plaquenil and I'm now down to the MTX (8pills) and the Enbrel and a couple of times, I tried tapering down to see if I really needed the MTX and my joint pain returned with a vengence, and I ended up needing a Medrol Pack to get me out of my flare. My rhuemy has told me that a remission is highly unlikely even though I"m sero negative. I have been told that I pretty much will never get off of these meds which is really discouraging to say the least.
I'm remarried and my husband has no children biologically and the pressure is on to have at least one child, but like you, I'm not sure how I'm going to get off the MTX and manage my pain in the process. Also like you adoption doesn't seem to be an option for us either, and we are already going the IVF route as it is.
I don't see many ladies post who are taking these medications and also contemplating a future pregnancy.
I hope that you are able to go into remission, and won't need your MTX. I wish you the best!!!
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
We were in the process of IVF since I have tube issues, and was told I would be a great candidate since I have children but they are now teenagers and the youngest is 11, so I'm not getting any younger if you know what I mean Anyway, I never made it to the retrievals and was finally told that my FSH was that of a woman in menopause I was in my early 30 's and then I ended up with the joint pain or RA if you will. My rhuemy is great and has told me that I will need to go off of the MTX three months prior to trying and this is how we refer to it "trying"..and then he told me that the joint pain will return within in 6 months of delivery. Not the most positive and uplifting doctor! Since it is just RA, I think I just wean off of the meds and deal with the joint pain, but with Lupus, it is a very different story. Although, I think I read a post by a lady who went through pregnancy with Lupus on this board maybe?
I think for myself if I don't have another child I will be alright, but it bothers my husband so deeply, that it has really caused a rift in our marriage. I hope so much for you that you will go into remission and not have to feel joint pain and get pregnant. Lynnwood is great testimony to the fact that it can happen. Think positive thoughts!!!
Lynnwood, that is such wonderful news for you, and I hope you continue to be well!
I understand so much the fact that you want to be a mom As you said you are healthy and you have a great doctor, so there is no reason not to try. We have money invested at a clinic at this point, money that was there before the RA hit, so we waited for three years, hoping that it would go away, since all of my tests have always been negative, but it looks like it is here to stay, so like you I'm just going to hope for the best at some point! The good news is that the joint pain normally goes away during pregnancy so maybe symptoms are relieved for lupus as well?
I'm thinking of asking my doctor for prednisone when I do start to taper down off of my MTX, so hopefully this will be a possibility to ease the joint pain if it gets to be too much. I have a low tolerance for pain!
Please never feel the need to explain yourself..I have had to do this with people who don't understand why I would want to attempt this with my RA etc etc etc. If you want to start a family it is your own personal choice along with your husband.