Barb's back in the hospital/UPDATE

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/5/2008 7:33 PM (GMT -7)   
I really don't have any info because she talked to my health care worker. She was taking my calls while they worked on me in the emergency room. All I got was her temp was 103 and she has her cell phone with her. Fortunatly after 3 breathing treatments iv salumedrol, morphine, cbcs and blood gases they gave me lavaquin and cough meds and said go home and come back if I get worse. So when i got home I tried to call barb and her phone was off. Anyway I'm sure she has spoke to someone around here if you have any info to share I would appreciate it.
Keeping ya in my prayers barb
love ya
carol


Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 

Post Edited (okie) : 11/19/2008 5:52:19 PM (GMT-7)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/6/2008 5:47 AM (GMT -7)   
Thanks Carol.

((((((((( Carol )))))))))) Sounds like YOU are in a rough patch again too (still?). Take care sis. I hope your treatment plan gets you feeling better fast.


((((((((((( Barbara ))))))))))) Hang in there sis!! We'll wait for more news.

Prayers, hugs, hot tea and . . .

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 11/6/2008 10:15 AM (GMT -7)   
I just talked with Barbara a few minutes ago. She is still in the hospital and will be there at least until Friday.

Her heart rate was up around 140 all day yesterday & last night - sounds like it's still high but not nearly as high now. She has some fluid in the bottom of her lungs. And her red blood cells are 4 times as big as they were at her last test (and they were abnormally large then) -- so they think her blood cancer (MDS) is getting worse. They'll be doing several tests today and getting the oncologist & rheumy together to figure out what to do next.

Meanwhile she doesn't feel to great, as you can imagine. I'll post more as we find out more.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/6/2008 12:43 PM (GMT -7)   

Hopefully Barb is in doing better by now.  Hope all of you will be some good news later.  Just pray and hope things will be better.  Any more news let us know.  thank you

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/6/2008 3:44 PM (GMT -7)   
Okie,
Sounds like you could use a hospital stay yourself! I hope you get to feeling better. You are in my thoughts and prayers. Judy


((((((((Barb)))))))))))) hang in there! I am praying for you. Judy

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/6/2008 5:25 PM (GMT -7)   
Thanks everyone, and thanks for the update. I just got off the phone with Barbara. She got on to another floor so she can use her cell phone. They aren't saying anything about when she can go home though. Good news is she doesn't have a pulmonary anerysm which was previously thought. Thank God. I'm sure she said a few other things but I'm pretty out of it myself today. I just wanted to pass on the info and if anyone had tried to reach her she is allowed to have her phone now and said she loves everyone and she is still alive. However they think her cancer is getting worse. I know how hard that news is to take. I just wish I could go there and hold her hand for awhile.
ok well that's about it
love ya all
carol


Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 

Post Edited (okie) : 11/6/2008 7:51:56 PM (GMT-7)


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/6/2008 6:43 PM (GMT -7)   

We can spiritually hold our hand, all of our hands, as Ginny and all the people are having bad times to do today.  Losing my better words at night time.  so will let this be.  will check again today and find the things that we need to know about ill sisters and brothers.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/6/2008 8:00 PM (GMT -7)   
Hester you are so sweet. praying for you as well. I hope you are feeling better. Don't worry you words were just right!
hugs
carol
Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/7/2008 7:44 AM (GMT -7)   

Will have the MRI done today.  Cat scan did not see a stroke.  If there is no stroke in the MRI, I don't know what to do next.  The only other thing can be white matter, lesions caused by Lupus.   Cancer in my brain?  At some point in time, things started to be missed words.  and it got worse somehow.  I was posting about brain fog. or lupus fog, or fibro fog or whatever.  Then my grandson knocked on the door, and somehow I lost my words during the time he knocked on my door and following him to the computer.  but the words lost was worse as the day progressed.  It seems to be better now though.  like a stroke.  I do not know what to do Okie.  If the MRI does not show a stroke, what else can I do?  what else can it be?

My kitchen has mounds and mounds of dirty dishes.  It is just a superficial thing, these dirty dishes.  wash dishes is enough.  but probably I will not know until Monday.  may wash my dishes now.  I cook my grandson food, and dirty the dishes.  this is the most important thing.  feed my grandson, and stack the dishes til high the ceiliing yeah dishes can be washed at any time.  need to clean my house though.  mounds of dirty closthes also. just not matter.

Ginny is matter.  Barb is matter.  these stupid dishes and dirty clothes do not matter.  this is what matters.  So many of you so very sick.  and still they find words for me.  still praying for me, even so they are so sick.  Really worried about Ginny.  no one is better than another.  just Ginny is like my own sister, or cousin or so much thing.  can't do it right.  can't say it right.

a few hours and the MRI will tell me the right thing.  or the wrong thing, whichever it is.

Hester

okie said...
Hester you are so sweet. praying for you as well. I hope you are feeling better. Don't worry you words were just right!
hugs
carol


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 11/7/2008 1:26 PM (GMT -7)   
Hi everyone,

I just got off the phone with Barbara- she had a big increase in white blood cells overnight, so now they are thinking she has some sort of infection. They had to move the IV as the site went bad, and she's finally on a pain med pump, so hopefully she'll be pain-free shortly. Still some fluid at the bottom of one lung. Did a strep test today, as well as lots of other tests.

They aren't letting Barbara out until after all the test results are in, so she'll probably be there over the weekend. And Monday is Veteran's Day, so the drs will be off that day also. We chatted that maybe she has some of the flu that Nikita had last week and that Bill is now very sick with.

Barbara said to thank you all for your thoughts, good wishes, prayers, etc. She sounds a touch more upbeat than yesterday (good pain meds sure help with that!).

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 11/7/2008 1:26 PM (GMT -7)   
PS. Please keep this thread for Barbara Lee related comments. Thanks.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/7/2008 8:21 PM (GMT -7)   
(((((((((( Barbara )))))))))))

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 11/8/2008 2:25 PM (GMT -7)   
Hi Carol and Barb. Wow, both of you are so sick. Carol, are you feeling any better with the morphine and solumedrol? Is the levoquin working yet? I've been on cipro since Tuesday, but my antibiotic is just for a sinus infection that I got because my cellcept was increased. I hope Barb is resting comfortably. Sweet Carol, take it easy.  Love you both! Butterflake  

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien, flexeril, multi vit, C, flaxseed oil, acupuncture    Donna
 
 


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 11/8/2008 2:54 PM (GMT -7)   
I just talked to Barb a few mins. ago. They had to put a catheter to her bladder because she wasn't releasing any urine,when the nurse placed the catheter in she wanted to know if Barb was having a period.Barb that she had a hysterectomy so she's bleeding from somewhere.Barb is in alot of pain even with the pain pump.She wanted to let everyone know that all your prayers and well wishes are very much appreciated.She has no idea of when she may go home but it doesen't sound to me like she should be going home for awhile ti'll they get things under control and know what their dealing with.((((((((Barb)))))))) keep on praying for Barb.
Kay

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 11/8/2008 3:04 PM (GMT -7)   
Talked to Barbara Lee just a few minutes ago. Today is not going very well. She had to get a catheter and apparently had been storing quite a bit of fluid... Today her back is hurting in the kidney area so she's worried that there might be kidney involvement of some kind. She's had a medical student keeping her company today, and he's doing his best to keep her pain-free. The infectious disease doctor is still watching her tests closely...waiting to see what, if anything, shows up in some blood cultures.

Unfortunately, her friends are all about an hour away, and even Bill can't visit because he's down with a bad case of the flu...so if anyone out there has perfected teleportation, now is your chance to use it for good!

Probably not going to be released tomorrow...if not, she's hoping to feel well enough to male her way to the 'family center' where she can login herself and see what we're all up too. Barb said to let you all know that the though of us makes her smile.

Hugs, my friend (((Barb)))

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/8/2008 3:42 PM (GMT -7)   
((((((((((((((((((((((BARBARA))))))))))))))))))))))))))))))
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/8/2008 4:03 PM (GMT -7)   
Oh NO!! (((((((((( Barbara ))))))))) Hang in there sis!!! Sending you some chicken soup and hot tea. When it rains, it pours. *sigh* So sorry you are still having SO much trouble.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


python
Regular Member


Date Joined Apr 2003
Total Posts : 104
   Posted 11/8/2008 5:38 PM (GMT -7)   
     ((((BARBARA))))
 
 Sending much love, hugs and prayers your way!
          Donna
SLE, Lupoid arthritis, Mixed Connective Tissue Disease, Scleraderma, Polymyocitis, Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
 
Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Vicodin.


honorablemention
Regular Member


Date Joined Sep 2008
Total Posts : 26
   Posted 11/8/2008 6:58 PM (GMT -7)   
*sending up positive thoughts*

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 11/9/2008 6:57 AM (GMT -7)   
((((Barb)))) I'm sorry you're in such terrible pain. I sure hope those blood cultures come back negative. (Blood cultures are kept for 7 days before they can be called negative.) I'm praying for you and sending oodles of positive energy! Love ya. Butterflake 

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien, flexeril, multi vit, C, flaxseed oil, acupuncture    Donna
 
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/9/2008 6:56 PM (GMT -7)   

Spoke with Barb tonight. Her hubby and daughter came to see her. She is hoping after the test tomorrow she will get to come home. Please continue to keep her in your prayers.

hugs

carol


Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/10/2008 6:29 PM (GMT -7)   
Hi Carol, Donna, Honorablemention. Python. Rosie. Navy, Lynnwood, Kay, Donna, Rosie, Lynnwood, Hester, Carol Hester, Carol, Judy, Hester, Lynnwood, Rosie, and CaroL:  Whew, I hope I got everyone.  If not I greatly apolgize in advance.  Honaorablemention welcome for our forum this a a great place to be.  Lots of wonderful caring ppl here. 
 
Hester how are things with you?  Did you have a storke or not?  Are you still in the hospital?  Carol I know we've spoken and I know you're not in the hospital but wishing you were I'm sure.  As for me all is well, I've now been in the hospital ever since last Wednesday the 5th of November.  Looks as if I don't have an infection nothing has grown so far.  It looks like I am in the middle of a HUGE flare.  I was totally snowed over with the pain meds.  I was unable to urinate so I ended up with a cathera in my bladder.  It finally came out this evening.   Ginny how are you doing with your surgery?  If there is anything I can do for you please just ask me righy away and I'll get on with your need or resquest.  I'm hoping to go home tomorrw  and i"ll be taking 25 mg of pred daily for a week. Then begin stepping do the amount until i reach 10.  I sincerely hope that I can do this. 
 
Well I'd like to stay and talk more but just this bit has worn me out.  I'll see you all tomorrow I hope.  Lets all link our hands to gether and forum a circle.  Feel the friendship and love flowing through our group.  Those of you need help and strength will receive it and those you have the strentgh to off will give it up to us.  Thanks for being there for me I love you all.
 
Hugs,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/10/2008 7:35 PM (GMT -7)   

Hi sweetie, glad you were able to get to the computer. You got lots of friends here keeping you in their thoughts and prayers. I'm holdin hands with ya all as we speak! I hope you are able to get to come home tomorrow but don't push it. Hey Tell Bill I am sending him a Huge Happy Veterans day hug and thank you for his service. I know the whole family is part of that as well. So thank you barb for standing their thru the rough times a military life can throw at ya!

God Bless

carol


Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/11/2008 8:03 AM (GMT -7)   
((((((((( Barbara ))))))))))

Glad you are home. I hope you tolerate the pred ok. *sigh* I just wish you could get feeling better again. I know things have been really hard for you for a very long time.

Thanks so much for the update.

Will keep the prayers coming!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 11/11/2008 9:56 AM (GMT -7)   
I just got a call from Barbara - it seems that everything is pointing to a big lupus flare rather than any of the other issues that were suspected. She'll be heading home around 5 pm EST today - she's being released under the condition that she go back Friday for blood tests....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

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