In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
I sure did, I spend time on that board too! Thing is my MRI's have been fine...
Yup, I get that too. I often check my pocket for my cell phone thinking its vibrating and the phone is in my purse or somewhere else.
Wow your symptoms sound like mine. Aside from that I have had muscle twitches ALL OVER my body non stop for 3months. Before the twitching started I had the pains..toothache pains that mainy tend to hit random fingers, ankles, toes, shins, spine. Sometimes for a min sometimes for hours. After a couple wks of onset of the pains the extreme joint cracking started and it is EXTREME. My dr was stunned by this.
Nobody knows what is wrong with me. I have no inflammation. My blood results are good.
So Bay you have been dx with Lupus (sorry if I asked before)
Are there different forms of Lupus? Does it take awhile to show in the blood? All I know is something seems to be attacking my joints/muscles. My EMG was clean (I may ask for another)and MRI clean of lesions. I do have c spine stenosisi but not severe and would have nothing to do w the cracking of my joints and I know the joint cracking is related to whatever is going on in my body.
My pointer finger has been kind of numb for 3 days, it was numb last month for 2 days
Do you think your symptoms are part of lupus? Do you too have extreme joint cracking and twitching?
Sorry for all the questions
Do you get the constant twitching too? It has me so panicked that I have ALS even though my EMG was fine.
Yes, I wake up often lately to find my hands numb even if I have not been laying on them.
I may ask for a LP too just to definitely rule out MS though my MRI showed no lesions..sometimes they dont. However, the joint cracks would have nothing to do with MS--so then I panick about ALS though I know that would be rare.
So thats what brings me back to lupus. My hair has been thinning a lot, and my eye lashes always seem to come out. Not sure if its related or not. I do not have a butterfly rash though I do get a sun rash but typically I need to be in the sun all day for that to come out. I dont get a ton of colds either. Sooooo..I am confused obviously.
My pointer finger has been on and off numb for a couple days. Just 15 min ago it was now its not...
The pains are incredible. It feels like its my bone, really like a toothache in the area it hits. How long does yours last in any given spot? Do you notice it hitting the same areas typically? I too get nerve pains --usually my left foot...I know what you mean by being a vodoo doll. Its like you are walking along and everything is fine and BAM you get a sharp toothache pain
No, I do not get constant twitching all the time. My eye just happens sometimes out of the blue; other than that, it only happens when I have sciatica.
I've been trying to research into my symptoms and I keep coming across MS as one possibility, which I hope it isn't. Although, one of my grandmothers had MS.
Hair thinning and falling out can be lupus related, though it can be related to other conditions as well. Personally, I have had massive hair thinning while in lupus flares and my eyelashes also fall out, though not completely. Now, over the past year or so, I've basically lost the outsides of my eyebrows!
I do have problems in the sun, if I'm out in the sun too long, I start feeling ill and get extremely tired and fatigued. Sometimes this even happens from certain lighting. I have had a malar rash in the past, which is the first time I was suspected of having lupus by a dermatologist. But one does not have to have this rash to have lupus.
My nerve pains are usually short and quick, several seconds, though I've had times where it throbbed and hurt for minutes. Again, I've also had severe sciatica, where sometimes that pain was 24-7. But that was definitely related to a problem in my spine. My finger pains usually occur in short bursts, though it may last for while and happen on & off during the day, sometimes for several days. Then I can go for days without it. I also get severe, sudden, bursts of nerve pains in the tops of my feet, the fronts and backs of my legs, my ankles, and hips.
Yea, I wish I knew what was going on with me, it's just very strange. I know I should have testing done, but I can't right now. Come to think of it, King....do you also get migraines?
I get migraines, though most of the time I have them without headache; I usually just get all the auras, visual symptoms, smell weird things, and get ear ringing. I also had 2 episodes where I'm not sure if it was a migraine or not. I suddenly felt "weird", very hard to explain. I wasn't exactly dizzy, as in spinning, but I could not focus. I felt sort of out of myself and almost thought I was going to pass out or something. It was not what usually happens with my migraines. I happened to be in school at the time. In the morning, I told a classmate that I suddenly felt strange, not right and as the day went on, it got worse. Then in another class, I was trying to look at my teacher while she was talking (and I was sitting smack in front of her). But I couldnt really focus...I heard talking, but wasn't quite sure what she was saying all the time. Then I heard her ask if I was okay..apparently I had turned white as a ghost and "didn't look right" to them. One of my teachers is also a nurse, so they called her in, she thought something was wrong (they almost called an ambulance). Strange though, she took my blood pressure and it was actually very HIGH, when they all thought it would be low. It took several hours for me to start feeling better, though not completely better. I still felt a bit "off" the next morning. It was extremely strange and I have no clue if that was a migraine or not.