In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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My daughter was also diagnosed with Lupus SLE with when she was 10 years old. She is now 14. Here hair also fell out and was left with very few strains. When you first get diagnosed your hair falls out from the shock of the illness and my daughter was not even on prednisone at the time but was then put on 20mg when she went into her first real flare up. She had learned to keep her hair in a ponytail and wore thick headbands which helped cover up the bald spots. Her hair will grow back and she will not lose it like the first time, but going forward she will shed every time she flares or even has a virus. She also broke out with a raised rash when she first started plaquenil at age 10, was taken off it, it went away but then was put back on it and her system finally got used to it. My daughter is on 2000 mg of Cellcept, 200 mg of plaquenil and 3 mgs of prednisone, which has helped manage her since she has been diagnosed. If you have any questions, I would be happy to answer them as I know it is a lot to handle.