Muscle twitching

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king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/14/2008 12:18 AM (GMT -7)   
Hi all I may have asked this before, if so sorry. I believe I could have lupus but my symptoms are pointing more towards lyme
 
Does anyone here have muscle twitching all over their body, constant? My EMG was clean (thank god), and I have pains too along with extreme joint cracks
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/14/2008 12:50 AM (GMT -7)   
Hi King,

I do remember a couple of posts from you asking about the twitching . . . I'm so sorry I'm don't have any helpful information for you. This must be very frustrating along with the other symptoms you are dealing with (the buzzing, vibrating and joint cracking). I sure hope you find some answers soon.

I do want to ask you a favor. We are asking each member to edit their signatures so that they are no more than 10 lines (even a blank line counts as one line). Remove blank lines before and at the end of the signature (these take up space too). Lengthy signatures use up forum resources and slow down the speed at which pages reload. So thanks for your help in keeping the forum running smoothly.

I hope some of the other members will be able to shed more light on the muscle twitching.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/20/2008 3:24 PM (GMT -7)   
Muscle twitch is my middle name. Drove me nuts for 2 years, then slowed down. I had it almost constantly migrating around everywhere, now I just notice it sometimes. However, what happens now is muscle jerks. My hand or leg or arm will just visibly move! No control on that.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/20/2008 3:32 PM (GMT -7)   
Yep that is me. I have had twitching ALL over every day every hour for over 3 months. Some are deep and light and very fast others are hard and slow and I can see them. You name it, it twitches. Lately my thumbs have been jumping up. I feel like a popcorn machine
 
Someone did say that this is usually not associated with lupus though.

Sound like we have the same thing going on. Do you have the joint cracking too?


----------------------------------------------------------------------
33 yr old female
 GERD dx March 2007
Migraines with Aura
IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL
 
 
 
 
 
 


KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/20/2008 9:25 PM (GMT -7)   
Hi..I'm not sure, but the muscle twitches/movement sound more like fibromyia. I have been dx with FM and I have muscle twitches..they will calm down/even go away for months.. I can see mine too... It use to bother me.but since twitches don't hurt, I watch them and say "wow look at that"-LOL:+)

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/20/2008 9:37 PM (GMT -7)   
I dont have any of the tender points. The twitching is VERY common with lyme and also was told that most people w lupus dont have twitching. I am on antibotics for lyme now
----------------------------------------------------------------------
33 yr old female
 GERD dx March 2007
Migraines with Aura
IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL
 
 
 
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/20/2008 10:40 PM (GMT -7)   

Hi King,

I wonder if would mind checking out this topic:  http://www.healingwell.com/community/default.aspx?f=29&m=1291258

We are trying to get all the member signatures shortened up a bit.  Thanks sis!!

Blessings!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/21/2008 4:17 PM (GMT -7)   
Hi King,
 
I think you can rule out lupus as the cause for some of these symptoms.  You have a positive diagnosis for Lyme Disease, and that disease will cause all the symptoms you're having.  I'd focus on the Lyme diagnosis and not worry about what if this is lupus. There's no way that a lupus blood panel test would get confused with a Lyme disease test.  I think you have a solid answer as to what your symptoms are caused by.
 
The Lyme forum is very active and you'll find some super support to help you through the treatment.  It's very good news that you don't have lupus. 
 
Good luck with your treatment!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Angel312
New Member


Date Joined Feb 2013
Total Posts : 13
   Posted 2/14/2013 3:36 AM (GMT -7)   
I am not in a position to dx you of course, but first I would like to say that I hope you get some diagnostic confirmation soon. Sometimes just sitting and waiting is the worst part...not knowing what this is so a course of tx can be started, if appropriate. I have been through the medical gammitt many times myself, and it is very stressful. I have recently started having muscle spasms, and have not yet mentioned this to my Rheumy. I have Lupus, but I also have many other dx's too, which can be difficult. I have stenosis, scoliosis, bulging disks, spondylosis, currently I have commpression fractures @ T-12 through L-5 due to prolonged use of steroids for Lupus and Addison's Disease. I also have RA, obviously Osteoporosis, and Diabetes. Hence the reason it will be difficult to pinpoint where this is coming from Oh yes, I did have a cervical fusion in 93. I don't really have a lot of pain with these spasms or twitches, but they are SO deep and jerk my body so hard it is disturbing. Now, I belong to a Lupus support group specific to Lupus, and I will just mention that quite a few ppl chimed in when I mentioned recently that these spasms had started, so it is possible that some ppl have this symptom with Lupus? I see my Rheumy nxt month the 8th, and am going to mention this to him...he always says "Gail, you are difficult because you have so many things wrong with you". I just laugh and say "ok, well I will just eliminate some ok?". Then we laugh.... But seriously, I am getting frustrated with these because they wake me, and I don't get a whole lot of sleep as it is! I know I haven't given you a lot to work with, but I just saw your post and since I found these frustrating I figured it couldn't hurt to offer a little support;). I did, BTW, have an EEG back in 09, and it came back with some lesions, but of course there can be many reasons for this including Lupus, meds, etc. Mainly this Dr. was concerned with MS, and with other tests he felt I was negative for MS, so that was that.
I truly hope you find some answers and some sort of relief....and peace of mind.
Angel312/Gail

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14414
   Posted 2/14/2013 1:01 PM (GMT -7)   
Welcome Gail,
You've found an old thread from 2008. I don't think King posts here anymore. Make sure to write an introduction thread and let us know about you.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/15/2013 1:27 AM (GMT -7)   
Welcome Gail,

I'm sorry to hear that you are having issues with muscle twitching so bad.

This is a really old post and I don't think King comes here anymore. If you want to start your own thread, I'm sure there will be others along to offer you some support.

Again welcome and I'm sorry you have lupus and the problems you are having.

Hugs,
Barbara

Angel312
New Member


Date Joined Feb 2013
Total Posts : 13
   Posted 2/28/2013 10:18 AM (GMT -7)   
Oops...my bad. Sorry abt this. I should have checked dates.... Willtry to remember to do this in the future...if I can remember....lol! smhair
Lupus, Diabetes, Addison's Disease, RA, Bursitis, Spondylosis, Scoliosis, Degenerative Disk Disease, Spinal Stenosis, Bulging and herniated disks multiple levels, Compression fractures due to Osteoporosis caused fr Prednisone ;)

Worthit
Regular Member


Date Joined Nov 2011
Total Posts : 212
   Posted 3/9/2013 9:03 PM (GMT -7)   
Hehehe its amazing how old stuff can linger on the net but it struck a note with my twitchs. Still undiagnosed. Rheumy is certain of 3+ cond.
I've done this myself Gail, welcome and good luck!
Alone we can do so little, together we can do so much
Call me Jimmy;-)

Cirrhosis,osteoarthritis,back,knee,hip, extreme flat foot,falling arches, hammertoe,out-toing and bone spurs(will be requiring major foot surgery on both feet). Had kidney tumor removed.Neuropathy- deteriating nerves,Osteomyelitis and Insomnia Hoping to be diagnosed with a good sense of humor ;-)
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