sleeping problems

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jojo711
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 11/15/2008 2:00 AM (GMT -7)   
i read alot of posts but havent really posted myself but once i think. i just wanted to know if alot of u have problems sleeping. Ever since i became ill, about a year ago, i have alot of problems sleeping. Then when i dont sleep well i fell worse the next day. Should i ask my dr about this? I dont want them to think that i am complaining, but i really believe that i need to be sleeping well in order to feel as well as i can be? do u have any suggestions? Ive tried warm baths at night, tea, taking things that have sleeping pm stuff, but nothing seems to help
 
thank you joan

Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/15/2008 4:01 AM (GMT -7)   
Yup. Have you noticed the times on my posts ever? Its funny I can fall asleep during the day anytime. But to sleep at night forget it. Like today I got up at 10a went to work came home, laid down an hour or 2 ago and here I am again. Trying to pass some time.... I think if you tell your doc all he will do is give you a script for a sleeping pill. The PM stuff doesnt work for you? It works great for sleeping but then I am dopey for like 12 hours after I take it which is no good most of the time if I have school or work or whatever. They say exercising during the day helps you sleep at night. Thats a funny joke huh?
Melissa
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 11/15/2008 5:53 AM (GMT -7)   
Hi joan,

You'll find lots of people here have trouble sleeping at night. Do you take prednisone? If so, what time of day do you take it? When I was taking mine in the morning I had a horrible time sleeping at night. My rheumy suggested I take it at bedtime, and it helped quite a bit. Every now and then I still get a bought of insomnia, so I also have a prescription for a mild muscle relaxer; this way I don't become dependent on it to get to sleep. Definately talk to your doctor. If you have a good rheumy, he/she won't think you are a hypochondriac.

Good luck, and good dreams to you.
Robin
 
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
 
 
Also a wife and mother of three.


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 11/15/2008 6:53 AM (GMT -7)   
I've said it before, but I'll say it again I love Ambien. You take it, go to bed and fall asleep faster, stay asleep and I do not wake up feeling dopey.

That's interesting that the Pred helps you sleep, Joan. I know it tends to keep me up especially at high doses. I also take flexeril at night, and I've found that it helps me from being as stiff in the morning, but doesn't really help me sleep. Jojo, talk to your doctor, if can't sleep at night, you'll only continue to feel worse.

Jennifer

PCP DX Lupus and Fibro, Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 11/15/2008 9:06 AM (GMT -7)   
For most people, prednisone is the culprit when it comes to not being able to sleep. Taking it as early as possible helps, but most people end up taking some kind of sleep-aid before they can get good restorative sleep. So yes, do mention it to your doctor.

As a matter of fact, *everything* should be mentioned to our doctors -- there are often small things that they have observed while treating other lupus patients that we might think are totally unrelated, but that will mean something to them.

Sleep-aids vary widely, and your doctor will help find something that works with your other medications and your other symptoms -- sometimes they have over-the-counter suggestions, sometimes they suggest muscle relaxers, benadryl, other cold medications, anti-depressants, ot straight out sleeping pills. Something different for everyone, it seems, as they want to make sure no side effects increase our other troubles, and instead help us out!

My personal med is Trazadone...and if my mind is spinning wildly, a little Xanax.

Wishing you deep restorative sleep soon,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 11/15/2008 9:09:37 AM (GMT-7)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/15/2008 5:35 PM (GMT -7)   
For those of you who take the PM sleep meds . . . the med that adds the PM is Benadryl. This is inexpensive in the generic form "Diphenhydramine".

I do use it occasionally. . . and it does work. I save it for times when I've had a couple nights of poor sleep.

But . . . I'm sleeping much better now that I'm feeling much better. I think its because I am more active during the day. Not sure though. Its a "chicken or the egg" thing.

I also think I've been sleeping better since I'm taking so little meds now. I'm down to Plaquenil and Tylenol. Yeah!!

When I do have problems sleeping . . . a cool room with a nice warm grain bag or electric blanket is very nice!! Really helps for pain and discomfort too. The baths before bed really tend to wake me up.

If I can't sleep . . . I do not lay in bed. I come downstairs and knit, read, internet or watch tv. Then I try going to bed again. Much less frustrating then lying in bed awake. It has also stopped my sleep phobia. Which had me hating my bed. Just a thought.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Post Edited (AlwaysRosie) : 11/15/2008 5:38:21 PM (GMT-7)


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 11/15/2008 7:50 PM (GMT -7)   
Hi-I have troubles sleeping at night, and I often wonder if its just a matter of getting my body to relax.  I notice that if I don't have comfortable relaxing sleep at night then I am extra tired and somewhat achey all day.  If you want to try a few things before using meds to help you sleep, I can offer a few suggestions. 
 
First of all, make sure you are not up all night concentrating on things or problems that need to be handled the next day.  Concentrate in your mind on a single candle flame undisturbed, and if any other thoughts try to come into your mind, your candle will flicker and maybe go out.  The goal is to let that flame burn. 
 
Try concentrating on each part and muscle of your body, starting with your toes up.  Flex them for 5 seconds and let it go, completely relaxing each area.  By the time you get to your head, you should notice an overall calm in your entire body.  If your muscles still tend to tense up, go back to those original spots and try again. 
 
My personal favorite is to take a nice warm bath before bed.  It always relaxes me and makes me feel calmer. 
 
Never sleep with your television on.  If you have troubles falling asleep, try to read a book instead or magazine, nothing dramatic or too much action though, that might keep you involved in the book and before your know it you've been reading for 3 hours. (its happened to me)
 
Sometimes if I am having troubles staying asleep at night, I will get up, go to the bathroom and get a drink of water.  I will also pet my cats for a few minutes before going back to bed.  Lately though  with the cold weather they are the reason I wake in the middle of the night-they are such bed hogs.  
 
As a child I also used to drink warm milk before bed.  It not only warms you up, but it also has a way of helping you sleep. 
 
I hope I didn't just hit on the obvious methods of trying to sleep.  I have a pretty firm belief that I will try almost anything to not have to take any extra meds, I understand that sometimes thats just not possible. Good luck! 
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 11/16/2008 6:16 AM (GMT -7)   
Jennifer,

The prednisone doesn't help me sleep at night. When I take it in the morning, it has all day to build up and by evening it has me wired. When I take it at bedtime, it has all night to build up in me, so I'm able to fall asleep before it has a chance to get me wired.
Robin
 
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
 
 
Also a wife and mother of three.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 11/16/2008 9:54 AM (GMT -7)   
Joan,

Don't hesitate to talk to your doctor about this. Difficulty sleeping is not unusual for people with lupus who are on a variety of meds, so your doctor won't be surprised when you bring this up. There are other problems that can bring on lack of sleep, such as sleep apnea and restless leg syndrome, and a good doctor will help you sort it all out.

A few years ago I went through a long period when I could hardly sleep, and in my case it was caused by a high dose of prednisone plus restless leg syndrome. Once I had a sleep study that diagnosed the RLS, I was prescribed lunesta and Neurontin. Not only did it help me get a good night's sleep, but my overall health improved. Now that I'm on a low dose of prednisone, I've been able to give up the lunesta.

We all have our own techniques for getting to sleep. In my case, if I awaken in the middle of the night, I put on a headlight and read in bed. I usually don't make it more than a couple of pages. I'll often wake up to see my hubby reading with the headlight on his head.

You said it. When you don't sleep well, you feel bad the next day. Restful sleep is important for your health and healing, and lack of sleep can bring on more problems than you already have. I hope you'll call your doctor tomorrow and discuss this with his nurse.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/16/2008 4:05 PM (GMT -7)   
Hi Jojo,
 
I'm another with sleep troubles too.  I have Fibromyalgia to add to the mix, which makes sleep really hard if I'm flaring.  Definitely take the advice the others have mentioned.  If you don't sleep well, you can't take care of your lupus and it will take over.  Good sleep is so important.
 
One little med that has worked really well for me is Amitriptyline. Low dose, about 20-30mg taken 2 hours before bed.  It helps when I'm not in a major bad flare up. 
 
Hope you get some zzzz's tonight,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 11/16/2008 10:34 PM (GMT -7)   
I have RA and I think I'm one of the few people who can sleep on prednisone and the Medrol dose packs and I don't have any trouble falling asleep.  However, I normally do have insomnia and I was taking Lunesta and it worked great, but with my insurance not wanting to cover it, I have been trying Trazadone for the past few nights and they seem to work well and I only take 1/2 of a 25 mg tablet.
 
My rheumy and I just had the discussion about not sleeping and he agreed 100% that sleep is important and only aggravates symptoms.  He was more than happy to prescribe something for my insomnia.  Please don't hesitate to talk to your doctor so you can start sleeping..for people with Lupus and RA its critical that we get the rest we need.

jojo711
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 11/19/2008 11:41 AM (GMT -7)   

just an update. I had to go see my dr because i thought i had strep throat (didnt have it) and i got to see my pcp at the office. So i told her about the sleep problems and she put me on ambiem,5mg. so lets see if this helps. I sure hope so. Ive had this flu like stuff for about a week and a horrible sore throat so with the no sleep thing ive been feelin real crappy. On the upside, i got my flu shot. Lol i m not sure y they gave it to me if im sick, but i trust them. So the good news is thats out of the way. Oh yeah and my 4 yr old son was up all night throwing up. Great huh! and now i have to go to work because i couldnt find anyone to work for me. Ohhh wat a day already.

Well just wanted to thank u for ur suggestions, and i hope this helps. ill let u know tonight, lol or if it works in the morning. Hope u all r feeling well today

 

joan


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/19/2008 12:12 PM (GMT -7)   
(((((((( Joan ))))))))

???????? does sound weird to give/get a flu shot when you are already sick ?????? but I'm not doctor ?????

Sorry you are dealing with so much right now. I wonder what makes us so dedicated to work??? sometimes I wonder if that is part of what makes us sick . . . we are so determined to carry our load!

I hope you sleep well tonight. Will watch for updates. And I hope you don't feel any worse!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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