Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Thank you so much Lynnwood and Ginny, I think I will wait until after the new year and make an appt: Patty Latty lives down there so I know she will be a huge support for me.
Ginny how are you feeling? I hope you aren't over doing it. You asked how I felt about this time line. It's kind of strange but I actually feel someone releived. My health care worker keeps telling me now Carol there is nothing stamped on the bottom off your foot that says you only have so much time. lol. Of course she is referring to a commercial on television for cancer treatment centers of america. I don't have a death wish or anothing but living hooked up to machines and spending so much time in the hospital. The only thing I don't want to do is suffercate. That thought scares me. I just don't want these doctors to play games with me. Just spit it out ya know? My husband was my age when he died. I don't know what God has planned but since I am a christian I'm not praying for healing. I'm praying that he gives me strength to make a diffrence in someones life while I'm still here. But I plan on laughin alot and telling jokes and having christmas tree lights up and bake cookies. and enjoy my friends and family. I'm sorry if I'm making anyone uncomfortable I really don't mean to. I'm sure not all days will be good days but I'll take what I go one day at a time. Wow I'm really tired all the sudden so I think I'll get some rest.
Your blood problems don't sound to good to me. but I have to admit I will have to read up on itto really understand. is it inflamation in your heart valves that you took the pred. for?
just remember phil.4:11
thanks again ladies. I hope you don't have any more problems pop up on ya. totally praying for ya!
love ya guys
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Hi everyone, I would love to speak to each of you seperately but I'm having a tough time. I can't get on the list while taking predisone. I guess when you get a transplant they want you to not have osteoporosis because you will be put on anti rejection meds to take your whole life. which of course causes bone thinning. I already have osteo but it's not bad and it can be reversed in some cases. So that's what I'm shooting for. Anywa it's been three das off the steroids. I noticed this morning my knees were starting to hurt. by tonight I have a serious back ache. I take vicodin and it is doing absolutely nothing! I would get more out of an aspirin. I'm setting at the computer and worrried about when I stand up I know my tailbone is gonna hurt! I asked my doctor if she could give me somthing instead of pred. like methodrexate or whatever. She said those meds do specific thing in specific areas and they are not good for the lungs. Well I just wanted you guys to know that all of your messages to me have touched my heart and I wish I could get together with each one of you. You are all so special to me.
Hang in there all