cleveland clinic doctor anyone?

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lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 11/20/2008 11:22 AM (GMT -7)   
So, a few of you have mentioned going to the Cleveland Clinic.  Is there a particular doctor in Rheumatology/Immunology that you would consider to be really helpful?  I checked the rules, and I didn't see anything that would disallow this - but I may have scanned too quickly.  I heard my rheumie tell her nurse to schedule me with whoever was "up".  There is the luck of the draw - but I guess I'm looking for options/recommendations.  Thanks - Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 11/20/2008 3:58 PM (GMT -7)   
Don't want to break any rules here, so I will try to be delicate. Cleveland Clinic was one of the rounds I made before I was finally diagnosed. (And they were not "in network".) They were the third batch of rheumatologists I'd seen.
My primary care doctor was convinced (in 2002) from symptoms and positive ANA that I had an autoimmune disease - probably lupus. But getting a specialist to agree with her was next to impossible.

I finally ended up at University Hospital - which I can't recommend enough. I see a fantastic rheumatologist there. His diagnosis was based on positive ANA and the many symptoms (6 out of 11). He started me on plaquenil and prednisone and we saw positive results fairly quickly.

Best of luck to you!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac, Ambien CR.
Daily Supplements: Multi-vitamin, Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 11/20/2008 4:30 PM (GMT -7)   

Thanks, Fran - I appreciate your post, even though it doesn't boost my hopes at Cleveland Clinic.  I looked up the doc that I got referred to - and she started there last year, and looks to be about 16 yrs old in her photo.  I know that sometimes the young ones can be even more thorough and up to date - but I just haven't had a lot of luck thus far. 

My daughter used to work at University Hospital in Cleveland in the rheumatology dept. (she was a medical secretary there) before she moved to GA, and she loved it and felt they had some wonderful doctors as well.  This is why I haven't made my appt. yet.  I keep thinking I need to be thoughtful and deliberate about this process - especially since it will be expensive as well.  I want somebody well schooled and willing to investigate and look at the whole broad picture, not just their own specific tests.

I'm getting the baseline eye exam on Monday, then will start on Plaquenil, presuming I pass the exam.  The earliest appt w/ CC would not be until Feb. so I have a little time to see how the Plaq works out.  And a little time to figure out if I should go somewhere else.  Would you mind emailing me? 

Lucy

 


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 11/20/2008 6:07 PM (GMT -7)   
Sent you an email.
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac, Ambien CR.
Daily Supplements: Multi-vitamin, Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

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