Anyone have hip pain?

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lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/20/2008 11:40 AM (GMT -7)   
Just wondering as I have pain at night when sleeping on my side and its travels down from my hip to foot. I thought it was a disc, but my MRI is clear. So now I think its lupus but seems a odd symptom!

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 11/20/2008 1:43 PM (GMT -7)   
Hi Lynn,

I have that pain too . . . but I saw a spine doc and he said that it was a pinched or damaged nerve in my spine. It seems that no just anyone can read those MRI's . . . but anyway, he said that I had permanent damage .. . after doing EMG (electrical conduction test ) . . . but I do get a bit of relieve from doing some basic lower back exercises. It doesn't help right away, but over time it does make a difference.

I hope you get some clearer answer for your pain.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/20/2008 3:13 PM (GMT -7)   
Yes I also get relief from lower back exercises. I am seeing another doctor tomorrow for a second opinion.

Ides
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Date Joined Nov 2003
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   Posted 11/20/2008 3:15 PM (GMT -7)   
I have had similiar problems off and on for a couple of years. Two causes in my case - trochanteric bursitis and iliotibular band inflammation. Depending on the type of MRI that you had, neither might have shown up. My most common cause of pain making it impossible to lie on my side is the trochanteric bursitis. https://www.clevelandclinic.org/arthritis/treat/facts/Tronchanteric%20Bursitis.htm
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 11/20/2008 3:40 PM (GMT -7)   
Hi Lynn, welcome!

I had a lot of hip pain too, it was always very painful while sleeping, tossing from side to side was horrific. I talked with my rheumy about it and when I couldn't take the pain anymore I decided to try Methotrexate, she warned me that the MTX would only work if it was lupus related, not degenerative. After several months I finally noticed a difference. Of course from time to time I do hurt but NOTHING like I did before. What meds are you on for your lupus?

I pray you get some relief soon! Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/20/2008 7:32 PM (GMT -7)   
Hi Stacey,


I am on tramadol right now, but was on plaq and pred. My doctor wanted to do methotrexate, but I am trying to get pg and I guess that drug is a no no for that. I will ask about it for later. I guess I am trying to figure out what is causing what!

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 11/20/2008 7:57 PM (GMT -7)   
Hi-my hips are always sore.  I think sometimes its due to being worn out, but there are other times that I try to lie on my side in bed and its impossible.  I do notice that on the days that I'm probably overdoing it.  Sometimes my hips will hurt worse if I've worn cute stylish shoes with a little heel.  You aren't a runner are you.  I used to be a runner and my drs. had to talk me out of this.  Its too hard on your body.  Also, my chiropractor said that if running makes your hips hurts that its a bad idea to do it.  Just thought I'd throw that out there.  Oh, and I've tried belly dancing-OW!  Don't do that either-there's too much hip action.  I thought I'd break my hip trying those moves.  Anyways, hope your hips feel better soon.
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/22/2008 1:58 AM (GMT -7)   
Hello-
My hips are always sore too. Mine is in my lower back right on my hip bone. In the past couple months when I walk too much I limp. I mentioned it to my rhemie and he said mine wasnt acutally hip pain, but SI pain. I didnt realize there was a difference, but theres tons of stuff that comes up He said hip pain will be more in the groin ( at the joint) and that SI pain is more in the back. I didnt really care, it just hurts! Either way when I google for SI pain I get more on RA and sometimes lupus and other AI. Hip pain searches just show osteoarthritis.
Is it the side you are laying on that hurts or the top leg? Maybe if you put a pillow under your top leg in between you knees it will take some stress off the hip joints. As a matter of fact I should take my own advice a try that.....
It seems like the SI/hip pain is pretty common its just what you call it!
Hope you feel better.

Melissa
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram


lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/22/2008 7:49 PM (GMT -7)   
Hey guys, yeah its the leg I am laying on and I was first told it was bursitis. I have tried all kinds of pillow solutions but none work. There are better and worse nights, but the pain is pretty incredible on bad nights!

I just went back to the doctor. He said its been too long for it to be bursitis. Says its sciatica and that I should try cortisone shots. I am very hesitant to do that! He also said my tennis elbow (both arms for 15 years and getting worse) is just due to lupus and that my joints are just going to be more easily irritated. But oddly he did not think the lupus caused the hip/leg/thigh/back pain....hmmm

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/22/2008 8:09 PM (GMT -7)   
Hi--
I have been dx with a "roaming" tendonitis. I get bad pain in deep in my hip. I have scoliosis and it throws my pelvis out of alignment. There is no bone holding the pelvis to the spine. Sacroileitis and lower spinal problems were told to me as common causes. I bought a full length silk heat/massage thingy at walmart for about 39 dollars and it helps because I can position my hip on the massagers as I sleep. Sitting and puting pressure on the joint makes it worse. There are these camoflage "heat" cushions for three bucks (they dont create heat but retain your own heat and they are for hunters and are realy really cushy and propping up that hip when I sit relieves the pain for me. Tramadol didn't cut it and stronger stuff helped me. I like bengay because its instant help. Mayo told me they didn't knw why I have the tendonitis. They aren't fast to assign it to my autoimmune disease unless they are absolutely sure there is not another cause. In my case, it is likely from autoimmune and endocrine, along with the curved spine. It just happens if you have a crooked spine, the tendons and ligaments can only deal with so much. I got an xray and checked for PAD, which is something you might want to have done since it is so simple. I had a similar problem with a pelvic infection.

In my case, since propping up my hip with a pillow makes it not hurt, I feel comfortable knowing what it is. I thought it was only on one side till it moved to the other. Signs my pelvis is out of alignment (and I don't mean chiropractic, but out of alignment with my spine) one leg longer than the other and uneven gait. Physical therapy and especially massage and ultrasound realy help. when I was younger, a physical therapist gently worked on the muscles to relax and stretch them and gently over weeks repositioned my pelvis, but my spine is so crooked now,it just won't stay.

I don't know if this helps, ut I thought it was only on one side because my spine is like a corkscrew leanig to one side,but I also had it recently on the other, but not nearly as bad. It lasts for mea for up to a month or more, sometimes excruciating and immobilizing , to very mild, then is gone for months. I had the same issue with my shoulders for the same reasons. In the future I will be getting steroid and pain injections.

I hope you feel better and that maybe it is just something that goes away for good sometime. They tell me the best hings for a crooked back are proper exercises and good posture but its easier said than done. My back just don't go like that! ;)
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/23/2008 10:57 AM (GMT -7)   
Interesting! I had a massage therapist tell my years ago that one leg was longer than the other. I guess the thing that bugs me most is it started out of the blue after I was lifting my 80 pound dog (who broke his pelvis)...

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/23/2008 8:45 PM (GMT -7)   
I guess that pelvis thing is contagious! If you have intermittent problems with uneven gait when you walk or one leg longer than the other you might pick up a reading for your last lumbar spine xray and se if they mention scoliosis or a curve. It's good to know to get your kids checked too. Sometimes they don't bother to mention it, but your doc might be able to look at the xrays or find out for your by calling the radiologist. Lots of times they just don't mention it because it maybe unclear if someone is out of position or just becuase itsreally mild and common.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


lilmiss_33
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/25/2008 9:59 AM (GMT -7)   
A few years ago I was experiencing hip pain mostly at night.  I had been on high doses of Prednisone for the whole year.  Turns out the Prednisione had killed the circulation in my hips and I had to get two hip replacements.

BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted 11/29/2008 5:27 AM (GMT -7)   
I have hip pain as well, but it sure sounded like sciatica too me. You mentioned cortisone shots this will most likely help. I had a cortisone shot for a back nerve pain issue that I couldn’t get rid of and it did work. I must tell you though that it was the worst pain I have ever had. I thought the shot was bad, but the next day it was excruciating after that things were good. I am glad I had the cortisone shot. Just thought you should know.
DX: IBS 00, MCTD 05, Depression 06, Sjogren's 07, GER 08  
Meds: Plaquenil 400mg, Prednisone 20mg, Celebrex 200mg, Effexor 150mg, Nexium 40mg, Metoclop 10mg and numerous other supplements 
Life is what you make of it.  Just something I try to remind myself every day.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/29/2008 8:10 PM (GMT -7)   
Bry and lynnie--
I had a cortisnoe shot from my doc, who used to do his wifes sciatica all the time and had been for years and he was really good nd I did not feel a thing so depending on the doc or individual shot, it doesn't HAVE to hurt, just sometimes they don't get it in just the spot they want to where there's space and fewer nerves. When I start getting shots again, if they hurt me, I will find the oldest doc to do them, like someone with arthritis or like my old doc, whos used to doingthem. Actually my vet gives them alot to horses and other animals and is really good, but they aren't allow to do me!
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


lizzy123
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted 12/1/2008 5:51 AM (GMT -7)   
hi ive had this for some years hip pain at night and could not walk far ive had xrays and mri scan. been seen by neurologist and the rheumatologist and no one had a answer for this pain.it got so painful i hated going out as i knew i would not be able to walk. after a lot of visits to my doctor he then sent me to the pain clinic who were great im now taking a high dose of gabapentin and amitriptyline and i must say i can now walk and most of all that pain is not there at night when im trying to sleep. i do hope this will help someone because we have to live with lupus but no one should have to live in pain. lizzy
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