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KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/22/2008 8:55 AM (GMT -7)   
Hello:
 
I have suffered from fibro (I think) for over 10 years.  Well, recently I was hospitalized for 3 days because of dizziness, balance/walking problems and general pain in joints and muscles ( a lot of pain).  I saw several docs, ENT, NEURO AND RHEUMY while I was there.  I had CT and MRI of the brain/spine/back (all neg).  I also have a blood work up.  Released with Cymbalta and Motrin rx. 
 
My Rheumy told me that my ANA was borderline positve - but she doesn't think I have lupus or RA--??? She think it is more fibro.  BUT I DON'T KNOW WHAT TO THINK :+(
 
My major FLARE symptoms are:
 
Muscle pain-all over- sharp, throbbing or burning feelings or soreness
Fatigue
Leg weakness/numbness (had emg-negative)
Balance coordination (holding on to walls to walk)
Muscle twitches/jerking (for years)
Trouble swallowing- soreness/weak feeling in throat - no choking (barium swallow and scope perfomed) negative
Freguent urination
Mild headaches
Ear pain and sometimes eye pain (light blurriness)
Tongue pain (sometime)
Memory fog- forget what I'm about to say for a couple mins
Sleep disturbances: not enough rest : sleep apnea (maybe)
 
**Usually flare up when it rains/snows**  about 8 months out the year I feel okay- until a flare hits.  Summertime I feel like superwoman-LOL
 
SOOO my question is do people with Lyme or Fibro have borderline positive ANA results?

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/22/2008 9:41 AM (GMT -7)   
Hi there,
 
I have lupus and fibro.  Gosh, all of your symptoms could be lupus, fibro, or both.... I have a heck of a time knowing which one is flaring for me too.
 
The only way I know what end is up, is when I get my blood work done.  If all the blood work comes back normal, then I know it's my Fibro flaring.  There won't be anything wrong with my CBC, liver enzymes, urine, sed rate, etc. 
 
What stands out for me when I read over your symptoms is the muscle pain you have.  That is definitely fibro.  In lupus, it's 100% in our joints.  The bone.  Lupus arthritis is common.  But in Fibro, it's the muscle, ligament and tendons that have the pain.  No joint or bone involvement.
 
I had a recent hospital stay two weeks ago.  I had a hysterectomy and was in the hospital for 4 days.  I had horrible dizziness, coordination problems, leg weakness, etc.  I was in a horrible fibro flare.  What is also standing out for me in your symptom list is the frequent urination.  Fibro will cause irritable bladder syndrome.  It'll feel like a bladder infection for some people, and most commonly, the need to urinate frequently becomes a problem!!  I get that too.
 
I'd say, if your blood work came back normal (with the exception of the borderline + ANA), it's probably your Fibro.  A large percentage of the general population will have a borderline + ANA and never have any other symptoms that might be lupus or any other autoimmune disorder.  If you had no other positive lupus or RA blood work come back, rest assured, it's your Fibro.
 
Hope this helps,
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/22/2008 9:42 AM (GMT -7)   
KEO8 I really dont have an answer for you, sorry. I just wanted to say; i'm sorry you are going through this rough and frustrating time! I've often heard people in this forum say focus on getting treatment for your symptoms, more than getting a diagnosis. Although I know that is easier said than done! Someone with more wisdom than I will be along with some advice! There are some really smart, kind & helpful people in this forum. Hope you get some answers soon! Judy
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