Would you start prednisone when you are under lots of stress?

Do you start pred taper when under lots of stress?
0
No, try to wait till things calm down some - 0.0%
0
No, get through things where the "appearance of sanity" is critical - 0.0%
0
Maybe, if health bad - 0.0%
5
Yes, health reasons are more important - 62.5%
1
Yes, may improve stress - 12.5%
2
Not sure - 25.0%

 
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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/23/2008 8:57 PM (GMT -7)   
I was wondering if you would start pred when you were under a lot lot of stress, like hospitalized kids and lots of bureaucratic tightrope walking, belt-tightening, and too much you HAVE to do
 
Usually, if I have alot to do I would take it, butI'm having so much anxiety, I'm afraid that the steriods will make me worse emotionally. I'm having a mild flare now, but was given a dosepack for my hip becase there was confusion about refilling my pain med, but then they refilled it anyway. They said I could go ahead and take the dosepack, but I could get by with pain med and temp increase in klonopin (which is the only thing right now that is chilling me out).
 
To top it off, the isoniazid stimulates the adrenals. So that figures in too.
 
If there was less going on in my life I would feel better about trying it, but with my pituitary problems, perhaps it is just what I need to calm me down.
 
Any ideas? I just can't afford to appear nutty on steroids right now and with the Isoniazd, I don't know how I will react to them.
 
Any advice, rule of thumb, personal experence would be greatly appreciated.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 11/23/2008 9:23 PM (GMT -7)   
Marji,

Not everyone gets crazy when on prednisone. I've been on it for several years and even when I was on 60mg a day, my mood has remained mellow and constant.
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 11/23/2008 9:44 PM (GMT -7)   
Prednisone give me such improvement in pain, stiffness, mental clarity, and with other symptoms that I almost always bump it up a little bit when I notice my stress increasing...my personal opinion is that you'll do better taking it.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/23/2008 10:28 PM (GMT -7)   
I agree.  It's better that you nip this flare in the bud.  Just imagine how disturbed your moods would be if you didn't start taking it, and you flared up so bad you couldn't function..... YIKES. 
 
I think you'll do just fine Marji.  You won't know unless you try it, and if it works out well, you'll sure be glad you gave it a go. 
 
Hope this helps sweetie!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/23/2008 10:37 PM (GMT -7)   
Hi Marji, Ginny just said what I was going to say lol. If you have a flare yes the pain meds might help but they won't help the inflmation. Yes you may get a slight case of the willies. I know If I take a large does I become Norman Bates. Only you know the fly he is looking at at the end where he says see I won't even hurt a fly. Girlfriend I would pounce on the fly and pull it's wings off lol. But knowning the it's the meds helps some. I'm sorry your life is going rough right now. I hope it gets bettersoon. If you decide to take the pred you can always come in here set your soap box in the middle of the group and jump up! We'll listen. That's what we're here for.
love ya
carol
Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 11/25/2008 7:26 AM (GMT -7)   
Yes - and I avoid pred whenever possible. But, I always feel so much better physically when I take it. Stress is such a killer. Just keep reminding yourself that you are on the pred and take a couple deep breaths before talking (screaming?).
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac, Ambien CR.
Daily Supplements: Multi-vitamin, Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/25/2008 8:14 AM (GMT -7)   
Thanks to you all. I'm finally starting to drop weight on the isoniazid and not really interested in food as much (except sweets), and this is OFF prednisone. But listening to what you guys said and remembering what I went through on interferon, which is an Immune system booster which made me nuts having AI disease, I remembered that the main feature was this anxiety. And it got really bad.

My liver enzymes are starting to climb a little more, not that bad though, but the honeymoon is over. I have four refills left of isoniazid and Ithink I'll make it.

Some of what drove me nuts on Interferon were high TPOs (like hashi s enceph), liver inflammation causing enceph, and endo total malfunction. Unfortunately, I was never offered steroids. But now, from experience, I know that the steroids help the liver inflammation, and the high TPOs, and are a big component to my endo malfunction.

My face is total red and my heart feels like its going to jump from my chest and my legis swollen. Time for steroids.

I started the pack now. I'm just so scared being on the isoniazid, but feel that this may be the thing tha helps. My body is fighting infection so so hard right now, fighting something. I think I an limp through four months if I can just get a break and like you say, nip this in the bud.

Thank you so much for informing me and also reminding me of what a bad flare is like. I haven't had this feeling this bad for a long time thank God and you get so caught up in it. Now IM" so anxious, I'm scared to even take what the doc gave me.

I'm going to cut back on the B6 maybe if the steroids don't seem to help, and go back on the 50s. A 100 once a day isn't so much, but the other post got me thinking. It's probably just the isoniazid, which causes nervous system damage. Some people lik this feeling. I do not.

Thank you and God bless you and I'm off to spend my last bit of credit to get my son some epilspy med--he was hit in the head with a hammer and his backpack stolen with all his epilepsy meds in it--and then he started hearing voices. Now he is in a hospital and on some pretty heavy meds and they are screaming for me to come up with money and medicine I just don't have. I have to drive there today and give smoe medicine. I'm afraid to tell my dad how in debt I am to him because of this. He would freak out. First my radiator broke, 500bucks, and now this whole mess, running into hundreds. I just can't seem to catch up.

I'm sorry to unload. I didnt mean to. But this is likely why my world is exploding right now. After today, I can relax some. I can only do the best I can. Thanks to you all again and I didn't even realize Thanksgiving was this week, hope you enjoy it. My son will not be with us wich makes me sad (he is 20 though), but it also takes the stress off my bf and me to make a big mess and cook all day.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/25/2008 11:42 AM (GMT -7)   
Thank you Thank you Thank you Thank you Thank you!!!! I feel so so much better, more relaxed. This is just what I needed. You guys always know! I was really caught up in it. Thank you so much. I can think now. Much love to you all.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/30/2008 2:26 AM (GMT -7)   

Hey  Cured4real,

I don't wish to pry into your personal life, but I think that your son may be able to get Medicaid.  I do not know how it is where you live, but it seems that children here can recieve medicaid up to age 21.  It is one of the ideas stemming from the "no child left behind" idea.

If he cannot be counted as a child, than he could be counted as a diabled adult, and especially if he is in the hospital.  Your income would not be counted in this particular way, if he was counted as an adult.  If he was approved for medicaid, even just for his hospital stay, could be a relief.

I know how you feel about adding even one more burden that you carry.  But there may be some assistance here for you.  Different states choose the medicaid programs they wish to purchase, so each state might be different.  IN NC the medicaid program here can allow you to meet a deductible, due to income.  and the deductible doesn't have to be paid before you get your medicaid card.  all you need is the medical bills to lower your deductible and get your card.  In SC medicaid recipients cannot have a deductible.  but something may be able to help you with this, if your state can help you to get assistance.

I hope something good will bring your way to relieve some of these burden some.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

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