In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
I don't have Lupus but I post on the arthritis board and since discontinuing my plaquenil, I've started having these small bump like bites on my back area, between my shoulder blades and they will just appear for no reason and like you I try the benadryl type creams to prevent the itching and it helps a bit. I haven't mentioned it to my rheumy since I'm not sure what they really are and they don't last more than a couple of hours but they are actual bumps and not really hives? I just had my ANA tested and it came back normal so I know it can't be anything too serious, I just wish I knew why all of sudden they crop up the way they do even if I'm just standing and cooking dinner? Does anyone else get these? I take Enbrel and MTX, maybe the MTX? does anyone take this? I'm not sure if it is autoimmune in nature but then my ANA was normal. I saw the post and thought gosh I get those, maybe somebody has an idea? They can get pretty bothersome at times with the itchiness.
Thank you all for your suggestions and input. It really helps to hear from people who share this disease. So many people really don't understand Lupus and it's not an easy disease to explain since it has so many variations. Today I have started on a 3 week regimen of Prednisone, starting at 40 mg . It's been a while since I've taken that much and it's making me kind of spacey today, plus I'm going out of town to my daughter's for T'giving so that's creating some stress ! Anyway, we'll see if this helps w/ the horrible itchy legs (and backs of my arms). Re: Rosacea. I was diagnosed by a Dermatologist 5 or 6 yrs. ago for Rosacea and took antibiot. for awhile and use Metro Gel. She was convinced it wasn't a Lupus rash, although I get that too when I'm flaring. Recently a different Derm. also dx/ed Rosacea. Ladies, I'm falling apart ! No, really, I've been very fortunate. I'm just joking. And, I have read that people w/ Lupus sometimes develop Rosacea (altho' to me that is a very minor thing). I always wear a hat and long sleeves. Forgot to mention - does anyone out there have migraine aura (the bright lite, zig zag visual) ? I get that occasionally and read some articles about it recently. If this sounds disjointed, it's because I'm feeling a bit disjointed this afternoon ! Happy Thanksgiving , everyone, and I hope you're all feeling well today.
I would definitely eliminate scabies as the result. I have had scabies and it is mostly on the stomach, and there is a lotion that you can use to eliminate scabies quickly.
with the bites or rash showing up while you are standing up cooking or whatever, it would seem to be something that the doctor may have not seen this before, and you may be their guinea pig .
I do have itchy legs just above my ankles, but the rash appears and goes away quickly.
hopefully the doctor can find what it is that is affecting you in this way.
I can hardly believe it myself when I write that I am now seventy years old , just this last Sept. Some days I feel my age and some days I don't ! One thing I've learned, though, is to enjoy the simple pleasures that we all tend to take for granted.
When I was diagnosed w/ SLE in 1980 and found out about the disease, I had no idea that I would live this long ! Barbara Lee, my "bites" or what looked like bites and the itching and rash sounds similar to your's. In fact, I wondered about Chicken Pox but knew it couldn't be that because it was primarily on my legs. It itched like Poison Ivy which I've had quite a few times but I knew it wasn't that. The Pred. has certainly done the trick, though. And, like many of you - I most always have the red cheeks (malar rash) and especially if I'm not feeling well or very stressed. Am very sensitive to light, incl. fluorescent lights. Thanks for the welcome, and good wishes to all ! .........Nan