itching rash and lupus

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caring
Regular Member


Date Joined May 2007
Total Posts : 26
   Posted 11/24/2008 3:04 PM (GMT -7)   
For the past six weeks, I've had what appear to be tiny bites on my legs which itch badly at times.  I've had SLE for thirty years and have always been susceptible to poison ivy and react badly to mosquito bites.  My doctor is somewhat puzzled and thinks it looks like atypical scabies but it doesn't fit the guide lines for that.  I've been taking Benadryl which helps. Now he has prescribed a 3 week regimen of Prednisone. I've taken Prednisone many times , but don't like to take it unless necessary. Does anyone else react excessively to bug bites and / or  poison ivy ? I also have rosacea but never discoid lupus. My lupus is central nervous system but has been fairly under control.  Thanks for any input.  

AlwaysRosie
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   Posted 11/24/2008 6:31 PM (GMT -7)   
Ummmmm it always sound suspicious of allergy or lupus or other ill when it is BOTH legs and they look similarly affected. Poison ivy or scabies might find their way to both, but they wouldn't likely be really similar.

"If" this is part of a Lupus flare . . . might the prednisone attack it? You are like me, in that I hate to take any med unless I really need to. . . how are you feeling aside from the rash issue?

Hopefully some of the others will have some ideas.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
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   Posted 11/24/2008 7:00 PM (GMT -7)   
Gosh, I wish I had some insight for you too.  I don't.  I also have some strange rash things on my face that my rheumy can't diagnose. 
 
The fact that they're on both your legs is interesting.  I agree Rosie.  Sounds more systemic than bug bites.  Are the bites on the same parts of both legs?
 
I hope you get some answers,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
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   Posted 11/24/2008 7:40 PM (GMT -7)   
Also . . .was the rosacea dx'd by a derm? A rheumy would also be good at dxing that . . but other doctors are not necessarily correct. They often confuse a lupus rash with rosacea. Just a thought.

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
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Date Joined May 2005
Total Posts : 7018
   Posted 11/24/2008 9:51 PM (GMT -7)   
Even the dermos sometimes have trouble determining rosacea vs. lupus rash. ..Mine has definitely been wrong, and she still goes back and forth on it if she looks at me before she looks at the history.

I've been told they must take a biopsy about the size of a pencil eraser to know for absolute certainty....and most of us don't want to risk a scar that size on the face.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
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   Posted 11/25/2008 7:05 AM (GMT -7)   
Thanks Lynnwood. I am SO surprised. I know I've wondered about my own face rash. But was told it was lupus (but then if I don't have lupus????) Anyway . . . I ended up on a long antibiotic rx for a sinus infection that was the exact med they use for rosascea and it didn't affect it at all. So then, I was sure it wasn't rosascea.

So many confusing issues.

Blesings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 11/25/2008 12:33 PM (GMT -7)   

Hi there,

I don't have Lupus but I post on the arthritis board and since discontinuing my plaquenil, I've started having these small bump like bites on my back area, between my shoulder blades and they will just appear for no reason and like you I try the benadryl type creams to prevent the itching and it helps a bit.  I haven't mentioned it to my rheumy since I'm not sure what they really are and they don't last more than a couple of hours but they are actual bumps and not really hives?  I just had my ANA tested and it came back normal so I know it can't be anything too serious, I just wish I knew why all of sudden they crop up the way they do even if I'm just standing and cooking dinner?  Does anyone else get these? I take Enbrel and MTX, maybe the MTX? does anyone take this?  I'm not sure if it is autoimmune in nature but then my ANA was normal.  I saw the post and thought gosh I get those, maybe somebody has an idea? They can get pretty bothersome at times with the itchiness.


caring
Regular Member


Date Joined May 2007
Total Posts : 26
   Posted 11/25/2008 3:04 PM (GMT -7)   

Thank you all for your suggestions and input.  It really helps to hear from people who share this disease. So many people really don't understand Lupus and it's not an easy disease to explain since it has so many variations.  Today I have started on a 3 week regimen of Prednisone, starting at 40 mg .  It's been a while since I've taken that much and it's making me kind of spacey today, plus I'm going out of town to my daughter's for T'giving so that's creating some stress !  Anyway, we'll see if this helps w/ the horrible itchy legs (and backs of my arms). Re: Rosacea.  I was diagnosed by a Dermatologist 5 or 6 yrs. ago for Rosacea and took antibiot. for awhile and use Metro Gel. She was convinced it wasn't a Lupus rash, although I get that too when I'm flaring.  Recently a different Derm. also dx/ed Rosacea. Ladies, I'm falling apart !  No, really, I've been very fortunate.  I'm just joking.  And, I have read that people w/ Lupus sometimes develop Rosacea (altho' to me that is a very minor thing).  I always wear a hat and long sleeves. Forgot to mention - does anyone out there have migraine aura (the bright lite, zig zag visual) ?  I get that occasionally and read some articles about it recently.  If this sounds disjointed, it's because I'm feeling a bit disjointed this afternoon !  Happy Thanksgiving , everyone, and I hope you're all feeling well today.

Nan


Serina
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Date Joined Aug 2008
Total Posts : 431
   Posted 11/28/2008 9:32 AM (GMT -7)   

I would definitely eliminate scabies as the result.  I have had scabies and it is mostly on the stomach, and there is a lotion that you can use to eliminate scabies quickly.

with the bites or rash showing up while you are standing up cooking or whatever, it would seem to be something that the doctor may have not seen this before, and you may be their guinea pig yeah .

I do have itchy legs just above my ankles, but the rash appears and goes away quickly.

hopefully the doctor can find what it is that is affecting you in this way.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


caring
Regular Member


Date Joined May 2007
Total Posts : 26
   Posted 11/29/2008 4:08 PM (GMT -7)   
thanks, all ! After just five days of 40 mg. Prednisone, my itching has almost completely stopped and the rash is drying / clearing up. I think my body just extremely overreacts to things like insect bites, poison ivy, allergies because of the autoimmune response. After reading some of your posts, I feel so very fortunate to have survived this long with very few life threatening flares. My worst one was when I was forty, & first diagnosed with Lupus Cerebritis and almost died. I had a very good doctor who saved my life. I am seventy years old now and looking forward to more years of enjoying my life. My thoughts go out to all of you.

Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/29/2008 4:17 PM (GMT -7)   
I am seventy years old now and looking forward to more years of enjoying my life.
 
Good for you.  Hmmm maybe we could have a lupus elderly position.  Only kidding.  I would not ever try to exclude anyone for any reason.
 
you are our hope in many ways.  you have lupus and you are seventy.  I have assumed many times that it would be lupus symptoms that took me out of this world.  but maybe not.  and even if they do, it would be misdianosed;)  House tells us the truth maybe about Lupus, in a good way.
 
Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


Barbara Lee
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Date Joined Sep 2003
Total Posts : 2889
   Posted 11/29/2008 7:37 PM (GMT -7)   
Hi Caring:

Sounds like the prednisone is just what you needed. I just wanted to welcome you to the forum. I get spots on me that look like chicken pox. The itch really bad and usually turn into huge sores.

I've always got red cheeks and it's the typical butterfly rash. I hope that you don't have to deal with this again. Looking forward to hearing more from you.

Hugs,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


caring
Regular Member


Date Joined May 2007
Total Posts : 26
   Posted 12/1/2008 7:00 PM (GMT -7)   

I can hardly believe it myself when I write that I am now seventy years old , just this last Sept. Some days I feel my age and some days I don't !  One thing I've learned, though, is to enjoy the simple pleasures that we all tend to take for granted. 

When I was diagnosed w/ SLE in 1980 and found out about the disease, I had no idea that I would live this long !  Barbara Lee, my "bites" or what looked like bites and the itching and rash sounds similar to your's.  In fact, I wondered about Chicken Pox but knew it couldn't be that because it was primarily on my legs.  It itched like Poison Ivy which I've had quite a few times but I knew it wasn't that.  The Pred. has certainly done the trick, though.  And, like many of you - I most always have the red cheeks (malar rash) and especially if I'm not feeling well or very stressed.  Am very sensitive to light, incl. fluorescent lights.  Thanks for the welcome, and good wishes to all   ! .........Nan

 

 


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted Yesterday 11:16 AM (GMT -7)   
Welcome to the forum. I just wanted to chime in. I have always had severe reactions to poison ivy (requiring series of shots) and severe reactions/allergies to insect bites, grass etc. My brother has Crohns and he was the same way. My doc said it's due to an overactive immune system. It is so hard to distinguish what's what, isn't it? I'm glad yours is clearing up! Judy

Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/2/2009 2:31 PM (GMT -7)   
Hey again Caring,
 
I need to be better at replying.  If I get depressed, or really badly sick I tend to withdraw.  Hopefully I will be better tomorrow than I have been yesterday.
 
Seventy years old.  well I am 63, so just a little ways I will catch up to you;)
 
I am glad that you found one of us at least to have the same rash that you.
 
I am very sensitive to light myself.  I can't shop for groceries in some wal-mart stores.  The light has the same effect on me as if I get out in the sun too much.
 
Glad that you are here with us and hope your day will be good to you
Hester
Lupus diagnosed 1996, Fibromyalgia diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008, Stroke 11-4-08
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

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