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lilmiss_33
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/24/2008 4:06 PM (GMT -7)   
Hi everyone, I am new to the forum but not new to lupus.  I was pregnant in 1995 and unfortunately lost my daughter to pre eclampsia.  She was tool tiny to save. They took her at 24 weeks.  Well I got acute kidney failure from it.  It has been a long road but finally my creatnine is a steady 1.0 .. I still have protein in my urine.  Found out two days ago I am pregnant.  I just wanted some of you with lupus nephritis to share your story of pregnancy with me.  Also, does anyone know of natual remedies that assist in protecting the kidneys?  Thank you.  Look forward to meeting with everyone!

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/24/2008 6:26 PM (GMT -7)   
Welcome Lilmiss,

Sorry about your baby . . . so sad. I don't know much about lupus issues and pregnancy . . . I'd had my kids (4) before I realized. I've never had organ involvement though. But there are some here will tell you all about their pregnancies and what meds they were able to take.

I just wanted to welcome you. . . and offer one little prayer for your safety and the health of your baby!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


lilmiss_33
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/24/2008 6:28 PM (GMT -7)   
Thank you :) And prayers always appreciated! :)

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/24/2008 6:32 PM (GMT -7)   
Your welcome! and I hope you get some other responses soon.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/24/2008 6:57 PM (GMT -7)   
Hi Lilmiss,
 
I don't have any advice to offer you in regards to your questions.  I don't have any kids, never will! I also don't have kidney involvement.  I'm a HUGE help aren't I, LOL. turn
 
Just wanted to extend my hello and welcome to you!  I'm sure you'll get a good response to your questions.
 
Welcome!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/25/2008 3:07 PM (GMT -7)   
Hi Lilmiss-
Congrats on your pregnancy! Im not sure of any natural remedies but I did want to mention that following a renal diet (low potassium, moderate protein, etc) would be a good idea. I wasnt sure if you were doing so already. Also, you should check your bp every day. HTN affects the kidneys, too. You can also buy strips at the pharmacy to check for proteinuria, too. All good things (im sure you know) to keep tabs on when preggers. They check when you go to the office but it might give you piece of mind to check at home. Be careful with herbal remedies because they can interact with meds and may cause harm to the fetus. So make sure they are ok with pregnancy. So many people forget to check those things because you can buy herbs OTC.
Good luck!
Melissa
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram


lilmiss_33
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/26/2008 1:52 PM (GMT -7)   
I am not on a low potassium or protein diet.. since my kidney function was 98%.. but is there a website or book you can point me to so I can be more informed on how to safely do that?  Thank you so much for all the advice, SNICKERDOODLE- have you had a successful pregnancy with lupus nephritis?

Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/27/2008 11:24 PM (GMT -7)   
Lilmiss
I dont have any kids (yet). Im 26 and in nursing school (LPN 1 more year til RN). Ive also worked at the local hospital for 5 years, and kidney patients are common on my floor. I have protein in my urine on and off but my BUN and creatinine are fine. I only suggested the renal diet because of the pregnancy. Your creatinine is at a great number, but pregnancy puts strain even on healthy kidneys. You have extra blood flow and toxins to filter from the baby so your kidneys work alot harder. If you type in renal diet tons of stuff come up. I would check "renal diet with pregnancy" because the baby needs the protein to form properly and you dont want to take out too much. Maybe you could see a dietician/nutritionist? Most hospitals have them. They should be able to give you guidelines to follow if you explain your situation. Maybe your rhemie or kidney doc has some advice? Your OB probably has no clue! I wish I had more help for you!
Melissa
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/29/2008 4:55 PM (GMT -7)   

I have no answers either for you either Lilmiss.  But I am sure you will get the answers soon that you need.  I too just wanted you to welcome you to the forum too, and let you know that it is a good place to be.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/29/2008 7:19 PM (GMT -7)   
Hi Lilmiss:

I don't have kidney involvement with my lupus, and I wasn't officially dx'd with lupus when I had my daughter. I did have a kidney infection when I was about 14 weeks along, and spent a few days in the hospital because of it.

Now looking back it's possible that my lupus was the cause of the infection. I wish I could steer you in a specific direction but I can't. I just wanted to welcome you and say congrats on your pregnancy. Looking forward to hearing updates on your journey to having your baby.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/1/2008 10:30 AM (GMT -7)   
I don't have kidney involvement but I had a baby 6 months ago. I developed severe edema and blood pressure problems but never progressed to pre-eclampsia thanks to careful care and bedrest. A baby asprin every day can help prevent pre-eclampsia in pregnant women with lupus according to my high risk specialist and rheumy. It is safe for the baby too. make sure your meds are okay for the baby with a reproductive geneticist and stay on what they say you can and switch to other meds for stuff they say you can't. I would see a kidney specialist for a consult if you don't have one and see yours if you have one so they can help you decide how to try and prevent a repeat of last time. I am so sorry you lost your daughter. I lost 2 children after they were born myself. My son is 6 1/2 months old and doing beautifully and despite a flare I am doing okay myself- it was my best pregnancy ever but I was in remission when I got pregnant and for most of the pregnancy.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept

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