Went to MY doctor..

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KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/25/2008 3:32 PM (GMT -7)   
Hi everyone:
 
I was in the hospital a week ago..discharge with no dx.   Saw a rheumy while I was there she told me test will not be in until I was discharge, but all other blood work look fine.
 
Soo..My neuro told me that they were back.. ANA POSITIVE. Sooo. I called the rheumy she said yes they were but borderline postive...and she doesn't think I have lupus..more fibro.
 
Okay...saw MY regular doctor today, she told me that my ANA is 1:640 AND my anti-dsDNA is negative and sedrate is 7.   I was dx with fibro about 7 years ago.  So I excepted that and have lived miserly with the pain..all of it..twitches, leg weakness at times, pins and needles feelings,dizziness, balance, pain, weird sensations ,sleep apnea, etc... Even had another child.  My Doctor is good..   I have had 3 MRIs and cat scans, I have seen over 30 docs in the past 7 years (espically neuros) ... including last week. 
 
Any idea what is going on with me and my ANA?  I want to cry.. I'm sooo frustrated. 

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/25/2008 5:57 PM (GMT -7)   
Hi KE08,
 
I can completely understand why you're upset and frustrated over all this.  Let's see how we can help you...
 
Okay, your ANA is NOT border line.  That is a strong positive result.  I was diagnosed with lupus with that same ANA titre.  Borderline is 1:20, 1:80.  On the other hand.... Lots of people have a positive ANA of that titre or higher, and don't have autoimmune problems of any kind.  So the general population of healthy people will have a strong positive ANA.
 
Your sed rate is perfectly normal.  Normal is 0-20.  If you were having inflammatory issues that lupus would create, that number would be at least 40 and probably closer to 100+. Fibro isn't inflammatory and a sed rate will be normal.  
 
The symptoms you mentioned in your post are all very strong Fibro symptoms. Someone with Fibro can have a positive ANA.  Most will have a normal sed rate, and other normal test results.  Did you take a look at the link I sent you in another posting regarding the 11 criteria for lupus? Unless you have at least 4 of them, you won't get a lupus diagnosis. 
 
So to summarize, your ANA is not borderline.  It's a strong positive, but lots of people who don't have any autoimmune diseases will have that kind of ANA titre.  Just because it's a strong positive, doesn't mean you have lupus or anything else autoimmune.  It's just a place where doctors can start to look at your symptoms,etc, and put together a plan or a diagnosis.  
 
I hope this helps.  I know it's frustrating.  I think treating your Fibro is so important.  It's not easy to do, but believe me, having Fibro is much better than having lupus.  I'd be feeling very relieved to know that your blood work looks fine and you don't have any inflammation going on anywhere.  That is so fortunate.
 
Ginny 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/25/2008 6:12 PM (GMT -7)   
First of all let me thank you for taking the time to even reply.  I post and it get ignored.  So I figured people are like whatever.  I hope your right. Rheumy dosn't think lupus. My dsDNA(?) was negative..some other test for lupus - I think. Ever heard of that test?  I have been off work for 3 weeks...dizzy, achey, off balance, pain inside and out.. my muscles twiches..joints hurt.. feel off balance..  She is testing me for lyme too, just started with this doctor she appears to care.    The sleep apnea is freaking me out too.. I'm not over weight or anything..it started with my flares.  Summer time I feel sooo good.. working in the garden or laying in the sun..winter.. my body hates me!
 
Again you are soooo, kind to reply (((hugs))) you will be blessed for all you do!!!!
 
 

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 11/25/2008 8:06 PM (GMT -7)   
I hope your doctor will have you take a sleep study. Sleep apnea, left untreated, can cause many of the symptoms you have. Once treated, you'll feel like a new person. It's not the answer to everything, but I believe we should treat everything that we can while trying to get better and especially while in dx limbo. Sorry you're having so much trouble.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 11/25/2008 8:58 PM (GMT -7)   
I'm sorry you posted and felt your postings were ignored. This lupus crowd at Healing Well is very active and you'll soon be overwhelmed by the responses and the friends you make here.

I see you made other posts to the Lyme forum - I don't visit that one so can't say how the response rate over there is.

Welcome!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/28/2008 9:14 AM (GMT -7)   

Keo8,

I may have missed your post myself.  Have not been able to be on the computer for awhile.  I can sit up, or stand up, for an hour and half, or so, and become so much in pain that I cannot do anything but lay down flat.  today I am using my time to respond to all of you here.  for selfish reasons maybe.  I am helped by people here.  so my time of an hour or two hours are going to be used here, and then I will lay down;)

I truly did not mean to ignore your post here.  Just was not able to be on the computer.

I can't imagine laying in the sun......ever.  I avoid the sun, as much as possible, especially in the summer time.  I have my own theory on that.  It seems that the summer sun is worse than the winter sun.  It is closer to us in the summer, and maybe this is why it makes it harder on me and some others to be in the sun.

I used to cut my grass by a push mower in the summer.  I always had my house clean, and then cut the grass the next day.  i knew when I was cutting the grass that it would make me sick,  for two or three days.  It would feel like I had the flu.  Walking in a flea market for a couple of hours on  Sunday, would make me the same way.  It tends to determine how much of the sun I am exposed to, that reveals how sick I will be.

I am apologize for being unable to respond to your post.

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/28/2008 9:26 AM (GMT -7)   
Thanks Serina for all of your replies. I'M sorry to hear your going thru so much pain. I really hope you feel better soon.

((hugs))

Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/28/2008 11:24 AM (GMT -7)   

Hey KEO8,

thanks for your input.  Some of the pain must have been caused by stress.  yesterday was stressful.  a lot of family politics to deal with.  and we all know that stress can cause a flare.  but the pain is much less intense than it was yesterday.  still doing my five minutes of work, to my 15 minutes of rest. tongue

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

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