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Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 11/25/2008 7:55 PM (GMT -6)   
We have a new friend, Barbara Jean, who posted here earlier, and whose post was deleted, probably because she shared her website. I went onto her site and read it and was so impressed. She's doing things, in my opinion, the right way, and uses, in addition to her doctors and meds, holistic healing which includes exercise, meditation, nutrition, and lots of other ways to help her body and mind heal. She's had lupus for 35 years and has lots of helpful tips. At least I found it very helpful.

I hope she comes back and joins our group.


(post edited to remove link pending permission from forum administrator - if Barbara Jean will email

Post Edited By Moderator (AlwaysRosie) : 11/26/2008 3:16:13 PM (GMT-7)

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 11/25/2008 8:03 PM (GMT -6)   
Hi Pat,
It was probably deleted because it looks like a commercial website that promotes specific things.  Those sites aren't allowed to have links on the threads.  She needs to run it past Peter (Admin) first and let him look at it before it can be posted. 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 11/25/2008 10:01 PM (GMT -6)   
I'll let her know that. It's not a commercial website and she doesn't promote anything. It's simply her story and her belief in holistic healing combined with healing from more traditional methods, such as doctors and meds. I tend to be skeptical myself but couldn't find anything in the site that I didn't love. There is no sales pitch, and she is a firm believer in getting help from your rheumy. I don't know her and have no vested interest in this. It's something I happen to believe in.
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Jun 2008
Total Posts : 669
   Posted 11/25/2008 11:31 PM (GMT -6)   

Just my 2 cents - but I agree with Patty.  I read through most of the website and found it to be really helpful and without any kind of sales pitch.  I think it should be seen by others.


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing

Forum Moderator

Date Joined May 2005
Total Posts : 6946
   Posted 11/26/2008 12:27 AM (GMT -6)   
Hey guys -

The forum rules are not up for debate. Here is the rule that applies.

4. No advertising or links to advertising or "Spam" is permitted (including signatures).

* Advertising or Spam is defined as posting a link for the purpose of selling, soliciting or promoting by someone that has ownership or other "vested interest" to the web site involved, including efforts to promote other online forums or web sites by web site owners.
* If you are a web site owner and have a link that fits into this category that you want to share, please submit it to our resource directory and we will review your submission.

* Posts and links about fundraising (including nonprofit fundraisers) are NOT permitted.
* Only links to personal home pages are allowed in signatures and member profiles. Links must be appropriate and abide by rules #1-4 or they will be removed.
* Links to helpful web sites (commercial or otherwise) are allowed when they are posted by someone without any "vested interest" AND whose purpose is NOT to solicit, advertise, promote, fundraise, etc.

As this was posted by Pat, and not the web site owner, I think we'll let it stay, but normally I'd consider this a way to twist around the rules -- it really should have been passed by Peter by the original poster. Let's not do it this way again, okay? Thanks.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 11/26/2008 3:44 PM (GMT -6)   
Hello Patty, Barbara Jean, Ginny, Lucy and Lynnwood

I deleted the thread. I began editing and was going to leave a message to have her email Peter ( and then noticed that it was her first post.

I was very weary at the time (with all that is going on back in reality) and decided it was a "one-time poster" and decided not to waste my time explaining the rules etc.

I'm sorry if I misjudged. Barbara Jean, if you see this, I apologize for not explaining this in your topic. But you really do need to get permission from Peter to advertise your site here.

Thanks Lynnwood for posting the applicable rule.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Regular Member

Date Joined Jan 2007
Total Posts : 146
   Posted 11/27/2008 2:09 PM (GMT -6)   
I am so happy I got to read it before it was deleted I loved her site and so did the people on my other site I frequent for lupus when I posted the link there. Thanks Barbra Jean the site was a big hit.

MCTD had a high positive ANA of 1:2560 with high positive anti -rnp using antibiotic therapy and now pretty much better. With now a negative ANA and all labs no more RNP antibody or Pain

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