For those taking Neurontin....

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 11/26/2008 9:44 AM (GMT -7)   
Hey Donna (Butterflake)!  I noticed in your signature line that you're on Neurontin.  I tried taking two pills last week but had the WORST headache from them.  I'm taking this med for my Fibromyalgia pain.  Do you know if those headaches go away after being on the stuff for a bit?  I don't get the headaches until about 12 hours after I take it.  I wake up with them.  Horrible way to wake up.
 
Do you notice a good result from the medication? 
 
Thanks a bunch!!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 11/26/2008 5:29 PM (GMT -7)   
I have been taking Neurontin for almost 5 years for the pain, burning and numbness of neuropathy in my feet. I currently take 1700 mg total per day divided into three doses. I have never had a headache from Neurontin. However, when I first started taking it I noticed some dizziness. My doctor had me titrate the dose up very slowly to minimize the side effects. Wish i could offer you more insight into the headache issue.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 11/26/2008 8:15 PM (GMT -7)   
Thanks Ides, I appreciate your response.  I'm starting on 300mg just at night.  I did notice some mild dizziness with it when I'd get up to use the bathroom in the middle of the night. By morning, that was gone, but I had a dang old headache. 
 
I'll try it again tonight and see if I have another brain twister... Maybe it was just bad luck, and I was going to have a headache whether I took it or not!
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Butterflake
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Date Joined Jun 2006
Total Posts : 1548
   Posted 11/28/2008 9:31 AM (GMT -7)   
Hi Ginny. I've been taking neurontin for about 3 years and never had headaches from it. I've tried every non-narcotic pain med there is and I always go back to neurontin. I'm sure you know that pain relief is a personal thing. Neurontin works great for me, but may not for you. I take 600mg almost every night along with 200 mg of celebrex and usually remain pain free thru the night. I also take 200mg of celebrex every AM. If pain sets in, I take 1350mg of arthritis tylenol and then I will take more neurontin if needed. A few months ago I was in severe pain, tried narcotics (don't like them) and then started acupuncture. It's really a great pain reliever for me, but I still need celebrex twice daily and neurontin at night. The bottom line is if it doesn't work for you, keep trying other meds. I remember trying lyrica, mobic, tramadol, ultracet, fentanyl patches, darvocet and lots more. Eventually you'll find what works for you. Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien, flexeril, multi vit, C, flaxseed oil, acupuncture    Donna
 
 


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 11/28/2008 4:22 PM (GMT -7)   
Hey Donna and Ides,
 
I didn't have a headache!  I woke up with some dizziness that went away by 9am, but no headache this time.  And the pain relief was amazing.  I've actually gone 2 days now with very little Fibro pain, from just one 300mg pill!!  I'm sensitive to medication, but didn't know I'd react that strongly to it so fast.
 
I'm going to take another one tonight.  This stuff really does work!
 
Thanks for the encouragment!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 11/28/2008 4:42 PM (GMT -7)   
Hey Ginny, that's great! I hope it continues to work for you like it does for me. yeah   Love, Butterflake
Dx: SLE ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien, flexeril, multi vit, C, flaxseed oil, acupuncture    Donna
 
 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 11/28/2008 5:55 PM (GMT -7)   
Yipeee!!!!!! turn
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/28/2008 8:48 PM (GMT -7)   
Ginny,
I am really thankful that the neurontin is helping. I know relief for you is long over due! Bless ya, Judy

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/29/2008 10:14 AM (GMT -7)   
Thanks everyone!  Yep, it worked well last night too.  I woke up with no pain this morning.  I was feeling a lot of pain last night before bed.  I wish the dizziness would go away though.  I can't take it if I have to get up and leave the house or drive the next morning. I definitely can't take any of it during the day.
 
Does the dizziness go away after a while?
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 11/29/2008 9:27 PM (GMT -7)   
When I was first given Neurontin my doctor started me at 100 mg once a day for 3 days. He told me that the main complaint with Neurontin in the beginning of usage is dizziness. Most physicians titrate patients up to the dosage they wish them to have. In my case, I was to acheive a dosage of 400-600 mg three times a day. I was to stop at whatever dosage relieved my symtpoms. So this is what my doctor prescribed [in abgreviated form to see how it works]:
100 mg every evening before bed for 3 days
100 mg every evening before bed and 100 mg at midday for 3 days
100 mg every evening and 100 mg about 8AM and 2 PM for 3 days
ETC

I only had minimal dizziness doing it like this. In your case, if the doctor had given you 100 mg capsules and had you do 100 mg for 3 days, then 200 mg for 3 days and then your 300 mg dose, your dizziness might not have been so pronounced. You might want to give it a few more days and see if the dizziness subsides. If not, you might consider calling and asking for a lower dose to acclimate your body since it does seem to be helping with your pain. Of course, insurance and $$ are factors in this.

Another thing is to see if increasing your fluids when you wake in the AM helps. Try drinking an additional glass of water on top of your normal morning beverage(s). I have more trouble with dizziness if my fluid levels get low.

I hope this makes sense and is of some help to you.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/30/2008 10:20 AM (GMT -7)   
Ides, that's great advice, thank you!  I didn't take one last night. I'm finding that my symptoms are relieved for almost 48 hours with just one 300mg pill. Crazy.  And I have BAD Fibro pain.  I don't get it!! Hehe....
 
I will try to maintain taking it more frequently to get rid of the dizziness.
 
Thanks so much!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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