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Steph77
New Member


Date Joined Jun 2007
Total Posts : 13
   Posted 11/26/2008 8:03 PM (GMT -7)   
Anyone know anything about it? I went to a new Rheumy and he prescribed it to me. Anyone have any experience with it? As for the lupus anticoagulant and the cardiolipin antibodies... There will be no blood thinners for now and they will watch me.
Hashimoto's Thyroiditis, Pernicious Anemia, Undifferentiated Connective Tissue Disorder, reynoids. Monthly B-12 shots, Plaquenil prescribed, but haven't started on it yet. All diagnosis within 10 months. Positive ANA with a nucleolar pattern. Rheumatoid factor is sometimes positive and sometimes not.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/26/2008 8:13 PM (GMT -7)   
Hi Steph,
 
I don't know anything about Provigil except that it's the latest and greatest thing for those of us with all that sticky blood stuff!  I hope it works well for you.
 
Do you have to get your blood checked periodically?  Are there certain levels that your blood needs to be at to be theraputic?  I'm curious to know how this drug works.
 
For now, I'm on good old rat poison (warfarin). Hehe.....
 
Take it easy!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/26/2008 8:18 PM (GMT -7)   
Hi Steph. I've taken it before. I know a few other people here have too. I really liked it the first few days I took it. It was great I took the dogs for two 45 min walks each day and caught up on things like cleaning out the closets, organizing the basement, etc. But by the time it was time to go to sleep I couldnt fall asleep! So I would have to take a benadryl to fall asleep. After about a week I didnt notice a difference from when I wasnt taking it. A couple days after that I started getting a crash like 6-7 hours after taking it. If I take a second dose 6 hours later Im back to taking benadryl to sleep. So I take it every so often now. I work with a girl who takes it religiously and loves it. So hopefully it will work for you. check out this site too. http://www.askapatient.com/ its personal experiences on different drugs. I check it every time I get a new Rx.
Good luck!
Melissa
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram


Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/26/2008 8:29 PM (GMT -7)   
Just wanted to add its for fatigue. Im pretty sure it has nothing to do with your blood counts. They should check your PT/INR every couple months. Did you talk to your md about an 81mg aspirin every day? Maybe that would be enought for a while. Increased inflammation in your blood can cause clotting difficulties too. Its probably a good idea for everyone to ask thier md's who's not on something.
Melissa
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram


Steph77
New Member


Date Joined Jun 2007
Total Posts : 13
   Posted 11/26/2008 9:00 PM (GMT -7)   
The Provigil is for the extreme fatigue I have. I can't function properly or normally during the day. The doc said the baby aspirin is up to me. There really is no medical evidence of it helping with blood clotting issues, but it's something to think about. He actually said 1 aspirin a week or 1 every five days, because it stays in your blood stream.
Hashimoto's Thyroiditis, Pernicious Anemia, Undifferentiated Connective Tissue Disorder, reynoids. Monthly B-12 shots, Plaquenil prescribed, but haven't started on it yet. All diagnosis within 10 months. Positive ANA with a nucleolar pattern. Rheumatoid factor is sometimes positive and sometimes not. Cardiolipin antibodies. Positive Lupus Anticoagulant. Provigil.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/27/2008 9:47 AM (GMT -7)   
Oops!  I must be thinking of another med that starts with a "P" and is used as a blood thinner.  Hmmmmm.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/27/2008 12:17 PM (GMT -7)   

Hi, I take 200mg of provigil every morning. I noticed I'm not as hungry but I don't know if that has anything to do with it. As far as for my fatique sadly it doesn't do a dog gone thing. I could take it and fall asleep an hour later. My friend takes 100 mg. and she said when I started taking it I would probably get the shakes. So I broke it in half took 100 nohing happened took the other half nothing happened. So ever morning I take 200mg and guess what Nothing happens. I hope it helps you. let us know

hugs

carol

 


Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/29/2008 1:18 PM (GMT -7)   
I'm not familiar with provigil, I hope it helps. Ginny, are you thinking of plavix? Judy

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/29/2008 8:05 PM (GMT -7)   
I posted on provigil a few months ago. Day one, great! perfect! Beautiful day, like on steroids. Day two, okay, still beautiful, not as strong. Day three, beautiful, but not lasting as long. Day four. A little like taking nothing. Day five, tookit and fell into beautiful sleep all day. Day six, does nothing. Everyday after, did nothing.
 
Couldn't get medcare to pay for script without prior authorizaiton and it didn't seem worth it. Did get some burning in the kidneys toard the end few days, but I'm a mess with meds. Its a dopamnie reuptake inhibitor or something to do with dopamine. It might be a problem for people with some conditions that deal with dopamine. I do better on the epinephrine ones, but this is less hard on my liver. I think its a good option, but I just got a tolerance really fast to it.
 
Lots of people really love it and if it wasn't such a battle, I'd get it refilled. My boyfriend was put on it and he didn't notice a thing on the maximum dose ad just slept all day!  But then, he's impossible anyway!
 
 
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/1/2008 10:22 AM (GMT -7)   
I love provigil. It has given me a few hours ever day where I function almost like a human being instead of a zombie.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


SSDore9240
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 12/10/2008 8:09 PM (GMT -7)   
I was prescribed Provigil for the exhaustion as well.  My insurance will not cover it and I can not afford it.  With there being NO genaric, has anyone been prescribed something else, what were your results?

31 year old mom of 1: SLE, UCTD, FM, myelitis @ T-10, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, Costrocondritis(?), a bunch of other stuff I don't remember right now and even more labwork I dont understand! Patient at Johns Hopkins in Baltimore, MD.
 Plaquinil, Trazodone, Lidoderm, Neurontin, Flexeril, Percocet for now...

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