New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 11/27/2008 10:20 AM (GMT -7)   
Hi All, hope you're all doing well
 
Just a quick question, as some of you know, I'm on the "I have lupus/ I have lyme" fence but believe one causes the other, so am asking this as a lupus sufferer.

What if any kidney issues have you had with your lupus.
 
I started to pee blood 3 days ago, had some fever and back pain. Went to some ER Doc (who was more into his looks than my problem) who didn't really look at me, asked if maybe I was on my period (ugh) and then took some pee.
I'm waiting for the results. I don't think it's a bladder infections b/c I have had 3 before and with all 3 I had terrible burning when peeing and blood clotting.

This time, no burning and the pee has a stream of blood and no clots.
How exactly does lupus affect the kidneys
 
Any input would be great
 
Jen
The world breaks every one and afterward many are strong in the broken places


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/28/2008 8:09 AM (GMT -7)   

Hey Peacesoul,

I really do not have so answers to you in this post, except to say that red blood in urine sounds like dangersous to me, and would immediately seek medical advice.  It would scare me if I was in your place.

Others who are more informed than I am will surely respond to your post.

take care

Hester
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 11/28/2008 9:26 AM (GMT -7)   
Sorry, Jen, I don't have any great words of wisdom regarding the kidneys, but wanted to respond so you know you aren't alone. We do have several members with kidney issues who are usually around - I expect they'll have something to say after the weekend. Folks tend to get busy with other things during this US Holiday.

Until then, take care, and if you are still having obvious blood after several days (you already mentioned 3) it's probably a good idea to find a doctor - maybe a doc-in-a-box or quick clinic if you have one around, otherwise the ER.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 11/28/2008 9:37 AM (GMT -7)   

Hi Peace - I would seek some medical attn and testing.  Could just be a bladder infection - but frank blood in the urine is not something to ignore - even without other obvious symptoms.....especially w/ a dx of Lupus.  Take care and let us know...Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


curlyhair
Veteran Member


Date Joined Jan 2005
Total Posts : 659
   Posted 11/28/2008 10:06 AM (GMT -7)   

Hi Peace,

My kidney issues showed up as lots of fluid retention, large amounts of protein in my urine and some microscopic blood. I did not have a fever or any pain at all. Kidney involvement is painless so.... with your blood, fever, and pain I would guess it is some sort of kidney or bladder infection. I don't know, but I would definitely have a doctor check it out. Good luck,

Sandy


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus (SLE & Class V Lupus Nephritis) 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, amiloride, klor-con


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/28/2008 8:46 PM (GMT -7)   
Peaceful,
Sandy is exactly right. There is usually no pain at all associated with renal problems related to lupus. I just got over a ferocious UTI and it felt horrible! Usually protein is the first sign of lupus kidney, because it affects the glomeruli, the tiny filters in the kidneys. Are you noticing a frothy or bubbly look to your urine. That is a sign of protein. Also, edema in the ankles and around your eyes is a sign of spillin protein. Please let us know the outcome. Take care, Judy

Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 11/29/2008 9:05 AM (GMT -7)   

I didn't know that there is no pain when one has kidney problems due to Lupus.  this is a very good thing to know.

Thank you for sharing this

Hester


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 11/29/2008 9:07 AM (GMT -7)   
Hi All, and thanks so much for the input

The urine test came back with "No growth" so it's not an infection. I knew it wasn't, b/c I had no burning when peeing. The blood has stopped, my urine is not foamy, but I sitll have back and now abdominal pain. I do have puffy eyes but no other swelling.

I'm going to try to get to see a Urologist this week and see what he says.
I'll keep you posted.
Thanks again all

hugs
The world breaks every one and afterward many are strong in the broken places

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 5:04 PM (GMT -7)
There are a total of 2,732,301 posts in 301,007 threads.
View Active Threads


Who's Online
This forum has 151169 registered members. Please welcome our newest member, Zags.
304 Guest(s), 10 Registered Member(s) are currently online.  Details
notsosicklygirl, Girlie, getting by, Todd1963, DennisinNY, Fairwind, Duffykani, Mustard Seed, SueCAll, trumpet123


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer