I'm learning so much here thanks everyone

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BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted 11/30/2008 4:35 AM (GMT -7)   

This site is a blessing things I would normally ignore I find through reading the posts I should bring up with my GP.  I was complaining to my GP about back pain two weeks ago and I thought it was my kidneys.  He was sure it was from my MCTD flare.  I had no idea about excess protein in your urine causing foaming which I do have.   A couple of days ago I had a little blood and pain then tea coloured urine with foam.  The last time I had this was last year they thought it was kidney stones, but couldn't find any sign of stones even after a CT scan.  At the time my CRP level 9.6 mg/l my understanding is that’s high.  I was just going to wait it out thinking it was just another kidney infection or stone. I guess I’ll go see the doc to check for protein and see about doing the CRP test again.


DX: IBS 00, MCTD 05, Depression 06, Sjogren's 07, GER 08  
Meds: Plaquenil 400mg, Prednisone 20mg, Celebrex 200mg, Effexor 150mg, Nexium 40mg, Metoclop 10mg and numerous other supplements 
Life is what you make of it.  Just something I try to remind myself every day.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/30/2008 10:06 AM (GMT -7)   
Hi BigBry!
 
We're glad you found us! Sorry to hear you're struggling with a flare.  You know your body best, and if you think and feel that your kidneys are involved, they probably are.  I think by the description of your urine, that you definitely need some testing and treatment done before it gets out of hand.
 
Being on moderate to high doses of prednisone can put you at a higher risk for infection as well.  I noticed in your signature line that you're on 20mg of pred. That's considered a moderate dose.  So when you're taking that much, it's important to really watch, listen and respond quickly to any changes that your body is presenting.
 
Definitely contact your doctor as soon as you can. Looking forward to getting to know you more!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 11/30/2008 12:44 PM (GMT -7)   
Hi BigBry,

I too am fairly new to this site and have found it a very valuable resource and the people here are assume! Everyone is so caring, supportive and willing to help anyway they can. It truly is a great place!
Definitely sounds like you have some issues going on that need to be addressed, I wouldn't hesitate to talk them symptoms over with your GP or Rhuemy if I were you.

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 12/1/2008 9:19 AM (GMT -7)   
Hi BigBry. Welcome to our forum. Tea colored urine can be serious, especially if it's dark. It can be blood (the red cells break up causing that color), kidney problems or liver problems. I hope you see your doc soon and don't put this off. Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien, flexeril, multi vit, C, flaxseed oil, acupuncture    Donna
 
 


Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 12/3/2008 11:19 PM (GMT -7)   
Hi Bigbry-
Just curious if your BUN & creatinine are okay. Those a indicators of kidney function and they should be done regularly with liver enzymes for anyone on meds for pretty much anything. The CRP just tests for immflamation and is pretty broad. Mine runs right around 10-12 and I have to argue with my doc everytime I see him. He says its an ok level because its not too elevated! Im like "umm buddy Im 26 it should be ZERO!!" Anyhow its sounds more like you may be having some kidney involvement. I cant believe you doc wasnt a little more worried about that! I dont think they understand half the crap we go through. My rhemie told me the last time I saw him he said that "everything will be okay I just have take some pills a couple times a day." I had to seriouly explain to him how hard it is some days to take a shower, fix my hair, pick out clothes, go to school, come home & do homework, laundry, make dinner, work, etc. Yea typical human beings can manage, but theres alot of days most of us are done for the day as soon as we get out of the shower! (Sorry had to rant there.) Anyhow good luck and I hope its nothing serious with your kidneys & urine going on.
Melissa
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram


BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted Today 12:05 PM (GMT -7)   
Thanks for the support everyone. I saw the doc the other day and had some tests done now waiting for results.
Melissa I've had the same problems with my Rheumy and Doc. They would ask how bad is the pain 1 to 10 5 or 6 I'd reply. It wasn't until I broke my leg and dislocated my ankle in 2003 that they understood as I told them the pain from my arthritis is worse than my broken leg. I'm lucky I guess I come from a family with a high pain threshold I only have moderate pain its the exhaustion, muscle weakness and flexibility that are my major problems. Like you said I'm done after not much which is very frustrating. I've been in the marine maintenance industry, a very hard labour job, for over 20 years and the last 5 or so have been very difficult until now where I'm unable to do it anymore. I guess it's time for this old dog to learn new tricks.
DX: IBS 00, MCTD 05, Depression 06, Sjogren's 07, GER 08  
Meds: Plaquenil 400mg, Prednisone 20mg, Celebrex 200mg, Effexor 150mg, Nexium 40mg, Metoclop 10mg and numerous other supplements 
Life is what you make of it.  Just something I try to remind myself every day.

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