help with buterfly

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lizzy123
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted 12/1/2008 5:22 AM (GMT -7)   
hi im new to this . i ve had lupus for some years and learning to live with it but the buterfly rash is getting more noticed, i ve tried all sorts of make up with no success yet. can anyone recommend any good ones or do i have to carry on red faced mad

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 12/1/2008 7:07 AM (GMT -7)   
Hi Lizzy,

Welcome to the site, you've come to a great place. Have you consulted a dermatalogist recently? I don't know of anything over the counter that will help, speaking from personal experience. My dermatalogist prescribed Elidel, which according to my GP is very unconventional as it is used for liver transplant patients. I use the cream very sparingly for two weeks then layoff for two weeks. It has definitely helped me. Like I said, this is not a conventional medicine, so I'm not sure how responsive your doc would be prescribing it, but a trip to see what is available for you might be a good idea.

Apparently my skin was extremely inflammed is why my doc went this route, it was burning and stinging really bad too, which it normally does not.

Hope you get some relief, if not look at it the bright side, at least we fight in more so in this cold weather right? LOL, everyone walking around and comes in from outside has a red nose and cheeks for a few minutes.

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


BumbleBee1
Regular Member


Date Joined Oct 2005
Total Posts : 130
   Posted 12/3/2008 2:46 AM (GMT -7)   
Hello Lizzy

There's any number of effective make ups some specially designed for camouflage and even a few specially designed for lupus Patients. I like Revlon's Colorstay- it comes in a wide range of shades which can be mixed and it can be reapplied. You might find a mineral powder useful and you will need to use blusher carefully to put back the natural color variations in your face and avoid a mask look, odd as it sounds. I put the Colorstay on after applying my sun block.

I use the Elidel ointment too. I don't know about liver cancer patients though & I think the doctor meant that the medicine is used for transplant patients. The cream is used for eczema I think. It can be very helpful for actual skin lesions and doesn't have the side effects of a corticosteroid cream such as thinning the skin and causing expansion of tiny vessels, spider vein effect. However it also needs to be used very sparingly and is photosensitising so special care needs to be taken with sun avoidance and protection. I dont use it in the summer. Personally I wouldn't use it simply for red skin Eucerin make a very good range for red skin and their red skin cleansing lotion is brilliant for removing the Revlon makeup. The night cream seems helpful too.

The addition of Quinacrine to Plaquenil or chloroquine can be very helpful for lupus skin problems that haven't responded to Plaquenil. Unfortunately sometimes redness becomes permanent if the very tiny vessels have been damaged.

I am sure you will find many links if you google cosmetic camouflage and look at the LFA site which is currently advertising a range made specially for lupus skin with a percentage of the profits going to the LFA

Good Luck !
BB

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 12/3/2008 6:02 AM (GMT -7)   

Hi Lizzy. I currently use Clinique continuous coverage. I've also had success with Jane Eirdale sp? mineral makeup. There's another makeup available without prescription that's so heavy it will cover tatoos, but I can't remember the name. I hope this helps and welcome to our forum! Love, Butterflake


Dx: SLE ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien, flexeril, multi vit, C, flaxseed oil, acupuncture    Donna
 
 


AnnieRae
Regular Member


Date Joined Nov 2006
Total Posts : 76
   Posted 12/3/2008 6:14 AM (GMT -7)   
Hi Lizzy, Welcome

Everyone on this forum is so very helpful with any question you might have.  It's a great place to come to.

I have also used Elidel, as I had a rash also on my eyelids.  It helped tremendously.  Now I only use hydrocortisone, over the counter when needed.  Since starting Plaquenil three years ago, most of my skin problems have cleared up.

As far as concealer goes, I use Dermablend.  I use a small makeup sponge to apply it and it works great for me.  You can also go online or to the Dermablend counter in most department stores and they will send or give you samples.  There are lots of colors to choose from also.

Some people don't like it because they think it is too thick.  But if you follow the directions for applying, you can put as little or as much as you need.  There are many concealers out there, it's just finding the right one that best suits your needs.   Good luck   AnnieRae


There Is Always Hope


lizzy123
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted 12/3/2008 5:10 PM (GMT -7)   
hi i would like to say a big thankyou to all of you for your help and advice i can now go and look for these products and look forward to having normal skin tone well to look normal lol. thanks lizzy

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 12/4/2008 8:21 AM (GMT -7)   
Hi Lizzy,

My apologizes, I apparently misread your post from the beginning, I didn't realize you were looking for makeup to cover the redness. I thought you were looking for something to take it away, that is why I mentioned the Elidel. As far as makeups, the other ladies have offered some great advice.

Again, sorry, I will try and read a little closer next time. Don't hesitate to call me out for reading things wrong guys, I'm totally okay with it. I'm human and make mistakes and don't mind owning up to them.

Have a great day pain free day everyone!

Melissa D.
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


lizzy123
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted Yesterday 1:40 AM (GMT -7)   
hi melissa dont worry i always read things wrong lol. thanks for your help anyway .lizzy.

BumbleBee1
Regular Member


Date Joined Oct 2005
Total Posts : 130
   Posted Yesterday 5:18 AM (GMT -7)   
Hello again

I do think we have to try out to find what suits us best so if you can return the make up that's a great plus, or if you can get a qualified person to help you chose shades and learn to apply the make up. There are special techniques, like dotting it on and finger tapping it to blend carefully. Also make sure to extend it down your neckline and under your ears and even on your earlobes. Don't forget sun screen on the ears too if your hair or hat doesn't protect them.

It is very individual. I found coverblend too heavy for my very delciate and fragile skin and i had ro rub too much to get it off, or maybe I didn't have the right remover product because I bought a color sample kit. It did take me a long time to find the right shade dark enough fto cover the skin problems but light enough to look natural as my natural skin is very fair but the lesions very red.

I found the Clinique came off over everything. Estee Lauder do a very good camouflage but I found it very drying.

Look for yellow tints, although modern makeup is much better this way.

Good Luck !

BB

katalexanna
New Member


Date Joined Sep 2008
Total Posts : 11
   Posted Yesterday 6:08 AM (GMT -7)   

My daughter and I were at our first dermatologist appointment yesterday and she prescribed PROTOPIC for her.  She said that it was not a steroid that it just worked like one.  We are just starting to use it so I do not know how well it works.

 

Melissa


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted Yesterday 9:24 AM (GMT -7)   

Hey Lizzie,

Welcome to the group.  Hope you can find the makeup you need to cover the redness.  i look forward to reading your posts.

hester


Lupus diagnosed 1996, Fibromyalgia diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008, Stroke 11-4-08
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


lizzy123
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted 1/10/2009 7:09 PM (GMT -7)   
hi just like to say thanks, i ve also found a concealer which do help hide the redness and it is "Benefit in dustrial strength concealer" so at last i have found one that suits me after a lot of time and money wasted. lizzy
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