In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Hi Keo- I know exactly what you're going through! I have been referred to Cleveland Clinic by my rheumie (going in Feb.) and the only positive lab test for me is an ANA as well (over a year and a half) - same count as yours now, though it was higher in May.....despite all kinds of nasty and worsening symptoms. I was also dx'd with fibro about 10 yrs ago. I saw an Infectious Disease doc today - he agreed with the other docs that chronic Epstein Barr is not causing my symptoms. He is running another test for a tick borne disease (not lyme) and one other I can't think of right now and also an abdominal ultra sound to check spleen and liver. I have some other issues right now....high potassium for one....but I just wanted to let you know that I feel for you - it is scary wondering if all these years while you've been chalking symptoms up to fibro - that you were missing something important. The infectious disease doc told me today that my history and symptoms in his experience look more like rheumatoid arthritis. I think my rheumie suspects Lupus.
This is a great forum for information and encouragement - the folks here are very encouraging and supply a lot of good information. Like Rosie said, take a deep breath and hang on - you are very lucky to have a doctor who is taking you seriously and is referring you...that's a great start!