pain in body after being in cold

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firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 12/4/2008 6:14 PM (GMT -7)   
I was wondering if anyone else has experienced total body pain after being in the cold.  Last night I was fighting a fire and in the cold for about 3 hours.  It was about 15 degrees and I was in the wind for about an hour.  I got into the truck after we were done and we had cleaned up and I was starting to have some pain.  The only other person in the truck who admitted to having any sort of pain and stiffness was a guy who has 20 years on me.  Anyways, when  I woke up this morning I could barely move and my muscles were on fire and some of my joints hurt too.  I decided to skip the lotion and use Biofreeze all over instead because I thought it would be more soothing.  I was in pain all day at work so in between jobs I took a good nap and now I'm more comfortable again.  Is this something I get to look forward too?  Also, I'm guessing this means I am not in remission? 
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/4/2008 8:24 PM (GMT -7)   
Firebabe, I don't know how you do this!!!!!!  SUPERWOMAN!!!!
 
Oh yeah, the cold is nasty for me too.  But for me, it flares my Fibro not my lupus.  My Fibro makes my muscles feel the way you described.
 
Before you went on this call, did you feel fine?  Were you flaring before you went out?  Do you usually feel fine, go to work, feel like crap after?  You said you rested and then felt more comfortable.  That doesn't sound like a lupus flare at all to me.  That sounds like Fibro!  Lupus will knock you on your ass for a lot longer.  A good nap can do wonders for Fibromyalgia.
 
I'm asking because that is usually how Fibromyalgia will present itself. I'm a very active wedding photographer.  Lots of heavy gear, 12 hours on my feet non-stop.  My lupus is fine, my Fibor is a disaster.... 
 
Have you had your blood tested recently?  I'm just trying to think outside the box here.  Do you have Fibro? LOL.  Sorry, just investigating other possibilities for you.
 
What are your thoughts?
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 12/5/2008 12:51 PM (GMT -7)   
I find that I need extra rest when I do something with "extra exertion" -

I don't really put it into the "Lupus flare" category, since for me 2-3 days of good rest puts me back into a 'normal' state.

Two days ago I was out in 40 degree rain all day -- my bones & joints hurt like the dickens -- a soak in a really hot tub, 2 nights rest, and a 2 afternoon naps and I'm good as usual.

So I hope your pain does it's thing and gets out of town quickly!
Take care,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 12/5/2008 4:25 PM (GMT -7)   
Firebabe,
 
You have probably found a physical AND emotional stress combination that triggers a response.  It is not uncommon to be more sensitive to either or both heat and cold and the stress of fighting a fire just adds to the problem. 
 
Are you a full time firefighter or a volunteer?
 
Do you have raynauds phenomenon?  Were your fingers or toes affected?  This is a common circulatory condition that affects many of us with lupus or other AIU diseases.  I am a winter person and ski, climb, snowshoe in the coldest weather but now have raynauds thanks to lupus.  Winter sports is doable but I have to dress more warmly and be alert to when I have reached my limit...then get inside and warm. 
 
Consider what you are doing and if it is worth doing if you have lupus.  We all have to make changes in our lives with a serious and chronic disease like lupus.  It is just much more difficult for someone who is young than for a senior like myself.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 12/5/2008 8:43 PM (GMT -7)   
To answer some of the questions presented here, I'm a paid on call volunteer firefighter. I felt fine before the call went out, and just after the call was when I started to feel the stiffness and achiness in my body. I'm not sure about Fibro. I have my blood tested about every other month to check my levels. Our goal at this time is to get me into remission. My levels have been good for about the last 6 months. I'm tapering off my meds in the hopes that I may be in remission. Is there a blood test for Fibro-one that can suggest Fibro anyway? I go back to my rheumy in February and maybe I can talk to him about it at that point. I was tuckered at work on Thursday after the call on Wednesday night, but also find that I couldn't sleep well when I got home because I felt chilled to the bone. My fingers and toes were fine for the most part. Our boots are really good and I didn't actually experience any cold trauma to them while on the call, but my fingers got really cold. Our gloves are made to protect us from heat and not so much the cold. It didn't take long to warm them up and they didn't turn white or red or have any strange numbness in them. I'm hoping I can rule Raynauds out. I guess I wonder if the "arthritis" part of Lupus is the reason for the pain on Thursday. I would say too that I did exert myself -in the frigid cold- more than I would normally. For 45-60 mintues I was holding a hose line up and dragging it around. I'm surprised my arms didn't hurt from holding it, but my elbow did a little. It was weird.

I hate that I have to have limits, but if I'm feeling slightly off and the pager goes off-I take a break from that call. I have to be 100% before I can go because everybody depends on it. You don't get to chose what you get to do you get assigned and I can't say I can't do my job. I do wonder sometimes how much longer I will be able to be on the fire department. I love my job so much that it will be hard to give up. Maybe by that time I would have time to run with EMS instead.

Thanks for the thoughts and ideas. I'm thinking I will look more into Fibro to see if I match any symptoms and bring it up to my Dr. in February.
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/5/2008 9:25 PM (GMT -7)   
hi Tammy,
 
There's no blood test to diagnose Fibromyalgia.  The diagnosis is based on a physical exam where the rheumy will press on certain spots on the body. They're called "tender points".  They diagnosis is also based on symptoms.
 
I hope you can get this managed soon,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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