OUCH! My lips!

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 12/5/2008 6:50 PM (GMT -7)   
Does anyone have a REALLY good recommendation for a lip balm?
 
My lips are so dry they're almost at a bleeding stage.  My regular "ChapStick" just doesn't cut it.
 
Darn winter!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 12/5/2008 7:02 PM (GMT -7)   
I costs about $5 but I use the lip gloss that goes with MaxFactor Lipfinity. The lipfinity is a lipstick that really does stay on all day. But the gloss is necessary because the lipstick by itself is rather drying. Anyway, I like the clear gloss really well for sore lips. I'm sure, though, that there are less expensive alternatives out there.

I know in the hospital they use glycerin sometimes.

I hope some of the others have an idea for you.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 12/5/2008 7:16 PM (GMT -7)   
My lips are always dry, I guess from the sjogrens and I use Burts Bees. The packaging looks like chap stick but they come in lip stick colors from light to dark, there is a wide variety to choose from. Also Blistex is good. I hope you find relief soon! Take care
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 12/5/2008 8:01 PM (GMT -7)   
When I was a school nurse, the docs always recommended Burts Bees! Judy

Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 12/5/2008 9:27 PM (GMT -7)   
Well that's interesting because I always see the Burt's Bees products but I've never tried them.  I'll have to give it go!
 
Rosie, that lipstick sounds very nice.  My current lipsticks dry my lips out too, so maybe that brand you mentioned would be worth trying also.
 
Thanks gals!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


jojo711
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 12/5/2008 9:33 PM (GMT -7)   
i just use carmex, its in a tube or in a lille round jar, but it works really well for me, and my friend strted using it and her lips are very dry all the time due to she cant breathe out her nose and is always breathing out of her mouth. She loves it.

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 12/6/2008 8:51 PM (GMT -7)   
EEEEK! You should not use Chapstick. There is alcohol in it that will dry your lips out. Also, never use Carmex. You can buy different types of lip balms from Vaseline that are safer and will help your lips to heal. Lip therapy is good, also by vaseline they offer night time balms that are thick and will protect for longer. I had problems with this a few years back and a nurse even said that Desitin (yes the stuff for diaper rash on babies) is a really good moisture sealant. You don't want to wear it in public though its got a white look. If you want o spend a few bucks Mary Kay has a really nice lip balm that you can buy in a set with a lip exfoliant (not recommended for use while you are almost bleeding though) Once your lips heal you can use the exfoliant daily to remove old dry skin and it helps with recurring problems. I started using that brand and I haven't had any bleeding for a long time. It lasts for about 4 hours too. Someone else mentioned Burts Bees and that is also really good too-its made from natural product and is about $3.00 a tube. My mom used to tell me to eat an orange for my sore chapped lips. You could try that too.
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 12/6/2008 9:47 PM (GMT -7)   
Well that would explain why my "ChapStick" has made my lips bleed!!  Sheesh.... LOL.  Thanks for telling me that Tammy.  I went out and bought some Burts Bees today.  It's good so far.  I like that it really stays put for a long time. Doesn't wear off even when I eat. 
 
My mom uses the diaper ointment on her lips!  Funny you'd mention that.  I don't know, but I get the heeby jeebies thinking about putting butt cream on my mouth.... Hehe....
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 12/7/2008 6:08 AM (GMT -7)   
I use aquafor it works great. I also use burts bees and carmex. Good luck.

JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, cellcept..


sharky456
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 12/7/2008 10:24 AM (GMT -7)   
Ginny-
I have horrible lip dryness and what works the best for me is the $1 jar of vasoline. Put it on sparingly during the day but put a lot on at night and it works wonders!!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/7/2008 10:52 AM (GMT -7)   
Vaseline at night.  Never thought of that.  I'll give it a try if the Burt's Bees doesn't work.  I woke up this morning with nice soft lips, so here's hoping!  Thanks for all the suggestions everyone!  A sore mouth is hard to live with!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted 12/8/2008 12:09 AM (GMT -7)   
This comes from my farm experience and it might seem a little weird but Bag Balm works well for really bad chapping. It's for cows udders but I've used it with success. It's not fancy and you may not want to tell anybody you're using it, but it might work for you.
DX: IBS 00, MCTD 05, Depression 06, Sjogren's 07, GER 08  
Meds: Plaquenil 400mg, Prednisone 10mg, Celebrex 200mg, Effexor 150mg, Nexium 40mg, Metoclop 10mg and numerous other supplements 
Life is what you make of it.  Just something I try to remind myself every day.


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 12/8/2008 7:09 AM (GMT -7)   
Hi Ginnny,
 
Vaseline is good but only for the short time the problem with anything petroleum  based is the molecules are to big to be absorbed by the skin so it essentially sits on the top layer and gives relief as long as it's sitting there but does nothing to solve the problem just acts like a  bandaid.  When my sjogrens was bad my whole mouth cracked my lips were so dry they would bleed and the corners of my mouth cracked. I had every single lip chap in Shoppers ( your Cdn so you know what I mean by that) I think I had about 24 of them. I finally went to an ND and he told me for skin and lips eyes everything to use coconut oil I bought a tub 10 months ago and it's still 1/4 full. I use it all the time it's the ONLY thing that helped me and my case was severe. I use it still on my skin, lips and hair never have a dryness problem. Plus it's a natural anti fungal so kills anything you might have brewing as far as yeast.
 
 
 


MCTD had a high positive ANA of 1:2560 with high positive anti -rnp using antibiotic therapy and now pretty much better. With now a negative ANA and all labs no more RNP antibody or Pain


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 12/8/2008 4:02 PM (GMT -7)   
BigBry, I can't stop chuckling. Hehehehehehehe..  Cow udder.... Oh man.  Yeah, I won't be telling anyone I'm putting that on my lips.  I won't be telling anyone I even have a bucket of it!! :)  No one would be too surprised though.  I'm a farm girl too! I think if I mentioned this to my dad, he'd have the same advice you did.
 
Yo yo yo, Canuckgirl, my homey, my peep.... Yeah, good old Shoppers Drug Mart.  I have their rewards card and that $75 shopping spree rocks!  I usually get it every Christmas!  So coconut oil eh?  Well, I need something because the Burt's Bees chap stick isn't working either.  I can peel strips of skin off my lips right now.  It's disgusting.  Why? Why do we have to live in such a dry climate?  If I wanted this, I'd move to Arizona where at least there wouldn't be 5 inches of snow on the ground.  I could live with peeling lips if I had the chance to live in a place where I could wear shorts all year!  I'll check out the coconut oil.  Do you think I can get that at Shoppers?
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/8/2008 5:04 PM (GMT -7)   
Hi Ginny, I know someone said not to use carmex but I get really bad cracks on the sides of my mouth. I think it's from some of my meds. But carmex works great for me. It costs a buck. I don't like the tube because it's a little thinners than the jar stuff. I hardly use it during the day but when I go to bed I put a ton of it on and don't rub it in. it just sets there over night. maybe use it once during the day and than thick again at night and usually it's gone. When I visited mymom she had been trying to get rid of her chapped lipped and she had some chapstick and some balm stuff from avon. she got no releif. I gave her my carmex and it healed up in 24 hours. I hope by now something somone has tried has been of help to you. Let me know if you want me to talk with one of the dairy farmers around you. Maybe we can send ya a cow for christmas???
lol but seriously coming from cattle country I'll bet that does work and you could probably buy it at a grain store.
love ya
Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/8/2008 6:30 PM (GMT -7)   
I'll try the Carmex Carol.  I'm desperate.  I know it's at the drug store down the street.  Hahaha, I love the cow idea. I'll just rub my lips all over an udder..... confused   Okay....  That was a mental image NONE of us needed.....
 
Thanks!
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted Yesterday 1:15 AM (GMT -7)   

LOL I could have probably gone the whole rest of my life without that image! shocked .

 

love ya


Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 
 


DQueen
Regular Member


Date Joined Jun 2008
Total Posts : 90
   Posted Yesterday 11:14 AM (GMT -7)   
Lol! You guys are great. Actually, just wanted to let you know that they do sell bag balm at fine retailers, such as WalMart. I have never used it on my lips, but it works wonderfully for chapped hands, which I have a terrible time with. My dr reccommended it!
Lots of Love!
DQueen
 
 
 
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted Yesterday 1:08 PM (GMT -7)   
No way!  Really? Walmart sells udder balm?  Do you get it in the pharmacy area?  I can't believe I'm actually, seriously thinking of using this on my lips.  Only YOU GUYS will know!!!
 
Thanks DQ!  And BigBry for mentioning it in the first place!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 12/15/2008 10:28 AM (GMT -7)   
Hi Ginny,
 
Yup I got mine at shoppers it's in a black tub has to be in the fridge so not really protable to but works AWESOME. Oh yah my lips were cracked and all bleeding so I know how you feel. It was at Shoppers where the vitamins are in the cooler part with drinks.  I use it on my face, feet everywhere plus in my hair it's so awesome I have no dry skin at all anymore and considering I have sjoren's that's amazing.  It's -46 here today... how are you doing with this weather.. UGGGG I need to move..
 
Angela
MCTD had a high positive ANA of 1:2560 with high positive anti -rnp using antibiotic therapy and now pretty much better. With now a negative ANA and all labs no more RNP antibody or Pain


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/15/2008 7:26 PM (GMT -7)   
Hey Angela,
 
Okay, black tub, Shoppers, vitamin area where the cooler drinks are. Got it!  The bottoms of my feet are now looking like my lips.  I was so embarassed today when I had to go see my foot doctor.  I was getting the moulds done for some orthotics.  So he had to look at my feet and they were soooooo gross.  I mean, really.  It was bad.  So hopefully this stuff will help.  You can put it in your hair too?! 
 
Yeah, it's -40 with the windchill here today.  A "chinook" is blowing in tonight and will raise our temps to a balmy and tropical -10!  WOO HOO! Can you sense the sarcasm in that woo hoo?  eyes
 
Stay warm!!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/15/2008 9:26 PM (GMT -7)   
Ginny in my neck of the woods a shonook is a fish. I'm invisioning frozen fish flying thru the air lol. I was reading about sjorgrens for some reason tonight and it mentioned the dry skin and cracked lips. It mentioned a lot of stuff actully. I will never just blow by it when I here someone has it aain. It's a horrid disease! God bless you guys that have it. I don't even know how you handle it. Oh yeah if ya want to check out arizona I'll hook ya up with my family.
love ya
carol


 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 By his Stripes we were healed.
 

Post Edited (okie) : 12/15/2008 9:32:07 PM (GMT-7)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/15/2008 11:12 PM (GMT -7)   
If none of the above suggestions work I recently discovered BE's Buzz Latte Lip Balm (same people who make bare minerals) and it is the first thing that worked on my lips to keep them from splitting and bleeding. My lips have been really dry for years.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/16/2008 9:56 AM (GMT -7)   
LOL, Carol, you are a hoot!  Your comment on the chinook winds made me laugh!  Actually, "chinook" is a North West Pacific Indian word meaning "snow eater"!  Neat eh!  It literally eats the snow as these warm and sometimes hot winds blow over the mountains. It's a crazy phenomenon.  Wreaks havoc on many people by causing horrible migraines.  I'm one of those people.  It's the barometer rising very quickly that causes the migraines.
 
As far as my lips go. I haven't been able to get to Shoppers Drug Mart to buy the bag balm, or any other lip treatment. Right now I'm just applying Burt's Bees on a pretty much constant basis.  It soaks into my lips so fast that I can't keep up with it!!  Redrose, thank you for your suggestion.  I'll take anything at this point!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/16/2008 10:23 AM (GMT -7)   

Hey Ginny picture a blast of these flying past ya!

http://images.search.yahoo.com/search/images?_adv_prop=image&fr=slv8-&va=big+chinook+salmon&sz=all

 LOL I'd rather shovel snow!



 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 By his Stripes we were healed.
 

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