I think you need to tell them how important it is for you to stay on the prednisone. It's clearly helping you, isn't it. I wish doctors would be more flexible when it came to prednisone. For some people, me included, prednisone is going to be a life long medication. Without it, my lupus flares and I'm not well. It seems like a no brainer to me! Doctors are frutstrating....
Voice your concerns and let them know how you're feeling about this taper. You know your body best. I hope you get some relief from your symptoms. It sounds like you need to be on prednisone, not off it.
Keep us posted,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus