I do not know how any of you do it, when you work and you are sick. I could not do it. I do well to just get my house clean a room at a time. and sometimes I pick my grandchildren up from school when I need to, and sometimes I take someone to the grocery store. That is about all I can do. and if I take someone to the grocery store, they know they can't shop around. the lights affect me.
I loved it when I was working. i really liked my job, and was good at it. but there is no way I could work today. I hope some avenue will open for you. It has to be really hard to be on disability and having to lose it, when you are living alone.
Will send you many prayers
I feel for you Jen. I haven't worked in several years. I miss the social interaction and the paycheck! But I also don't miss the stress of having to go in when sick and tired - especially during the winter, when I'd get so worn down I'd catch anything floating around, on top of everything else. I don't have to work - though it would be a big help if I could. I think getting your certification is a really good move. At some point you'll be able to set your own hours.
At any rate, good luck with the long term disability and just coping with the work/school thing at present. I'm an artist who loves to work in all kinds of mediums....thinking about using what energy I do have to continue to create and sell (hopefully) on Etsy. Take good care of yourself!
Ps. I'm a redhead (or was - it's turning on me) too!
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions