Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
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In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Hi! I read your note today and I can really relate. I'm in a fibro-flare right now and it is really bad in my neck,shoulders and hands. I never remember my hands hurting so bad.
I just found my labs from Mayo Clinic done in 2005 where I was diag. with Lupus and Sjogrens. My new rheumatologist ran all new testing so I will take them with me next week to compare them. I need something that will work for pain relief. Any suggestions?
Hi Ginny - and anyone else who also has fibro. How do you know which issue is causing your pain and fatigue? I've been on Plaquenil for 2 mos. now and feel it is having somewhat a good effect on the fatigue in general, though I'm nowhere near feeling "normal" in that regard yet. But it seems like the pain is on the increase in all those fibro areas. I'm having a hard time deciding whether the Plaq is reallly helping. I know the winter cold seems to aggravate things. But while I have more energy to get out - I'm enjoying it less.....does that make any sense? (Kinda foggy today).
I tried Neurontin in 05 - started on 100 mg and only lasted a month. It made me more tired, achey and depressed and I started having some nasty nightmares, so I quit. I know everybody is different, so I'm glad it's working for you.
Thanks, Ginny. No, I'm not on Prednisone. And I don't have monthly blood tests. Unless I need to see her for something specific, my follow-ups with the rheumie are at 4-6 mos. intervals. What do you have checked monthly? The sed rate seems to remain normal for me except when I'm in all out flare mode (fever and the works) and then it hits the roof. So it may be the fibro is the likeliest culprit.