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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/11/2008 5:54 PM (GMT -7)   
For a little while I've been having pain right below my right rib cage and when I looked some stuff up online I found out that's where the liver is.  I've had mildly elevated liver enzymes the last few times I've had blood taken, but nothing super high.  The area also hurts if I press on it.  I have no idea what it is.  I guess the gallbladder is in that area too, so who knows.  I see my rheumy one week from today, so I'll be sure to ask him.  Does anyone know much about this?
 
I'm afraid I'm going to have to increase my prednisone too.  I'm having trouble getting through the day and taking care of my kids at night and I've been getting the lovely lupus headaches and fevers.  I'm ready for bed, but the kids need baths and to do homework, so we are off to do all of that now.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 12/11/2008 7:50 PM (GMT -7)   
Hi Hippimom,

I don't know much about it other than if it is truly the liver your doc should be able to tell rather easily by doing a check of your abdomin. If the pain is associated with your liver the capsule surrounding the liver will become inflammed. That is normally what the docs are checking for when they press around.

Has your doctor said commented on why your liver enzymes are elevating? I noticed your not taking an immunosuppressant, they are known to interfere with the liver, but I don't know of any of the meds you've listed on your profile to raise the liver enzymes.
 
How old are your children? You are a trooper if you can handle your children while in so much pain. Thankfully you have an appointment next week so you will be able to discuss your symptoms with your doctor. I hope the pain subsides soon!
 
Hang in there!

Melissa


Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

Post Edited (Melissa D.) : 12/11/2008 7:54:45 PM (GMT-7)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/11/2008 8:00 PM (GMT -7)   
Hi Hippimom,
 
Yeah, that is disconcerting isn't it?  It's good that you're seeing your rheumy soon.  I'd say that if the pain is gone by then, still mention it to them.  Just to be sure.  When my liver enzymes were nearing 1000 (after that medication allergy), I didn't have a sore liver at all. But that could have just been me!  I do know that a bad gallbladder will be painful though.  I hope that's not the case for you.  UGH, the prednisone.  I hope you don't have to increase that.  Sorry you're dealing with all this Hippimom.  You've had a rough go lately.  Time for a break.
 
Love
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 12/12/2008 6:40 AM (GMT -7)   
(((Hippi))) You've been having such a tough time for so long! I'm glad you're seeing your rheumy next week. Abdominal pain can be so many different things, not to mention the fever, etc. I have to say though that you certainly get the Great Mom award! It's easy to see how much you love your kids. I hope your rheumy visit is productive and you get some relief soon! Love, Butterflake 

SLE ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum,
prozac, seroquel, celebrex, actonel ,arthritis tylenol, neurontin, promethazine, ambien, flexeril, multi vit, C, flaxseed oil, acupuncture    Welcome to lupus where the strange is ordinary and nothing is normal :D
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/12/2008 7:34 AM (GMT -7)   
Thanks for the input. I'll be interested to see what my rheumy says. I went to bed last night when my kids went to bed and got some good rest, so I'm a little better this morning so far.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/12/2008 10:36 AM (GMT -7)   
I know the gallbladder can cause tons of pain if it becomes inflammed, I am thankful to no longer have mine.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/12/2008 10:40 AM (GMT -7)   
Hi Hippi:

(((hugs))) you've been really having a tough time lately. I'm sorry I've not posted in awhile but I'm dealing with "issues" and I'm feeling really down. I have slightly elevated liver enzymes but the figure it's from the MTX. It's true with belly pain and fevers it can be just about anything. I'll be interested to hear what your rheumy has to say.

On a side note, your gallbladder is actually lays under your liver. I use to have very serious gallbladder attacks. I passed the bulk of my stones so when they'd look at it it had no stones in it. Mind you this was back in 1987 and gallbladder surgery was major surgery. After letting me suffer for a year I signed a paper saying I was having elective surgery, low and behold, I had gallbladder disease and my duct was scarred from passing all the stones. I was in the hospital for 10 days after surgery and have a lovely 7" scar to grace my belly. I'm sure your wondering where I'm going with this right? LOL. It could be your gallbladder bothering you, keep and eye on what you eat until you see your rheumy. If it's something fried, high fat, or to many raw veggies and then you have pain it's possible that it's the culprit.

I'm sorry to hear about the lupus headaches and you having to go up on your steroids. I know how much you hate having to be on the higher dose. Hippi, I just want to tell you that you're a GREAT mom and you do a wonderful job as a wife. You cope really well, even during your down times. We love you greatly here and we understand if you need sometime to yourself. So try to rest as much as you can during the day and know you're doing the best you can at night.

Hugs,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 12/12/2008 11:18 AM (GMT -7)   
A lot of those types of pains can be "referred pain" - where we think the problem is under the ribs where the pain is and it's actually somewhere else.

And a note on gallbladder surgery - I just had it 3 years ago, 4 tiny little laproscopy holes, home the next day and fully functional after 4-5 days.

I hope whatever your issue is that it turns out to be easily addressed...and that you feel better SOON! But if you don't feel great, just take care of yourself by napping & resting,ok?

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/12/2008 11:36 AM (GMT -7)   
Hi Hippi:

I'm glad Lynn told you about the new way of surgery I forgot that part. I truly believe it will be easily worked out sweetie. Try not to worry to bad. If the pain gets really bad go to the ER ok.

Hugs,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/12/2008 1:31 PM (GMT -7)   
I should let you know even with the new surgery some of us do not bounce back as fast I think it depends on what condition you are in when they finally do the surgery. I had been unable to hold anything down for a week and hospitalized on IV pain meds for 5 days when they finally did my surgery. It took me a year to recover but my gallbladder had failed- shut down, stopped working, etc... I never had stones so your gallbladder can have serious issues without stones I had a test that sounds like hide-AH scan and that was how they discovered my gallbladder wasn't working. My liver enzymes had been up and returned to normal after the surgery- for 6 months. Then they rose again until we started imuran which caused them to return to normal where they stay as long as I take imuran. I have 4 tiny scars from my surgery but the woman in the next bed ended up with a large one due to scar tissue. So sometimes they still do it the way Barb had it done. My pain was gone right away, it was my strength that took so long to get back. Worse being so sick sent me into a major flare which lengthened my recovery time. I just want you to know if it is your gallbladder and you don't bounce right back that there are some people who take a while. On the other hand it is my sincere hope if you ever need your gallbladder out that you are one of those who bounce right back.

Another thought, could you have a hietal hernia (sp)? A few of my great aunts have one and it is painful.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/13/2008 8:27 AM (GMT -7)   
Thanks for all the info and support. Lynnwood, I had never thought about referred pain, but it makes sense - I get that a lot with any problems I have with my teeth. I do wonder about my gallbladder because sometimes it does seem related to what I eat. I hate the thought of surgery though. Hopefully my rheumy will order some tests to look into the pain.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 12/13/2008 9:27 AM (GMT -7)   

Hippi--

Liver pain can hurt there, but like Lynnwood said, so can upper GI and ulcers, problems with small intestine and gallblader. Still, someone should be investigating your mild elevation in liver enzymes with an abdominal ultrasound or some kind of appropriate imaging to see if you aren't developing fatty liver, like I have.

Fatty liver disease is very closely tied to mild diabetes and eventually can lead to full blown diabetes. In the early stages, I had high and low blood sugars, that corresponded with high and low blood pressure, though all were mild, I really "felt" even a small rise above normal in my blood sugar.

My hepatologist just informed me that prednisone increases the fat depositing in my liver, which is severe. I since tapered off and am miserable, but that's another story.

Liver swelling and inflammation can be felt sometimes, as the liver bulges out below the rib cage. Gaining/carrying weight around your rib cage and abdomen can be signs of liver problems.

Non-alcoholic fatty liver disease that features abnormal liver function, even mild, that continues, is called non-alcoholic steatohepatitis (steato means fat, hepatitis is inflammation of the liver). This form of fatty liver is much more dangerous because of the inflammation, though more common.

You aren't on anything that I haven't taken, if you signature is right. Fatty liver is serious, and there are pills you can take to prevent cirrhosis and death, if the cause is found. Glucophage has saved my life and my fathers, though we both had  hard time getting it as our "diabetes" is not due to pancreatic failure, but due to glycogen storage problems in the liver and insulin resistance (also called "prediabetes" or "metabolic syndrome").

The theory is that some of us have trouble metabolizing carbohydrates and sugars due to a resistance in our cells of insulin. This resistance comes from a life of eating too many carbs, hereditary predisposition, medications or medical problems that trigger the onset of it.  Many of us with American Indian blood are prone to diabetes due to feast or famine living, some speculate.

Also know that liver function tests like ALTs which measure repairs being done to the liver, go down as fibrosis sets in and the liver cannot produce the ALT to repair itself, so mild elevation doesnt always mean mild problem. But a simple abdominal ultrasound--like when you were pregnant--can let you know if yuo have developed fatty liver or other problems, not just in the liver but elsewhere. That way you can know if medicines like glucophage or a select few other diabetes meds, and dietary change can help you save your liver. Also, blood INSULIN test--not the regular A1C test which means nothing with this type of liver involved metabolic disorder, can let them know if your body is producing way too much insulin because your cells are resistant to insulin. There are medicines to treat this now, and you need an up to date doc to help you. If you let the insulin resistance go, dont follow diet and take meds, the pancreas can't keep up with the demand and burns out, leading to full-blown type II diabetes where you can no longer produce insulin. Believe me, this is worth preventing, it is miserable and leads to a bunch moe health problems.

This is probably way more than you ever wanted to know, but a few simple tests can really save your life and prevent a boatload of problems. I would definitely talk to your doc about getting a blood sugar meter to test your blodod when you are on prednisone or feel lousy or just pay the twenty bucks or whatever--they are really cheap and you don't need a script--and buy it yourself, I did it when dieting and found my own blood sugar problems. Its a good first aid kit item, kids get hypoglycemic alot, and steroids mess up your sugar. People with diabetes go low nd high.

Sorry so long. I hope this helps. If you are having pain, the non-intrusive ultrasound is an easy way for them to check it out.

 


Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 12/13/2008 9:46 AM (GMT -7)   
((((( Hippi ))))) I hope you are feeling better today. Please let us know what your rheumy says. You are in my thoughts and prayers. Take it easy and take care of yourself
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/13/2008 10:24 AM (GMT -7)   
My liver has become enlarged and my enzymes elevated several times over the years. The docs have never done any treatment they just 'watch' it. It eventually goes down. They say it is related to autoimmune disease. Whatever th case, I pray it is easily resolved and you feel better soon. Judy
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