How's the weather treating everyone?

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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 12/18/2008 9:08 AM (GMT -7)   
Winter is in full swing in the midwest and this is the first year that the cold seems to be affecting me almost as much as the heat.  The heat always makes my lupus flare, but this year the cold is causing me a great deal of pain.  I have been having to take my pain meds more often than usual.
 
We have a big ice storm moving in this afternoon and will most likely lose power, so I might be offline for a few days if we lose power.  Last year we had a big ice storm and lost power for 4 days - I hope it's not like that this year because that was really hard.  I'm getting everything ready in case our power goes out, but the worst thing will be no heat.  We finally had to go to a hotel last year when the temps in our house got into the 40's.
 
It seems like a lot of people have been hit hard with bad weather this winter.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/18/2008 12:21 PM (GMT -7)   
I hate winter but so far it has been mild up here in MI. Several major storms have blown through leaving almost no snow. Supposedly another is supposed to hit today.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/18/2008 1:08 PM (GMT -7)   
Well after our exciting snow event last week, we're in the 70's and running our ac!  It's supposed to be cooling on Mon.
The cold has affected me more than ever!  Judy

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 12/18/2008 7:48 PM (GMT -7)   
I live in Texas where you just never know what the weather will be like, one day it will be 80 degrees and the next will 29! It truly plays havoic with my body. I'm with you Hippimom, normally the heat affects me worse, but year after year it seems the cold is becoming just as much of an issue, hence the recent diagnosis of Raynauds I guess.

Do you all have a wood burning fireplace? I sure hope so. I will be praying that you don't loose power at all, and if you do that it is restored rather quickly. I just can't imagine being without power for 4 days. WOW!

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 12/18/2008 8:32 PM (GMT -7)   
It's not even winter yet!!!!!!  BAHHHHHHHHHHH.  It is -40 celcius with the windchill here in Alberta.  I just did the conversion into Farenheit, and looky here, it's the same, -40F. Yes, there's a (-) in front of that 40.  Good grief.  It's been like this for over a week now.  So far, I'm doing okay.  I tend to suffer more in the heat.  We'll see if I still claim this in February! LOL.
 
I'm just thankful I didn't plan a vacation to Vegas this week......
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 12/19/2008 7:26 AM (GMT -7)   
We did get ice and the power went out for a little bit, but not long at all, so I'm relieved about that. Schools were canceled today and my husband couldn't make his 60 mile commute to work, so we all get a nice day at home together :)
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 12/19/2008 8:36 AM (GMT -7)   
Hippi, it sounds like you might be feeling a bit better, although I hate to hear that the cold is causing you to have more pain. Like you, I much prefer the cold temps to the hot muggy heat we get here in Oklahoma.

Your kids must be elated. How bad is the ice storm? You won't be getting any rest with everyone at home.

We had feezing weather earlier this week and a pipe burst causing a foot of water to accumulate in our crawl space. The pipe has been repaired and the water pumped out but the house still has that musty smell of mud coming up through the floor. Thankfully it gets better every day. And the temps are back up in the 40's and 50's.

Are you ready for Christmas? Internet shopping is the best thing that has ever happened to me, and I hope you've taken advantage of it too -- it's such a chore for you to get to town.

Ginny, I can't even begin to imagine what -40 degrees is like. Is that normal for this time of year in Alberta? My son lives in Denver and tells me that the weather there is freezing. He spent a year living in Russia and told me yesterday that it's colder in Denver than it was in Russia except for the two coldest days there. Makes me think we should never complain of the cold here in the midwest.

I hope both of you stay warm and safe!

Love,

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/20/2008 11:17 AM (GMT -7)   
Hi Pat,
 
-40 will freeze the skin and cause frost bite in about 1 minute.....So you can imagine all the people standing at the bus stop, and what they look like!  Hehe.... You can't see their faces at all.  Everyone has wound scarves around their heads with just enough space for them to see out of. 
 
If you throw a glass of water into the air, it instantly turns into ice pellets.  It's kind of fun to do, if you can handle being outside to do it!
 
This is really cold, even for southern Alberta.  We'll get one or two days of this kind of weather every month during the winter.  But most of the time we hover around 10 to 20F.  Our Chinook winds can take us up to 70 or warmer sometimes too!  That's really neat to experience, especially in January when the rest of the country is up to their armpits in snow and really cold temperatures.  This is the first year in about 10 years that we're going to have a white Christmas!  Our snow usually doesn't come until early January.  It's a very special part of the country to live in!
 
I'm devestated for our homeless population. There are many deaths related to the cold this past week.  Some homeless people are actually being found dead in their shopping carts from being burned alive and not able to get out.... They try to warm themselves with candles and end up catching their blankets on fire..... It's hideous. I bought some fleece remnants from Walmart yesterday and cut 40 scarves from the fabric.  I'm taking them to one of the shelters.  We have 5000 homeless people in Calgary.  The two shelters we have will accommodate about 1500 people.  It's a crisis here.
 
I hope your pipes don't burst again!  That must have been  horrible. Your weather sounds divine!!!! 40 or 50 degrees!!!! Oh, I can only wish for that right now.  We're about -30 today.
 
You keep warm too!
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/21/2008 8:56 AM (GMT -7)   
Ginny, try to stay warm. Last night and today the temperature is dangerously cold - the news is broadcasting to people to stay indoors if at all possible. The windchills are -30 to -40F. Yuck!!!! Tomorrow is not supposed to be much better and I want to finish getting the last few gifts on my list so I'll have to bundle up.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 12/21/2008 10:04 AM (GMT -7)   
It is only -7 to -10 below today and we had a little snow last night.  The wind is pretty strong but the sun is out and I will probably go snowshoeing in the nearby woods despite the cold.  Just another test to see if my raynauds can tolerate the cold.
 
Despite my disabilities I continue to enjoy the winter and was able to return to skiing last winter.  I enjoy every cold moment. 
 
I know I am different from most in this respect but my attitude has always been to enjoy whatever nature hands me.  That attitude of adapting has helped me cope with the awful things that have happened to me in the past 3 years and made a recovery possible.  Life is good no matter what the weather.  When it is warm I play golf....when it is cold I ski.  When it is cold and rainy I admit to just perservering for "better" weather.  However, if I lived in the northwest I would head to the coast to do some serious storm watching and hiking.
 
Hope everyone is well and no one has power or other weather related problems.
 
Merry Christmas.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 12/21/2008 10:23 AM (GMT -7)   
Bill,

I've always loved your positive attitude and know how much that contributed to your healing.

Merry Christmas to you too.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 12/21/2008 12:23 PM (GMT -7)   
Thanks Patty.
 
After going out and running an errand I decided not to snowshoe today.  The temps aren't that bad but the wind has increased to 40mph and is blowing the snow around so it would not be much fun.
 
Have a Merry Christmas and stay healthy and warm.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 12/24/2008 8:51 AM (GMT -7)   

Hi! Everyone,

I live between Lake Erie and Lake Ontario, and boy, do I hate, HATE the cold. This fall was extra damp, and we have had recent snowstorms where I swear, my joint pain and weakness is worse the night before a storm and believe that changes in barometric pressure really are connected. I am starting to think I could bet on it! cool


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 12/24/2008 9:29 AM (GMT -7)   
Enjoyed the snow storm (not so much the driving) in IL/WI yesteday and went skiing with my grandson.  Even though he is a racer he has never skied the type of snow we had yesterday and I think he developed a new respect for old gramps.  First time since getting sick that I have skied in really tough snow conditions and it was a good test of my strength.  It was as close as we can get in the midwest to western blizzard conditions and I now feel ready to ski out west.  The snow reminded me of what I have skied in the Sierras and Cascades.
 
Warmer today and we will have rain (yucckkkkk) after Christmas. 
 
I still have problems with raynauds and keeping my fingers (toes are OK) warm but I think I have it pretty well figured out how to deal with it.
 
The best thing when you have a chronic illness is to keep your dreams and try to find a way to live them...even if in a modified fashion.  These are the things that we dream about and wake up thinking....our raison d'etre.  I try to put any negative thoughts aside and when a new challenge arises meet it head on.  I will give ground but not until I know that I really cannot do something and not let anything stand in my way. 
 
Merry Christmas and a Happy New Year to all,
 
Bill
 
 
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 

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