QT Is it normal to feel so cold??

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dunny2
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Date Joined Jan 2007
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   Posted 12/19/2008 4:23 PM (GMT -7)   
Since being dx with lupus, it seems I'm suffering badly with feeling cold. Even with the heat way up I'm still shivering uncontrollably!!
I was really just wondering if this is normal amongst you guys. This is all so new to me, and I find I'm suffering with new & different
symptoms more or less on a daily basis. I've tried to research things, but it all sounds so confusing...

Is this all in my mind... Help
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Ides
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Date Joined Nov 2003
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   Posted 12/19/2008 8:43 PM (GMT -7)   
Are you running a fever Vicky? I ran a temp of 99.5-110.5 for almost 3 months straight. It was one of the main things that got everyone really looking at what was going on with me. The fever preceded the swollen and inflamed joints, mouth ulcers, and fatigue. Also, have you lost weight recently? The more weight I lose the colder I get. My house is a comfortable 71 degrees. Everyone is dressed in jeans and tee shirts. Me, I have on long underwear tops and bottoms. I have a total of two layers on the bottom and three on the top. And I am finally not cold. hope you feel better soon.
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CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


omega
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Date Joined Jan 2007
Total Posts : 607
   Posted 12/20/2008 3:49 AM (GMT -7)   
I would agree with Ides. Are you running a fever? I am also very sensitive to cold, and if I have cold drink or gets too cold, I will shiver too. This will go away when I have a hot drink or when I stay in a warm environment. I always have to wear clothes to keep me warm. However, cold and uncontrollable shivering for a prolong period may indicate you have an infection. Please consult your GP or PCP.
DX SLE 1988; Pred 10mg, Verapmil 40 mg bd (for migraine headaches), Omerprazole 40 mg,  Calcium + Vitamin D 1200mg, Folic Acid 5 mg


puccini914
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Date Joined Jun 2008
Total Posts : 363
   Posted 12/20/2008 8:28 AM (GMT -7)   
That's been one of the problems I've had.  I get sooooo cold in the winter, but then come summer I just can't tollerate the heat.  My ideal room temperature is about 68.  The cold makes my joints hurt worse then normal, but the heat brings up the rash and headaches.  At least my headaches are down to about once a week as opposed to three to four times a week.  I got a pair of those footed PJ's.  I was so jealous of my kids because they always look so snuggly and warm, I keep soft gloves in the pockets and drink coffee all day long. 

Jennifer

PCP DX Lupus and Fibro, Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Homeschooling Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 12/20/2008 1:38 PM (GMT -7)   
Thanks for your replies. My temp will run between 98.7 to 99.9. Then it'll nose dive to the 96's & 97's. I think maybe it's
this fluctuation that's causing the problem...
It's good to know that I'm not the only cranky one going around the house in 2 sweaters then maybe a cardigan on top, I
even keep my shoes on indoors, because I'm too cold for my slippers.
The worst part is when I go to the bathroom, just having to pull down lower garments start the shivering sequence. I guess
I'm becoming a poor old gal!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 12/20/2008 7:02 PM (GMT -7)   
Vicky,
When i'm anemic I can't tolerate the cold. Another thought I had when you mentioned you can't tolerate the heat either is you thyroid...have you had that checked lately? That can affect temperature intolerance. Just a thought! Judy

hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 12/21/2008 8:53 AM (GMT -7)   
Vicky, another thought I had about the cold is Raynaud's. I don't know if your doc has mentioned it or not, but you could look it up online and see if the symptoms match yours. Raynauds mainly affects the hands and feet.

My temp runs crazy with lupus too. Sometimes I have a fever and other times it dips really low into the 95's and 96's. I notice I feel rotten if it's low of high.

I hope your doctor can help you figure out why you are having a hard time with the cold. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
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Bsime
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Date Joined Apr 2006
Total Posts : 1299
   Posted 12/21/2008 10:07 AM (GMT -7)   
Vicky,
 
Lupus and other ai diseases are systemic and screw around with our body thermostats.  First I was too warm and then cold.  If you have raynauds that does not help with the cold.  Keep in mind that raynauds can affect far more than just your fingers and toes.  If you are less active and more sedentary that is also a problem. 
 
Lots of things can impact your body heat regulation. 
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 12/21/2008 2:41 PM (GMT -7)   
Thanks again guys. Isn't all this learning fun LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

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