speaking arabic mainly, looking to creat a new circle

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morocco
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 12/20/2008 1:03 PM (GMT -7)   
hi everyone, i've been diagnosed with lupus for about 5 years, i've seen all the ups and downs, from fluid retained in lungs, to removal from brain. i've been on prednisone since day 1, i started with 20 mg, up to 80 mg, down now to 10 mg. my blood pressure never was under control until recently, because of the new medication(hydroxichloraquine), my blood pressure and blood sugar are finalely fine. but last thing i need right now is paranoia, confusion and imaginations. my doctor suggested to creat a circle of freinds that are familliar with the disease. but my only problem is i communicate better in arabic. so i will be very thankfull if there is any moroccan or arabic person in here to talk to, to join me and help each other.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 12/20/2008 4:00 PM (GMT -7)   
Hi Morocco. I don't know of anyone on our forum who speaks arabic, but I'm glad you found our forum. You will find that the lupies here are always willing to listen and help any way they can. I'm certain no one cares if your spelling isn't correct. We care about people like us and we all support each other. It doesn't matter if you have a question or just need to vent. We are always here to listen. This past year I was up to 60mg of prednisone a day and I know how awful it feels. I also take medication for blood pressure and blood sugar every day. Taking all the meds sure get old, doesn't it? The confusion and brain fog really make things worse. I hope you continue to tell us how you're doing. Welcome to our forum! Love, Butterflake  

Systemic Lupus ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS 
 CellCept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin,
actonel, tylenol arthritis, neurontin, phenegren,
flexeril, multi vit, C, flaxseed oil, acupuncture    Welcome to lupus where the strange is ordinary and nothing is normal :Donna
 
 


morocco
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 12/20/2008 4:44 PM (GMT -7)   
thank you for your warm welcome, little introduction about myself. i'm 31 years old, from morocco ofcourse, i live in US NEW JERSEY. I had couple of operations already. First, had fibroid removed from uteress, then cyst a year later. removed fluid from lungs twice, and again from my head this year, from around the brain, i'm still recovering, unable to walk on my own, lack of balance. like i mentioned before, i suffer from paranoia probably from years of using prednisone. but i'm thankfull for the use of hydroxycholoquine, my blood pressure and sugar undercontrol . paranoia is killing me, nobody can understand what i go through. hopefully i can vent here and find some ears to listen.
thank you very much for your support.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 12/20/2008 6:28 PM (GMT -7)   
Hi Morocco. Are you on any other lupus medications besides hydroxychloroquin and prednisone? The paranoia must be terrible for you- not knowing who you can trust. Do you take medication for it? I take the psychiatric drugs: prozac, wellbutrin and seroquel. I consider my psychiatrist one of my most important doctors, but lupus effects everyone differently. There is usually someone here on the forum that has been thru what you have and there's always someone who understands. You have been thru so much! I sure hope you improve soon. (((Hugs))) Love, Butterflake 
Systemic Lupus ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS 
 CellCept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin,
actonel, tylenol arthritis, neurontin, phenegren,
flexeril, multi vit, C, flaxseed oil, acupuncture    Welcome to lupus where the strange is ordinary and nothing is normal :Donna
 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/20/2008 6:58 PM (GMT -7)   
I wanted to welcome you to the forum.  Friends are so important and you will meet so many awesome people here.  I wish we could speak arabic so you would be more comfortable, but I must say, you are doing a great job of communicating in English!  I'm impressed!  Sorry you've been through so very much.  I had the problem with the paranoia.  It can be scarey and frustrating to say the least!  When you know what it is it is somewhat easier to deal with.  God Bless you, Judy

morocco
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 12/20/2008 7:11 PM (GMT -7)   
i haven't tried any medic for paranoia yet, my first appointment with psychiatrist will be next month i hope. i will see what he has to say.
 
how is your diet?
i try stay away from fatty food, no fast foor or what so ever, i lost alot of weight--18lb
how old are you butterflake?
what city are you from?

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/20/2008 7:48 PM (GMT -7)   
Hi Morocco,
 
I have to say that your english is very good! I have absolutely no problem understanding you.  If you hadn't said that you prefer to communicate in arabic, I wouldn't have known otherwise! 
 
Paranoia is very common in CNS lupus.  Do you have that?  it's amazing how terrific some of the anti depression medications are in helping paranoia.  I have a little paranoia which really is an anxiety or panic attack for me.  I am a bit paranoid about my health issues.  I'm taking Zoloft and have been on it for 2 months now.  It's turned my life around!!  I don't have anxiety or panic attacks anymore.  No more paranoia either.  I'm so much happier.
 
I'm glad you're seeing a psychiatrist.  That is really important.  Congratulations on losing 18 pounds!  That's a big accomplishment when you're on prednisone.  I just lost 10 pounds myself!  I am eating better.  No fast food, and more fruits and vegetables. It feels good!
 
Talk with you soon,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


morocco
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 12/20/2008 8:23 PM (GMT -7)   
hi ginny,my english is bad my husband try to help me to have friend because his busy every day i stay home alone, he just started it for me, now i have to take over.

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 12/20/2008 10:08 PM (GMT -7)   
Hi Morocco,

Welcome, we're glad you have joined us! I agree with the others, you're english is very good, if you mis-spell some words, don't worry about it, it happens to all of us. What matters is that you are here with friends who can relate to your issues!

I too suffer from anxiety, I never had any issues of this type prior to lupus affecting my brain and CNS. It is horrible isn't it? It has really depressed me on top of made me feel ancie and just real unsure about myself and other people. I have taken Effexor XR for many years for my Fibormyalgia, little did I know that I would also need it for mental issues as well. My doc also put me on Xanex to assist with the anxiety, because it hits me worse at night than any other time. The Xanex really helps me shut my mind off and go to sleep.

I look forward to getting to know you!

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 12/21/2008 6:42 AM (GMT -7)   
Hi Morocco. I'm so glad your husband helped you find our forum. If you don't understand a reply or word, just ask and someone will help you. I think Ginny is about your age. I'm 51 years old and live in Atlanta, Georgia. I had to quit work so now I'm home too. I really think you will find the psychiatrist a big help. Great job on the weight loss! I wish I could do the same. (((Hugs))) Love, Butterflake  

Systemic Lupus ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS 
 CellCept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin,
actonel, tylenol arthritis, neurontin, phenegren,
flexeril, multi vit, C, flaxseed oil, acupuncture    Welcome to lupus where the strange is ordinary and nothing is normal :Donna
 
 


morocco
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 12/21/2008 8:36 AM (GMT -7)   
thank you butterflak,I feel happy when i see my friends,all the persone have the lupus are my friend,I had quit work 2005,what you eat in breakfast every day.
love morroco.

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/21/2008 8:45 AM (GMT -7)   
Hi morocco and welcome. As you can see we have a wonderful forum and a great group of people here. It's great to be able to come to a place like this and not feel so alone when dealing with all of the struggles of living with lupus. I'm glad your husband helped you find us and I'm glad you joined the forum.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



morocco
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 12/21/2008 10:30 AM (GMT -7)   
thank you hippimom2,now im not feel alone,I had vey good group of people .how olde are you? how is your diet?what city are you from?

morocco
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 12/21/2008 1:22 PM (GMT -7)   
thank you melissa d,I'm not feel alone,I had very good group of people,what city are you from?how is your diet?

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 12/21/2008 1:39 PM (GMT -7)   
Hi morocco, and welcome to our group of friends. We are like a little family. I'm 59 and from Oklahoma. For breakfast I eat a little fruit and gluten-free ceral. I find that keeping gluten out of my diet helps me feel much better.

There are people of many ages here but we are all friends and we all help and support each other. How long have you lived in the US? Has it been hard living in a foreign country? What do you do during the day to entertain yourself?

I'm happy that you are here and hope you will find some comfort among friends.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 12/21/2008 2:17 PM (GMT -7)   
I am the only man on the forum that I know.  Have lupus, polymyositis and scleroderma.
 
Lupus can have a profound neurological impact and cause psychological, cognitive and memory problems.  Prednisone can also and it would take a psychologist or psychiatrist trained in the subject to determine which caused the problem.  If it is prednisone you should gradually return to normal in time.
 
Here is a useful link that might help you understand just how much can happen with lupus and how complicated the disease can be.
 
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 12/21/2008 3:40 PM (GMT -7)   
Hi Morocco

I live in San Angelo, TX. I don't have much of an appetite at this point due to the meds I am on. Between the effexor, xanex and imuran I truly am having to force myself to eat. I try to eat well when I do because I am struggling with energy issues. So, I include plenty of fresh fruits and vegetables, I don't eat much meat and very, very rarely eat out.

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/21/2008 10:19 PM (GMT -7)   

Hi Morroco, I just wanted to say hello and welcome to the group. I hope you can get through this with us. I was born  and raised in the u.s. and still can't write. tongue . The only other place I could think of is if you try "yahoo answers" if you go to the site and look at the list of different countries you might find someone that speaks your language.

 Oh I live in ok. too. same as Patty, and my diet is terrible. half the time I don't eat then other times I eat stuff like banana bread. I drink way to much pop and way to little water.

take care

carol


 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 By his Stripes we were healed.
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/22/2008 9:42 PM (GMT -7)   
Hi Moroco:

I wanted to offer up my welcome to the forum too. I'm Barb and I've had lupus for 21 years. I'm 43 and live in Maryland. I also have Rheumatoid Arthritis, Fibro, and smoldering leukemia. My diet varies as my stomach doesn't work properly and I spend most of my time vomiting up what I ate. I'm on 30mg of prednisone and feel as if I'm starving to death most the time.

I have issues with depression and also see a therapist. I do not take anti depressant drugs though, I try to handle my depression with therapy.

There's a bit of information on me, looking forward to seeing more of your posts.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Post Edited (Barbara Lee) : 12/23/2008 7:30:23 PM (GMT-7)


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 12/23/2008 1:55 AM (GMT -7)   
Hi Morroco
Welcome! I am not a native also. I have lupus for almost 20 years. I had it when I was a teenager. I also have spinal problem which is caused by TB and now I have to walk with a cane. I am glad that I can walk and no need to use wheelchair anymore. I also have antiphospholipid syndrome secondary and so I am on warfarin for life. I used to live in Atlanta, GA, but now I am in UK doing my PhD. It's very cold in UK, and I do not like it here. I am on 10 mg Pred, and I had been on and off on cellcept. The Rhumty wanted me back on cellcept, but I just had a bad infection and the surgeon stopped it. I could not take hydroxcholoquire nor azathiropine, so cellcept is the only drug that I can tolerate and can control my SLE, beside Pred. This is a very good forum with lots of good people.
DX SLE 1988; Pred 10mg, Verapmil 40 mg bd (for migraine headaches), Omerprazole 40 mg,  Calcium + Vitamin D 1200mg, Folic Acid 5 mg


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 12/23/2008 9:43 AM (GMT -7)   
Greetings Morroco! Welcome to the HW family! I do not speak arabic but some of the children in my school speak arabic or Spanish. I work in an area of Michigan where we have a large population of arabic families. I just started in my new job here last August and I am learning a lot about the arabic people and their customs. I just love the children and the families seem so supportive of the school and the teachers - very respectful!

I hope you feel welcome here at HW and that you can have your questions answered. We have so many helpful members. I am 47 and I have been treated for lupus and RA for about four years now. Currently I am on 5 mg of prednisone, along with many other meds, and I hope to taper off the prednisone completely very soon. My diet is terrible but I have good intentions. The prednisone has caused me to develop bad habits and I still crave anything with sugar. For breakfast I eat cereal with skim milk and have a cup of coffee. I try to drink a lot of water but I really only want diet cola to sip on all day - I need the caffiene to keep up with my 500 students!

Welcome!
Prayers,
Audrey Ann
Lupus, RA, and (Maybe) Fibromyalgia and LOTS of Medications!
 


 


morocco
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 12/25/2008 11:41 AM (GMT -7)   
merry chrismas everyone. Thank you very much for the warm welcome and your support. My wife is very happy to have you as friends, she talks about you by names, butterflake, ginny and more.
she doesn't write much because of the language barrier. she seems that her memory is not as it used to be, its like you hit the resest botton, went back to the native language. now she is rebuilding what she has lost.
thank you again .

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 12/25/2008 11:56 AM (GMT -7)   
We all understand the part about loosing language - it's a pretty common issue with lupus. Most of us have times that are very forgetful -- for a while I had to use just 3 or 4 letter words, I couldn't remember anything else, it seemed. Plus loosing what you're saying in the middle of a sentence, or loosing the whole topic of a conversation while still in the middle of it! So loosing a second language sounds pretty darn normal to us!

If you don't understand what we say, please feel free to ask - I promise you can't hurt our feelings!

So very glad you found us!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 8mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


morocco
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 12/25/2008 7:35 PM (GMT -7)   
i am still leaning about lupus, i always thought she has these symptoms because of the fluid and a head surgery. everytime she fucuses on something too long, like trying to figure something out, her mind gets tired, and gets depressed right the way, and paranoid, she is not on any meds yet, because she has to see the doc first, and hopefully everything goes to normal. does it happen to you to check the internet and follow up with the new medics, there is promises you hear about now and then, but we don't know how long will take for the process to finish.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 12/26/2008 3:06 PM (GMT -7)   

Hi Morocco and husband! Have you checked the Lupus Foundation of America website? www.lupus.org it is very helpful. Memory loss is very, very common in lupus. We call it “brain fog.” It is so common that sometimes we all joke about the stupid things we do. It can be frightening and sad to think about the things lupus takes away from you and I’m sure you are very sad too. We all go thru times when we miss our old life- all the things we used to be able to do.  Just seeing your improvement taking hydroxichloroquin (brand name plaquenil) makes me think that you’ll do well with other treatments too. I hope your doctor is a rheumatologist. These are the doctors that treat lupus. A rheumatologist will start you on other medication which will help you eventually take less and less prednisone (this is called a prednisone taper). Here at the forum many of us list the drugs we take in our signature. I think the most common drugs are plaquenil, methotrexate and imuran. If you are feeling sad or frustrated, please let us know. Sometimes just talking about it helps. Love, Butterflake


Systemic Lupus ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS 
 CellCept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin,
actonel, tylenol arthritis, neurontin, phenegren,
flexeril, multi vit, C, flaxseed oil, acupuncture    Welcome to lupus where the strange is ordinary and nothing is normal :Donna
 
 

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