Help! Relative in ICU/ lupus related illness

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tosca23
New Member


Date Joined Dec 2008
Total Posts : 3
   Posted 12/27/2008 9:25 PM (GMT -7)   
Hello,

I am new here. I am looking for any information anyone may have regarding Lupus and lung inflammation. My husband's father is currently in ICU and docs are trying to figure out what is wrong with him. He has had lupus for many years and they think it is related.

He was admitted last weekend and progressively got worse. Now he is being kept alive on a ventilator. They say all his organs/including his lungs are in fine condition, but something is keeping his lungs enflamed. They are doing a biopsy on Monday. No one seems to have ANY idea what this could be. They gav him steroids for three days but no improvement yet. He developed a staff infection from the IV but now that is under control, too. He is not improving and they can’t keep him on the ventilator for much longer. Even moving him to do the biopsy could kill him.

I'm sorry if I seem completely clueless, that is because I am with this. I just want to find out as much as a can. The docs can only do so much.

Any ideas???

Thank you

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/28/2008 8:02 AM (GMT -7)   

Hi Tosca, I'm sorry to hear about your father. Lungs are something that gets inflammed alot with lupus so that wouldn't surprise me. Hopefully it is just taking a little longer for the steroids to take effect. It usually takes about a week of iv steroids to turn the corner. I know it's frustratng to watch someone like that that you love but the ventilator really is helping him right now. Hopefully someone will come on that can give you some advice. We usually are faster at responding but the weekend after christmas has things a little slower than usual.

I'll be praying for your family

hang in there

carol


 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 By his Stripes we were healed.
 


tosca23
New Member


Date Joined Dec 2008
Total Posts : 3
   Posted 12/28/2008 9:10 AM (GMT -7)   
Thank you for your reply, Carol. He took a turn for the worse and now has 12 hours to live. They are giving him a last treatment, butit may kill him, as well. It really sucks to feel so helpless. I can't do anything. But thanks for your kind words.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 12/28/2008 10:15 AM (GMT -7)   
Tosca,

I'm sorry we didn't have any answers for you but you certainly have our sympathy. I hope he's not in any discomfort and that the doctors are doing all they can to help him. Please let us know how he does and how you're doing too.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


tosca23
New Member


Date Joined Dec 2008
Total Posts : 3
   Posted 12/28/2008 8:10 PM (GMT -7)   
Hello, Thank you so much for your responses. Here is an update:

He was given a 10% chance of surviving this morning. They gave him a chemo drug that could either help him or just as likely kill him-it is that toxic. But they had no other choice. They are now waiting to see the results. He is still clinging to life. This just happened so quickly.

I know now that my own research isn't going to do much, but it made me feel like I was doing something. I'll let you know if there are any updates. Thanks!

Heidi

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/31/2008 4:54 PM (GMT -7)   

Hi Hiedi, I don't know if you are still around but I was wondering how things were going?

God bless

carol


 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 By his Stripes we were healed.
 


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 12/31/2008 7:37 PM (GMT -7)   
I'm so sorry.... I hope he is better...
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