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Jenny S.
Regular Member

Date Joined Oct 2007
Total Posts : 80
   Posted 12/30/2008 7:38 AM (GMT -6)   

Hello all,


I have been experiencing knee pain - thought I had a fracture or a bone spur.  But my PCP did a knee x-ray & everything is normal.  I'm wondering if this could be Lupus related & a possible joint inflammation?  I have good days & not so good days.


Thank you in advance for any feedback.




I have Lupus ... Lupus doesn't have me. 

Dx: Raynaud's(2000)·Lupus(2001)

Rx: Pletal 100mg·Norvasc 10mg·Prednisone 5mg·Plaquenil 400mg


Regular Member

Date Joined May 2007
Total Posts : 474
   Posted 12/30/2008 9:42 AM (GMT -6)   
Sorry to hear about your knee pain! I can totally relate. With the temps jumping back and forth between 5 degrees and 65 degrees in just a day or two, my knees have felt ready to explode. I must admit that I've been eating more salty stuff than I like and that isn't helping, either!
Hope you feel better!
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 12/30/2008 11:22 AM (GMT -6)   
Hey Jenny,
The best tests to figure this out are MRIs or Bone Scans.  I had a bone scan last summer to rule out rheumatoid arthritis.  I had joint pain everywhere.  The bone scan came back totally normal. So no inflammation was present at all.  Turned out the joint pain was actually my Fibromyalgia.  Pain in the muscles/tendons/ligaments that surround the joints.  The pain feels like it's right inside but it's not!
I'm just wondering if all your tests come back normal, including a normal sed rate, you might have Fibromyalgia.  Do you get aching, burning pain in any of your muscles?  Do you get joint pain that moves around quickly and doesn't settle in one place for very long?  Your rheumy is the only one that can diagnosis this.  I'm just thinking out loud!!
If it's lupus causing this, you'll likely have an elevated sed rate and your knees will be swollen and red.  Do they look and feel like that?
I hope this helps.  A little brainstorming can go a long way.  Let us know how you do okay,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Melissa D.
Regular Member

Date Joined Aug 2008
Total Posts : 330
   Posted 12/30/2008 5:05 PM (GMT -6)   
I too get knee pain and all too often my sed rate is within the normal range, it always baffles me because my knees are killing me! They hurt deep down and feel like I am walking bone on bone, but as Ginny says (she's so smart) it must be fibromyalgia, as they have also ruled out rheumatoid arthritis here. Winter has got to be the worst for joint pain, and I don't know about your neck of the woods but here in TX, the weather has been down right crazy. One day it's 80 (like today) and the next it's 29. I don't know how to dress and the barametric pressure is killing my body.

Here lately I wish they made battery operated heating pads, it's about the only thing that gives me any relief!

I hope you are able to find some relief soon Jenny, perhaps you rheumy can help narrow down what the pain is associated too.

Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 12/30/2008 8:20 PM (GMT -6)   
Jenny, I get a lot of knee pain too and it gets worse as my lupus gets worse. Sometimes it's so bad it can be hard to get up from a chair and it can be painful to walk. My knee pain came several years after I got sick, so it was not always there.

My pain gets better when my lupus is more under control. I hope your doc can help you with the pain.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined Oct 2007
Total Posts : 184
   Posted 1/1/2009 7:50 AM (GMT -6)   
I have knee pain also with my Lupus... My knees swell up and I can't bend them... and then I have another type of pain too.. This has been one of the hardest parts of my pain..
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