back home from the holidays

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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/30/2008 6:40 PM (GMT -7)   
I hope everyone had a nice holiday.  I just got back from staying with extended family out of town for the past few days.  I had a rheumy appointment today, so we left my dad's house this morning for the four hour drive to my rheumy and then home after that.
 
My rheumy wants me to increase my prednisone up to 20mg for a week and then do a gradual taper from there.  He could tell from his exam that I'm not doing well.  My butterfly rash is really red and I have a rash on my ches and arms and my joints are swollen and inflamed.  I know the increased prednisone will help, I'll just have to try to ignore the moon face.
 
I was feeling kind of down about my lupus, but then when I read about the more serious things that so many of you are going through, it made me stop and cound my blessings.  I'm sure after some rest and my increased prednisone, I'll be feeling a lot better.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 12/30/2008 8:08 PM (GMT -7)   
((((HUGS))))

Feel better, soon!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


kncb95
Regular Member


Date Joined Jun 2007
Total Posts : 40
   Posted 12/30/2008 8:19 PM (GMT -7)   

Hippimom you are right I will also try to be thankful that I am not worse off!

Thanks for the inspiration

Feel better soon

-Kasey


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 12/30/2008 8:22 PM (GMT -7)   
Hippimom,

I'm so glad you are back from your holiday safe and sound, we missed you! Also, glad to hear you had a nice Christmas, it's good that you got to spend it with your family. Traveling can be so rough can't it? Four hours in a car, Ugh! If the increase in prednisone will help you feel better and it's only for a week, heck go for it. So, what's a little moon face, we'll have to start a new trend or breed of our own right? hehehe.

Winter can be rough period on the skin period, then you add lupus into the mix and heck our skin is really whacked. I'm sorry to hear you've been down, I hope you get to feeling better soon.

Here's hoping we all have a much healthier and less painful 2009!

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 12/30/2008 8:41 PM (GMT -7)   
Greetings Hippi! I can certainly relate to your difficulties with travel! I just returned home from family visits over Christmas on Sunday - we have about a five hour drive. The trip does a number on my inflammation, too. My rhuemy has had me on prednisone for about three years now and she wants me to taper off ASAP. I am now down to 5 mg per day but it is really hard since my ankles, knees, and fingers just ache so much.

My rhuemy just started me on Sulfasalazine yesterday (I had an appointment the day after we got home from our travels and I was quite swollen) and has me tapering my prednisone to 4mg of prednisone for two weeks, then three mg for two weeks and then 1 mg for two weeks and then off. The new med - Sulfasalazine, - is supposed to take the place of the prednisone. Have you ever heard of such a thing? I am now wondering why I wasn't on the Sulfasalazine instead of prednisone in the first place?

Anyway, my symptoms are not as severe as yours seem to be and I will keep you in my prayers. I mention the new medication in case you want to ask your rhuemy about it if you want to eventually taper off the prednisone.

Please keep up with some good pampering of yourself! You deserve it!
Prayers,
Audrey Ann
Lupus, RA, and (Maybe) Fibromyalgia and LOTS of Medications!
 


 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 12/30/2008 10:21 PM (GMT -7)   
I'm so sorry, Hippi, that you're not doing well. My battery just beeped & my computer is about to go off so I'll write more tomorrow.

How was your Christmas? I know your kids had a ball and I hope you were able to enjoy the holiday even though it sounds like you've been feeling real crummy.

Happy New Year Hippi,

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 12/31/2008 8:46 AM (GMT -7)   
Hi Hippi! Glad to have you back. Did your kids have a good Christmas? I'm tapering my pred 1 mg per month and I'm now down to 6 mg. Last summer I had to take 60 mg a day for a couple of weeks- talk about moon face! My rheumy has me on Cellcept, partly to help taper my pred. I hope you are able to rest and feel better soon. (((Hugs))) Love, Butterflake 

Systemic Lupus ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS 
 CellCept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin,
actonel, tylenol arthritis, neurontin, phenegren,
flexeril, multi vit, C, flaxseed oil, acupuncture    Welcome to lupus where the strange is ordinary and nothing is normal :Donna
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/31/2008 9:25 AM (GMT -7)   
Hi Hippi!
 
I think once you get through this initial phase of treatment you'll be feeling so much better. I understand why you're feeling down about it though.  Having to increase your pred and deal with the moon face, etc, is really hard.  Brings your spirits down a notch or two, or three.....
 
I hope you had a nice Christmas too. We're glad you're back.  You were missed!
 
Lots of love
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/31/2008 10:01 AM (GMT -7)   
Thanks everyone. I just took my 20mg of prednisone a few minutes ago, so hopefully I'll feel some improvement today. My kids did have a great Christmas and watching them have a great time made my Christmas a good one too. During all of the traveling and staying with relatives I took my hydrochodone regularly so I could function okay and try to be around family instead of in bed all the time.

My husband's workplace shuts down for about 10 days over the holidays, so it's been great having him home, so I can rest when needed. he's going to work on taking the decorations down today and I can help if I'm feeling up to it.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/31/2008 4:58 PM (GMT -7)   
Hi Hippi, wow great to hear from you. Even if you are feeling well. I miss seeing your name pop up on here. I hope the pred starts to work for ya and you get on your feet soon. It seems you been sick alot of the winter so far. I know you were looking forward to cooler weather. I hope you start feeling better before it gets hot again!
love you happy new year!
carol
 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 By his Stripes we were healed.
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 12/31/2008 6:50 PM (GMT -7)   
Hi Hippi, glad you're back!!!! I hope the pred kicks in and really starts working for you! Keep taking good care of yourself until you get out of this flare! hugs to you!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 12/31/2008 11:07 PM (GMT -7)   
Hi, again, Hippi! It is nice to hear you are resting and not overdoing it. The final days of the Holiday season can be almost as busy as the Holiday festivities and preparations! Your hubby sounds wonderful for giving his support during his time off!

Hopefully you can bring in the new year without much pain and with your flare under control! The 20 mg for a week and the taper after that should not cause too much of a moon face! If I am dealing with "pudgy cheeks", I try to "hide" it with a dark bronzer that I use as rouge. This seems to hide the puffy cheeks and looks like a shadowy tan. Just don't make it look too dark or it will appear that you have a bruise on each cheek - yikes! LOL, I hope this isn't what mine looks like now that I mention it to you!

More prayers coming your way!
Prayers,
Audrey Ann
Lupus, RA, and (Maybe) Fibromyalgia and LOTS of Medications!
 


 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/1/2009 8:11 AM (GMT -7)   
I took the 20mg yesterday morning and felt a little weird in my head all day and then at about 7pm last night I felt really hyper, but luckily I was still able to get to sleep. The think I've noticed the most so far is a decrease in my pain. I didn't have to take any hydrocodone yesterday. This morning I'm in some pain, but I'm sure my prednisone hasn't kicked in yet.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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