Post Edited (kncb95) : 12/31/2008 6:34:48 AM (GMT-7)
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I don't have a lot to add either Knbc95. i was unable to find a support group in this area. Even google gave me nothing much, I did find this one woman in my area, on Myspace, who has lupus.
But as someone already said, this forum is a support group for us. Might even be better than if we were physically in each other's house or an office.
How are you? What did you do to keep the home and friends? your car and home, do you still have it? you maybe have more strength than you realize.
Can you share what you did to keep you to this place that you are today? Other people's stories seem to help me a lot. It is good to know that I am not in his boat all by myself. any time you need to speak to us, we can be there for you. and my email address will be available if you wish to send me an email.
I don't do well on the phone. do not not talk well on the phone, and I can no longer sit long enough to talk on the phone.
Hope this day will be better for you
Sorry you are having so many problems. I participate in a Lupus support group in the Chicago area but the Lupus Foundation has several active groups in the Dallas/Ft Worth area.
Are you asymptomatic? The description of weakness and fatigue would indicate that your disease is very active and not being controlled properly. Lupus can have a neurological impact that needs treatment with med to control lupus. Just treating depression is only treating the symptoms, not the cause. You are not taking any controlling meds and that might be a problem if lupus is causing or contributing to your depression issues. I would take the approach to talk to others in the support group...call the leader(s) and find out which one seems like the best for you. Our group has some very experienced people who have been able to help many over the years.
I would also recommend finding another rheumy in your area who is experienced in treating lupus.
Hope you can get things under control soon
Hey Bill Kasey,
Just treating depression is only treating the symptoms, not the cause.
No wiser words have ever been said according to me. I think I have truly been misdiagnosed sometimes in depression, and never treated the real problem. I could be wrong of course. I am trying to get my rheumy to do an MRI to see if I have more white matter than I had in 2000, when the first stroke happened to me. If I do have more white matter, (lesions on my brain) than symptoms of depression could have been increased because of this white matter. I am just guessing of course, but I definitely believe that Lupus causes the depression. There may be hundreds of people with depression that could be caused by Lupus.
It is my findings that many people presented themselves to thier doctor, like me, who had a host of symptoms. One of those symptoms was/is depression. It is my understanding that some people have a host of symptoms and a good doctor could see that the person could have Lupus, so they get tested. But I would bet that most go undiagnosed for Lupus, and do not get treated for Lupus.
I apologize Kayse that I seemed to have gotten my words lost again in my post to you. Rereading my post to you, I could see my mistakes. I try to reread them again, but messed up somehow. I am guessing that maybe Lupus caused this last stroke. I could be wrong. but my echocardiogram heart was good, and my corotid (spelling) arteries were good, so what caused it? Do I need to get prednisone again? don't know. I certainly do not wish to weigh over 200 pounds again, but I would like more relief, especially from depression. but maybe the damage has already done by my brain, and I couldn't get relief anyway.
Here I go again. Still wanting to vent, still wanting to list my own pain and problems.
Hope the day finds you in good spirits Kayse.