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Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 1/1/2009 3:31 PM (GMT -7)   
hello all and happy new year. I'm beginning to notice a trend with me, I always get the most horrible symptoms on holidays and weekends.

anyway, I posted last week that I have a great new rheumy. he gave me 8 cortisone injections. I felt great! past tense I cleaned house a little (not much) and made a big pot of home made chicken soup on Tuesday. but by the afternoon, I could not even roll the noodles. my upper arms were so week. I had to get it done so I kept pushing myself, finally I had to just chunk up the dough and through it in. then I noticed my arms were numb. from elbow to shoulder. After about a half hour the numbness turned into pins and needles. then I got the muscle burning and deep itching I had when I first got "sick" in May.

overnight I woke up twice sopping wet from sweat and shaking all over uncontrollably - not cold just shaking violently. today I made breakfast and half way through my daughter had to get me a chair. I was sweating and shaky and dizzy and very weak. I took a nap and feel better but my hands are trembling horribly.

I also feel in my arms and thighs like they were beaten. also I have pain in my sides at my belly botton height could this be adrenal?

I saw the thread on Myositis and some of that applies to this as well, the jelly legs and arms for instance. but ????

I don't know if I should call my dr on a holiday or wait

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/1/2009 4:59 PM (GMT -7)   
Yikes, that does sound awful.  I wonder if you were given too many shots?  Too much cortisone in your system?  I have no idea.  But the shaking and sweating is so profoundly a steroid reaction.  I get that way when I'm on too much pred.
 
Go with your gut instincts on this.  If it's feeling too weird and you're starting to panic, then call someone. Don't live with your symptoms if they're too much to handle.
 
Let us know how you make out okay,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 1/1/2009 7:33 PM (GMT -7)   
I don't know how much pred they gave me, but I do hope that is all it is. do you know how long that would take to wear off?

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/1/2009 9:39 PM (GMT -7)   
Were the injections straight into the joints? If so, it will last a while (differs with each person), but you should notice the bad side effects diminishing each day. That is, if this is a cortisone reaction. It really sounds like it is. 
 
How are you doing tonight?  I really think if you're still feeling like this tomorrow, a trip to a walk in clinic might not be a bad idea. Just to be safe.
 
I'll check in on ya tomorrow okay?  I'm just about to hit the pillow!
 
I hope you can sleep comfortably. ((((((((((hugs)))))))))))
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/2/2009 9:28 AM (GMT -7)   
I'm sorry you are feeling so rotten. IT sounds like it might be a good idea to call your doc if your still aren't feeling well since your symptoms sound pretty bad.

I usually get worse around the big holidays too because it is just natural to have more to do and then I almost always overdo it and end up flaring...

Let us know how you are doing - I hope you are feeling at least a little better. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 1/2/2009 2:27 PM (GMT -7)   
I feel better today. I think I was panicking as well as having the reaction. but Tuesday night was the worst of it (I hope at least) and while I feel very weak and a little shaky, I am feeling hardly any joint pain! woo hoo! my muscles are very sore, but with the joint pain gone, I felt like I could really get some things done. I just need to pace myself I guess.

I am starting water therapy next week and I am looking forward to that.

Thanks so much for your replies. It made all the difference in the world, just to have your advice and comfort.

Marie

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/2/2009 2:31 PM (GMT -7)   
Hi Marie,
 
I'm glad you're feeling better today.  I know that when I have a panic attack, I get some crazy symptoms that mimick a stroke.....Good grief.  So if you can realize that it was from panicking, good on you! 
 
Yes, pace yourself. Even when you feel well, take it easy! Have fun with your water therapy next week!  Sounds relaxing!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 1/2/2009 2:57 PM (GMT -7)   
Thanks Ginny, I called my Dr. and he said almost the same thing you said. and that the panic feeling was due to the cortisone, because that is what our body releases in an emergency, so my body was going through all those reactions.

Plus I was doing too much. try telling my dh that! "what did you do exactly?"
Marie- 44, mother of 6 (2 girls 4 boys ages 13 - 24), maw maw of Lilith Claire (2) and Braiden Joel (due in March 09)

dx 2008 - "some" autoimmmune disorder, myelofibrosis (not progressive), osteoarthritis in spine, Bursitis in hips. positive ANA, elevated Sed Rate testing for possible MS or CNS lupus / vasculitis. family history - mother RA, Lupus, fibromyalgia maternal gma - lupus.

rx-cymbalta (trying to get off this), prednisone, Trazadone, Etodelac, progesterone cream,
Supplements - b6, b12, flaxseed oil, C.


"I wish this hadn't come to me" ... "So do all who see such times, but that is not for them to decide -all we have to decide is what to do with the time that is given us."" ~ Gandalf

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