I thought maybe I need to create a new subject so that we don't get off topic in the other email.
Thank you for your response.
I get aggravated to all my doctors. they don't pay for the gas in my car, and they have no idea how hard it is for us to sit in their lobbies, while we wait for hours to see them, and when they want us to go for the tests for this and that thing, while they ignore the symptoms. I can do two doctors each month, and if they want tests, that is two more trips. And if all this rheumy does is tell me how sick I aint, because I do not have all 11 of the symptoms of Lupus, then what good is he?.
I appreciate all the disability payments that I get, and i appreciate medicaid and medicare, but they just do not realize how hard it is to live on the small amount of money some of us get.
I also appreciate Plaquenil, but I can get this from my regualar doctor.
I do realize and understand the diagnoses that is required by some insuarnce companies. but I do not have that same kind of insurance.
One of the question asked me by my rheumy, was "How long does it take you get not stiff?" I don't get stiffed. What the *&%^ is stiff. I have pain in the mornings. worse when i get out of bed, when I sit at my computer it is very painful, and hard to get up off the chair, can't go up an down stairs, etc etc etc. He is using a word that some other patient used, and eliminated me as a Lupus patient because I am not stiff. I can raise my arms above my head, but it hurts.
I am thankful that they diagnosed me with Sjogren's. I would not have thought to tell my doctor that I have very dry eyes that hurts my vision. Nor would I have thought to tell him about the very dry mouth and very dry skin. But I had mentioned to my eye doctor about my dry eyes. they told me to get some otc eye drops. but the blood test tended to alert the eye doctor, not my voice. Not my telling them that I have this or that symptom.
If not for the blood test for Lupus, there would not have been other symptoms that I could tell to the doctors. But my doctor did not help me with these things. all of you taught me this.
Ok. I have ranted and raved enough. It is sure good to talk to all of you. Hope the new year will find you good things. We could carry this card or ID bracelet, that the blood test were positive, and it says we do have lupus symptoms, and these are the things they need to concentrate about us. we need to tell the rheumy that his pledge for this New year reslotion is to listen better and not assume that they know what is wrong with us, even if it disagrees with what we say.
Lupus diagnosed 1996, Fibromyalgia diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008, Stroke 11-4-08
aspirin, multivitamin, Arthrotec , Meclazine , plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid, Amlodipine, Crestor, Lasinopril, Plavix, phenagrin, Restasis