Waiting for ANA but I'm worried-symptoms

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tele
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/2/2009 11:15 PM (GMT -7)   
Hi to all,

I have had this rash on my back for a few years, itchy, little bumps, red and patchy. Somedays my back is completely clear and then the next day it's awful.
I've had sore knees for sometime but in the last three months it's been terrible to the point of having trouble going up and down stairs. My hands ache at the wrists and finger joints. Sometimes I can barely straighten up.
I had this red patch on my face at my jaw that was red and scaly that wouldn't go away so I went to the doctor and had it burned off thinking it was pre cancerous.
My sleep has been just awful. Sometimes I only get a couple hours of sleep a night. If I do sleep it's only for a couple hours and then I'm wide awake. I get up for an hour and try again. Sometimes I get back to sleep but only for a couple hours. I've been getting headaches probably due to lack of sleep.
I feel fatigued all the time, I have a house that's being renovated and i just can't get the energy up to get over there and work on it.
I was out in the sun and had this rash break out all over my body. I thought it was just a heat rash.
Anyway, I went for bloodwork. My cholesterol is up but I'm not anemic. I am currently waiting for the results of an ANA test and thyroid test.
Now, my wife is an emerg doctor and she's the one who ordered the blood test. She said since we're getting your bloodwork done let's just throw in an ANA test. I asked her what for and she said lupus, why not, we're doing bloodwork anyway? She was very casual but that was a red flag for me so I've looked into symptoms and now I'm worried. I know she was casual but I think she's suspicious but doesn't want to say until she knows for sure.
Anyway, I'm just looking for someone to release my worries a little. If it is lupus then I'll start doing what I have to do to make things better but it's the worrying that's hard. Is there anybody out there that can help me????
I'm just worried that the symptoms for lupus have been missed, like the itchiest rash on my back, the red scaly patch on my face (the size of a dime) and what started as knee joint pain????

Thank you all so much, I appreciate the help.

tele
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/2/2009 11:26 PM (GMT -7)   
I forgot to mention that when I sleep I can't have my legs touch each other or I sweat profusely. My hands and wrists ache constantly as do my knees.
I aslo forgot to mention that I've been really stressed the last 6 months because my wife and I split up and I've been renovating the house.
My wife and i are back together now so the stress levels have dropped. I am stressed about our split still even though we're back together and things seem fine.
Now, I do have a nodule in my thyroid too. I wonder if it could be hypothyroid?? I am constipated alot. I am cold all the time. My memory hasn't been too good either.
49 years old, female

Post Edited (tele) : 1/2/2009 11:46:08 PM (GMT-7)


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/3/2009 9:44 AM (GMT -7)   
Hi Tele, welcome to the board. It sure sounds like you've been through a lot lately. I hope you get some answers soon.

I don't know much about the rash you are describing or the sweating but I am sure there will be others that come along that will be able to help you with that. As you have probably read, lupus is sometimes difficult for doctors to dx. They usually look at labs, family history, symptoms, etc and over time they are able to put all of the "pieces" of the puzzle together. In addition, they also refer to a criteria list, usually if you have at least 4 of the 11 they will consider lupus. Lupus is a disease of 1000 faces, no two people have the exact same symptoms and it is very important that you find a rheumotologist that specializes in lupus to receive proper care and treatment. Since your wife is a nurse hopefully she has knowledge of such doctor.

Here is a link to the list:

www.lupus.org/education/topics/outcome.html ** towards the bottom of the page**

here is another link that lists different lab test that help dx lupus lupus.webmd.com/laboratory-tests-used-diagnose-evaluate-sle

If you do find a good doctor that will listen to you and take your symptoms serious. You may not get a dx on the first, second or third visit but hopefully they will have enough info to start treating some of your symptoms. Some of the meds used to treat lupus take weeks / months to really get in your system and begin to work where you can notice a difference. Fatigue is usually a symptom we all suffer from, you will have to learn to listen to your body and rest when needed. That was one of my most debilitating symptoms, it got my doctors attention and he ordered an ANA which came back positive, that was in early 2004 and I was dx a little over a year later but I saw 3 different rheumy's during that time. Sometimes, that's what it takes and we will do whatever necessary to find out what is wrong with us. We know our bodies better than anyone so listen and trust yourself, don't let anyone dismiss you or your symptoms by telling you it's all in your head or stress.

If you feel a nodule in your thyroid you need to have it checked out as soon as possible. I will give you the same suggestion I did my husband, go to a specialist, an Endocronologist, they will examine it and possibly do an ultrasound and / or biopsy. This is not something you want to ignore. Some nodules can turn out to be nothing to worry about (i.e. a goiter that is controlled with meds, which I have) or something that needs to be removed which may or may not be cancerous, my husbands was cancer and had to be removed along with the lympnodes under the thyroid.

Hang in there and keep us updated on how you are doing. Take care
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Post Edited (jhmom) : 1/3/2009 9:49:14 (GMT-7)


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 1/3/2009 4:03 PM (GMT -7)   
Hi tele and welcome. I'm sorry to hear about your health problems and I hope that you get some answers when the bloodwork comes back. I'm glad your wife thought of doing an ANA along with the other stuff. A positive ANA does not neccessarily mean that you have lupus. A positive ANA can be present in other autoimmune diseases also, including some thyroid diseases.

It sounds like even though your stress is less than it used to be, there is still stress with the renovatio and stress or too much exhertion can make symptoms worse too.

I was like Stacie and went finally got my answers with my 3rd rheumy after several years of being sick. It can be very frustrating to feel sick but to have no answers. Hopefully your wife might know of a good specialist for you to see once the bloodwork is back.

Feel free to ask any questions - all of this can be overwhelming. We are a very supportive group and it's nice to have a place to come where people understand what you are going through. Take care and I hope you'll keep us updated on your labs.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



tele
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/3/2009 4:13 PM (GMT -7)   
Thanks to all of you. I feel kind of guilty. Here I am without even a diagnosis and I'm posting to all of you who have real diseases and issues that you must live with daily.
I apologize for whining when I have no reason to yet.
I just need to relax and wait for the test results that may show nothing is wrong but stress. I appreciate all of you for reading and responding. I will follow up with the results.
Hugo
49 years old, female


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 1/3/2009 5:57 PM (GMT -7)   
Tele,

Please do not feel guilty, as the reason for these message boards is to allow people to ask questions and search for answers. We are here to support one another, just because you do not have a diagnosis does not mean you are suffering or ill. Please continue to join us, perhaps if nothing else you can find peace in knowing that you are not allow in your pain. Having others who can relate brings great peace, I know it has for me anyway.

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/4/2009 8:03 AM (GMT -7)   
Tele, you are more than welcome here and do not ever feel guilty for posting your worries ar anything that is going on with you. THere are other people here in diagnosis limbo and many of us were there for years without a diagnosis. I spent almost 3 years in diagnosis limbo and I wouldn't have made it through some of that without all of the support I got here. I personally think that being in limbo was one of the worst things I went through with my illness - it really does a number on your emotions.

Please post whenever you want to. We are here to support each other and this is one of the best places to come when you really need support and understanding.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



tele
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/4/2009 8:51 AM (GMT -7)   
Thank you all for your kindness. It means a lot to me. I am still waiting on the results of the testing for lupus and hope to find out today about thyroid results. My cholesterol is up and I think that is another indication of hypothyroid.
We'll see. I wish the best for all of you and I truly thank you for your support.

Sincerely,
tele
49 years old, female


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 1/4/2009 11:14 AM (GMT -7)   
Tele,

I so identify with what you're going through. As far as feeling guilty about posting here, don't. I needed this forum more before I was diagnosed and during the first couple of years after my diagnosis than I do now. Hippi's right - the stress of not knowing is the worst stress that I went through. And I had some of the exact symptoms you do -- painful hands, wrists, and knees, unbearable, unexplainable fatigue, and an allergy to the sun. Your wife obviously cares about you because she's searching for answers to your problems. So many people have unsupportive spouses who don't believe anything is wrong. Fatigue is misunderstood as depression, etc.

Please stick around and let us help you as best we can. I'm anxious to hear about the results of your ANA test.

Hang in there.

(((((Hugs))))

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


tele
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/4/2009 11:37 AM (GMT -7)   
Pattylatty, thank you for your kind email.
I did get the results of the thyroid and nothing is wrong there. Still waiting for the ANA results but the wife doesn't think there's a problem there. Maybe she's just staying positive for me? Or maybe she truly doesn't think I have the symptoms for lupus or any other autoimmune system problem?
My wife is a doctor, not a nurse so she will be able to get whatever tests i need done. I still have to go thru my family doctor but she can at least suggest things to my doctor.
I'm fortunate in that regard. I have such sympathy for people who have health problems and have no one to turn to. I'm very lucky.
I don't care what the test results show, there's something wrong. A person doesn't just start getting finger,wrist,thumb ache and knee ache to the point of having a hard time getting up the stairs. The knee pain and hand pain has woke me up in the middle of a sleep. My sleep changed at the same time. Some nights getting 3 hours, some 4 or some a little more but it's always broken up. I'm awake every two hours. That's not normal. I've been taking 2 tylenols/1 ibuprofen every 6 hours for about a month now. If I don't, I can barely straighten up, it takes awhile moving to be okay. Something is wrong and i'm afraid people are going to start thinking I'm a hypochondriac (sp?).
I just don't want people/family thinking I'm imagining things.
Thank you so much for your support. I never thought I needed anyone but I feel like I sure do now.
I can't thank you enough for your support.
How are you doing? What are your main health issues? Tell me about YOUR day? You must need to talk about it once in awhile and I'm a darn good listener.

Tele
49 years old, female


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/4/2009 7:34 PM (GMT -7)   
Hello Tele!
 
I'm a bit behind in welcoming you to the forum! What you're doing is actually really good.  Getting information, bouncing ideas off others, and knowing your symptoms will get you further much faster.  So I'm glad you're here!  Ask any and all questions you need to okay!
 
One of the main symptoms that got my doctors looking at AI diseases and Lupus in particular was that I had a horrible case of eczema on my face and neck.  Your description of the rash you have sounds just like eczema, or psorisis. Eczema/psorisis are autoimmune.  So if you end up finding out you have either of those skin rashes, it's an AI issue.
 
Let us know what your ANA test results are okay. 
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


tele
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/4/2009 8:07 PM (GMT -7)   
Ginny, thank you so much.
I didn't realize that the rash was an AI issue. Thanks for the info.
The only thing is it seems different then what's described for lupus. My rash is red, blotchy, itchy (all the time except for the days it completely clears up) and scaly but with tiny little whiteheads all over. It's on most of my upper back. I find it so weird that I can have it so bad one day and get up the next and it's completely clear. I've had it for a few years now. I never bothered to get it checked out, don't ask me why?
My wife seems to think it's just inactivity that's making my joints ache. I don't believe so cause it all came on at once. Sure I've had sore knees but to wake up from the pain and to have sore wrists and finger joints. To have to take ibuprofen and tylenol every six hours is not normal for a 49 year old. I do hope she doesn't think I'm being a hypochondriac? I do worry that that's exactly what I'm being??
What I haven't told you is I've been sick for 6 years but this has nothing to do with this issue. I was smoking pot every now and then and then I became chronic. I woke up one day with unbelievable pain in my upper abdomen. I had to go to the emerg. I was put on IV, was given tests and lots of morphine to get rid of the pain. Once I got the morphine, the pain went away and I could go home. That started happening every month along with constipation and vomiting. The vomiting became so bad that it ended up just being acid.
I went to doctor after doctor and had test after test. No one thought it could be the pot and I had been totally honest with my doctors. This went on for 6 years until last december when a new doctor (due to moving to a different city) suggested that I try quitting it because you just never know. Well, she was bang on. It had been getting so bad that it started making me feel awful every day. I'd get this pain that would come on at any time. Every single month in the emerg.
I'm happy to say that that part of my life is over with. I quit and will never go back. I missed out on so many family functions. My world became very small. I started to not even wanna go out. I used to get in the shower and sit in the tub and put the water on so hot that I would burn my back and get blisters. That pain would over ride the pain I was getting from whatever was causing the problem. Sounds silly but it kinda worked. I also would be up at three am until 8am just trying to feel better. Trying to go to the bathroom, sitting in the shower. Every day for 6 years. I can't believe I didn't kill myself cause it was just awful. The pain would be so bad in my abdomen that I would put my finger down my throat just to stop the pain. The retching actually stopped the pain for a couple minutes. When an attack came on I'd be in bed awake for a few days vomiting until I went to the hospital and got pain medication. Sometimes my potassium would be so low that I'd be given some in the hospital. I'd get the attack and try to get over it. I'd be sick for a day or three just vomiting up acid until I got fed up and went to the hospital. The attack would not go away until I went to the hospital and got pain meds. Once I got the morphine it would stop.
We went to Paris one year and i spent the first 5 days awake in my room with the attack. Thank god we had medical insurance cause I ended up having to go to the emerg and get morphine to stop the attack.
I do remember contemplating suicide because life was just that awful. I started having less and less good days.
I must say it was hard to quit and it took several attempts but I did it.
My doctor is going to write it up in the Journal of Medicine because nobody knows that pot can cause this issue. My wife has since had a couple people come to emerg repeatedly with the same problem and they also smoke pot.
Now I'm beginning to wonder if I have some other issue that the pot made worse and that's why I had all that problem with pot. It's not a common occurance and it certainly isn't documented that pot can cause that.
I don't know...my bowel movements changed. I had to push cause I had no feeling down there to know if I had to go or not. After a couple months of quitting all the problems went away with the one exception of constipation.
I do know that I'm tired, tired of it all. Six years of my life gone over pot. If I had known I would have quit right away. Instead I felt sorry for myself for being so ill and used the pot as my reward because it was the only fun thing in my life. Talk about doing the wrong thing???
Now, I'm just starting to wonder if there's an underlying problem there that connects all of this???
Again, thank you so much for the support, it means the world to me. I'm feeling kind of alone and worried. Don't get me wrong, my wife is the best and I adore her. I just don't want to come across as a big baby who's needlessly worrying. She had to go thru all of that with me so I'm kinda worried about putting even more on her already burdened shoulders.
I mean she's a doctor and her life is stressful enough with that alone.

Again, thank you, thank you, thank you.
tele
49 years old, female

Post Edited (tele) : 1/4/2009 8:15:21 PM (GMT-7)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/4/2009 9:22 PM (GMT -7)   
Hi Tele,
 
It took a lot of courage to speak out and tell us your story. I admire that a lot. I'm sure your wife has looked at your rash.  Did she ever mention eczema or psorisis to you as a likely diagnosis? If you google those terms and look at images, is that what your rash looks like?
 
There is one particular AI disease that involves psorisis.  It's called Psoriatic Arthritis. Google that term as well and take a look at the images.  Do any of your fingers or toes look deformed?  Are they bending in odd directions or is there any rash on your fingers or toes?
 
I have lots of questions, sorry!! LOL.  Are you seeing a rheumatologist?  Who ordered your ANA test? 
 
I have absolutely no experience when it comes to talking about marajuana, etc.  But I wonder if when you first started smoking, it masked any pain you were having?  Or did the pain come on after you quit?  I guess there are lots of scenarios we can wonder about
 
But that's all in the past.  You need to focus on what's happening right now. I hope you get your results back soon. If it is positive, you should get a referal to a rheumatologist if you aren't already seeing one.  They specialize in rheumatic diseases like Lupus, Fibromyalgia, Psoriatic Arthritis, Rheumatoid Arthritis, etc.
 
I hope this helps Tele. Have a good night,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


tele
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/5/2009 1:05 AM (GMT -7)   
You're so kind. Actually, the only reason that took a lot of courage to tell is because it makes me feel like an idiot. How did I let that into my life. Trouble with that stuff is, it's not near as innocent as people think.
Due to the vomiting, I have had four teeth break off right at the gums. The acid broke the enamel down. I never smile with my lips open because of it. All is good though cause I see someone this week to get implants. I've never had nice white teeth so it will be a nice change and I'm sure I'll feel better about myself.
My wife ordered the bloodwork but she's making me followup with my own doctor.
She has no idea what my rash is on my back, I need to go to a dermatologist. No, I have no issues with deformed fingers. toes etc. The rash is strictly on my back. Funny, I've put up with the itching for a few years and have never bothered to do anything about it. I guess I was busy dealing with the other issue that the rash was basically insignificant.
If that ANA test comes back negative, I'll be floored. Cause I don't care how inactive a person is, it's not normal to have to take ibuprofen/tylenol every 6 hours or to be waken up with joint pain, not at 49. Also, the way the pain came on and the no sleep....
I guess I just have to wait and see. In the meantime I'm going to start walking tomorrow and start losing weight. I'm not huge but I'm a good 50 lbs overweight.
Ginny, thanks so much for your concern. You are a kind person and just so you know, you have made a difference just by responding. That goes to all of the people who took the time to email back. You all have so much to deal with yourselves and you still took the time to care about someone you don't even know.
I can't thank you guys enough. I'll update you when I get the results back.

Tele
49 years old, female


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 1/5/2009 9:28 AM (GMT -7)   
Tele,

Have you checked out the Lupus Resource page? Go the the main lupus page and you'll see it at the top. It has some great information as well as suggestions for what to do before going to the doctor. Having a written journal with your symptoms will help you be prepared to talk to a rheumatologist. I do hope your regular doctor will refer you to a rheumatologist, whether or not your ANA comes back positive.

So many of us spent years searching for answers. It can be so frustrating, but in the end it's worth the trouble to find our what's wrong with your body. You'll hear many of us talk about how many rheumy's we went through to get a diagnosis. It took three rheumy's and about 20 years for me to finally find a rheumatologist who listened to me and took my complaints seriously. Others get answers right away. Don't despair. We'll hang in there with you as your go down this journey. Joint pain can be anything from osteoarthritis to something more serious. One of the secrets is to find a rheumatologist who will listen to you and talk to you in terms that you understand. I would think that being married to a doctor can certainly help.

Nearly all of us have felt like hypochondriacs. I'm lying in bed right now having trouble getting up, (and it's 10:30 in the morning) and knowing that this post is a disjointed ramblng, but mornings are a b@#@$ for me. When I wake up I hurt, my mind is a fog, and I feel exhuausted for two or three hours. It makes me feel like I'm just lazy, but I'm not - I really feel awful. By mid day my body starts to act like it's old self again.

Thankfully my hubby understands. But it took a good three years for him to finally get it. It helped to take him to the rheumy with me for a couple of appointments so he could get the real story. Your wife will understand better than most.

We're all glad you've joined us and hope this forum continues to help.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


tele
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/5/2009 10:38 AM (GMT -7)   
Do you know what Pat, I'm really glad I joined all of you too. I really am. Just talking with you has put my mind at ease a little.
I did talk to my wife last night when she got home from work. I told her that I don't care what the results show, something is wrong. I know my body, especially after going through 6 years of hell.
She told me that once I get the ANA results back I have to book an appt. with my family doctor to get a referral to see a rheumatologist. I guess the one we have here in Sarnia, Ontario sucks!
So, I felt so much better because at least she takes me seriously and doesn't think it's all in my head.
I'm sorry you had such a bad morning and that mornings are so bad for you. I wish I could help because I hate seeing people in pain, as we all do I guess.

Thanks, try and have a good day and I'll update you when I know more. Please remember that although I'm new to all this, I'm hear if you or anyone just needs a sympathetic ear.

Tele
49 years old, female


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 1/5/2009 11:16 AM (GMT -7)   
Hey Tele,
 
I apologize for getting back to you concering your post.  I am glad that you found us, and it seems you are getting some good advice from many of us.  This is usual.  unusual sometimes for me.  My mind does not think well during the days when the bad stuff happens. 
 
Only two good days happened this time, and eventually I find myself unable to walk up steps, walk to the mail box, exhausted finding to wash dishes.  My ability to think decreases a lot, when the bad days started.
 
your wife loves you.  and even if she  is a doctor, she can still be in denial.  sometimes  our famiy and friends loves us so much that denial is thier only response.  It is not easy I think for those that love us, to deal with Lupus and other ailments that we have.  so denial is like a relief to them.
Hope that the blood tests can give you the information that you need.  It is hard to not know.  but as you said, even if the blood tests does not indicate Lupus, it does not do the anything for the symptoms.  And others who are here, have lupus, but never get a positive blood test for Lupus.  Surely your wife knows this too.
 
Hang in there, and you have some really good and knowledgeable here in this forum.  My mind is not good today.  i wish I could respond to you better.  but who knows in a few weeks I will be in good days again.
 
Hester
Lupus diagnosed 1996, Fibromyalgia diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008, Stroke 11-4-08
 
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aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

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