Post Edited (okie) : 1/3/2009 3:47:50 PM (GMT-7)
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Co-Moderator: Lupus and CFS Forums
Thank you Melissa, Yeah that list is quite overwhelming. I appreciate your thoughts and prayers. I'm sorry you had such a rough time and penny's. Hopefully the summer months won't be as hard on you as the winter. It seems to work that way.
Please don't ever feel funny about talking about your breathing or anything else that is going on with you. You know it's not just a matter of weather you think it's a valid complaint or not. You are not just discussing what is going on with you. You just might have somthing to say that will help someone else. You have no idea how many times I have read some off hand remark that someone made on here just to have the flash on! We help each other in ways that we don't even know when we join together and share what's going on.
Besides if you can't walk through the store without getting exhausted that is your body saying yeah Mel somthings wrong! Pay attention. I don't like that you are having theseproblems breathing. Have you seen a pulm? I can't remember. I trusted a reg. pcp with my lungs for 6 years. he said I had asthma. I went to a pulm. and he said throw out those meds you have copd. Your lungs are shot. Every time you get bronchitis penumonia anything invovling your lungs you do more damage. Damage that never heals.
LOL sorry I am jumping off the soap box now.
God bless and thank you for the prayers
Thanks everyone, I appreciate all of you. Donna I know the feeling of exhaustion from the breathing problems. in fact I have it right now. I have to lay down. I just wanted to give a quick shout. I will right more later.
Patty That would be great! I do have 4 people who want to go down there. Which the paper said I really needed all those who will support me. I know you will so please don't let that stop you. They are just my family and care giver. My caregiver and my brother is as goofy as I am. But the more support I have the better I'll feel since I will be to nervous to remember anything. Plus I know if they do run test I will be down there several times. I just pray to God I don't have Lupus in my lungs or that a high ANA won't stop me. If you want I'll tell my family to stay home lol. I'd rather meet you. I see them every day. I'm invisioning setting in class throwing spit balls. LOL
well I'm so tired I'm goofy,dopey and doc all at once.
write more later
love ya guys
Patty, good I'm glad the thought of them being there doesn't make you not want to come. I don't know how much help they are going to be. They said they want to be there. i have a sister that lives in florida that is my power of attorny should something happen. I asked my SIL to send her a fax from work of all my papers. She said she really didn't want to send her the papers because I had a DNR in there. It's not up to her. Anyway you will meet them. But my bro is cool and my health care worker helps keep me sane. But yo are the only one that understands what living with the autoimmune problems is like. You have been 1000 times more supportive to me. The last time we went to the doctor together I took them out to lunch afterwards and we got into a fight because she didn't like my attitude with my doctor. (that was a big help) . I'm just praying they get it this time. You will be a great support system for me that day.
Ginny if we get into trouble down there I will just blame it all on Patty. LOL. Thanks for taking up the mod job. I know you have a lot of your own problems and you are taking on a lot.
Hey Donna, if you don't have any improvment with walking after a couple of weeks you should probably talk to your pulm again. As for my emmotional well being I guess it just depends on what day it is. I know it's missing with my sleep. since it's 2 am and I didn't sleep last night either. dah lol. I get angry, I get sad, I get incredibly lonley sometimes and other times I just want to be left alone. As I said before dying doesn't scare me living like this scares me. I am greatful that this winter hasn't been as bad on me as the past 4 years. I think the permanent anti -b's are helping keep infections down. I also think the plaq. made a HUGE difference in my life. I'm going to start my diet tomorrow and start going to the gym tomorrow. even if I can only do 5 minutes working on my upper body strenth. There's no way I can do the tread mill. I know what you were talking about with the chemically induced test. Making your heart beat fast. That's a weird test isn't it?
Hey Melissa, Yeah that breathing test is a pain. Litterally. All my muscles hurt afterwards. and I needed a nap. I'm glad your dr. is taking this serious. Just remember the squeeky wheel gets the grease. Ya know the worse thing you can do is ignore it until it gets worse. I'm really interested in hearing your test results. Did you go in the machine that looks like a phone booth and take meds in between? or did you just blow into a machine setting a a table? Or was it at a hospital? You can have right side heart problems if your lungs get bad enough. I have what they call stiffening of the right side of my heart because it's hard to pump blood into my lungs. So I take inderal to slow down my heart beat and nitro spray if I get into trouble. Fortunately I have never had to use it. Oh I saw where you are 41. First of all I hate you! LOL . No just kidding but I wanted you to know I was only 38 when istarted having trouble with my breathing. That's why they didn't take it seriously. They still say I am way to young to have these problems and I'm 51. So I just said that because they will look at you as though you can't possibly have lung problems at your age. I'm here to tell ya oh yes you can! well I reckon it's bedtime again.lol