I have more pain in the morning time, but not too bad. the worst part of the day for me is afternoon and evening. I am exhausted by bedtime most of the time. Have some good days like a week or so ago, I had relative little pain, and not depressed, and things felt so good for two whole days. It was wonderful, than it started back up again. It starts with Diarrhea, and then the other stuff follows it. The diarrhea is not as bad as when I was having a major flare, but it does return. and it is down hill eventually.
Mornings I do better usually. and I do my emails then. Sometimes the depression gets so bad that I cannot do anything much at all. but when I have good days, the mornings are wonderful. Evenings are tired and hurtful.
I almost always do too much. Especially in the good days. I want to do stuff when the good days arrive so that at least I can get some stuff done.
But it sounded like me;) going overboard. gettinng these things done. Thanksgiving I was so sick and in so much pain, that I could only stay for an hour at my daughter's house. Christmas dinner was much better than thanksgiving. did the exact things both holidays. cooked green beans, corn, and potato salad and took them to my daughters house. Can't second guess this disease.
I hope you are getting some good rest, and can do better about not doing too much.
I know how you feel. My Fibro makes a mess out of me in the mornings and at night. I used to be able to get ready in an hour, but now I need almost the entire morning to just start feeling "normal". It's awful. I wish I had some advice for you, but I'm struggling too. We need a magic bean!
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Hi Pattylatty and all-
I sympathize with the morning pain and stiffness. I seem to feel it in my hands and feet also. But there is a couple of things that I used to do when I thought I only had fibro and am now doing with with MCTD and I am getting relief. Epsom salts baths (especially in a jaccuzi tub) and FIR saunas.
I bought the sauna a few years ago but stopped using it when I read that people with Lupus shouldn't use it, but I have read statements from Lupus patients that have had good results with it. I asked my Rheumy if it would cause problems and he felt it would be a benefit, and he is right. The heat is soothing, and I'm sure it aids the detoxification. The problem with me is consistency as I need to get into a routine and commit to this for several months to see the longstanding benefits.
If there are others who have used one of these, I would love you to share you experience with them.
Do you mean steam saunas or far infrared saunas?- I too can't tolerate the heat or steam of a regular sauna but I keep my fir sauna below 115F and with the dry heat I have no problems with breathing or tolerence
Hi Peaceful I an new here and have question regarding why I am nausea every morning and I run a low grade fever as well mostly in the mornings. I read your post and I think I may have an idea now as to what is gong on..While im asleep my body detoxes and I feel very ill in the am. Could this be possible. Like you said .."the body detoxes while at rest"..Could the toxins can fevers every morning for past 4 years. I have fibromyalgia and sjogrens
Take Care everyone..
Thanks I hope I wrote to the correct place