New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/6/2009 1:25 PM (GMT -7)   
I got a letter today that they are reviewing my SSI. I was hoping someone with more experience could help me understand how likely they are to pull it away after how hard and long a fight I had to get it in the first place. In some ways I am better and in some ways I am worse. In others I remain the same.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 1/6/2009 4:07 PM (GMT -7)   
I would get all my ducks in a row. Get in touch with Drs and get all your records and have Drs right letters saying you have not gotten any better and hilight those points not the ones you got better in..
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/6/2009 10:38 PM (GMT -7)   
I have 1 doctor who they will need to be in contact with who treats all my conditions. She can honestly say that despite adding provigil my fatigue level still requires me to sleep at least 12 hours plus 1 nap during the day. I probably sleep 14 or 15 hours every day. Activity really wears me out. I can do small stuff for an hour or so but then I have to rest- translation lay down. I see her the 19th. I hope they will take her word for it and not ask me to see their idiot doctor again.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 1/7/2009 8:21 AM (GMT -7)   
Sounds like you do have your ducks in a row. When you first got SSD did you have a Lawyer if so I would contact them to.
                   Good Luck 
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/7/2009 2:44 PM (GMT -7)   
I had a lawyer but I really would prefer not to deal with them again. I do have a letter my doctor sent to my school telling them I had to drop classes last semester due to neurological issues. Wonder if that would help?
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 1/7/2009 3:56 PM (GMT -7)   
any and everything will help.
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/7/2009 7:31 PM (GMT -7)   
HI Redrose,
 
The Canadian system is probably different, but when I had to apply for disability, I had to appeal twice before they accepted my application.  It was brutal.  What I learned was to never, ever tell them I was better (in any way, shape or form!) I had to make my case as pathetic as possible (which wasn't hard.  I was a wreck). 
 
I agree with Tink.  Anything you have that will make your case, send it to them. I think that letter you mentioned would be ideal.
 
Good luck. I know it's hard. I'll pray for you!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 3:17 AM (GMT -7)
There are a total of 2,733,406 posts in 301,114 threads.
View Active Threads


Who's Online
This forum has 151254 registered members. Please welcome our newest member, Amir5600.
185 Guest(s), 2 Registered Member(s) are currently online.  Details
gitane44, Stetsonva


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer