Is this Normal?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 1/7/2009 11:00 AM (GMT -7)   
Hi Everyone,
 
I need some advice, last night I woke up with a splitting headache, not my normal migraine, it felt different, can't quite explain it. I took some meds and tried to go back to sleep. Anyway, couldn't sleep very well, so I got up around 6am, which is way unusal for me. When I woke up my head was still hurting, I told my hubby, I just don't feel quite right, I'm gonna take some more meds and see if I can get rid of this headache, I don't want to take migraine meds because I don't have very many and they aren't as easy to come by, besides I don't think it's a migraine.
 
So, I got up read the paper and what not. Laid back down for a bit and just have been antsy. Got up to brush my teeth and get cleaned up and my legs started shaking while I was brushing my teeth! It was very strange and very noticable! I didn't think to much of it, went to put a load of laundry in and same thing. And as soon as I get up and start moving my head starts hurting even worse. I have never had this before.
 
Any thoughts?
 
Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/7/2009 12:27 PM (GMT -7)   
Hi Melissa,
 
What a bummer to be dealing with a headache that won't get lost! I understand the leg shaking thing... I get that too. I think it's our body's way of saying, "I'm stressed and if you don't watch it, I'll unleash THE LUPUS or FIBRO and make you really sorry."  I know that when I'm like that, and I have a headache that won't disappear, I need to cool it for the day. I actually felt like crap last night and knew I had overdone it.  I had a headache, and some weakness.
 
If it were me in your situation, I'd take the migraine med and see if it helps. If it does, but the leg shaking is still there, maybe a call into your doctor would be a good idea? If it's your fibro, there's not much you can do except rest.  I hate fibro. 
 
Overall, it sounds like your body is fatigued.  I get the leg shaking when I'm fatigued. Does it feel like your lupus or a fibro thing?  Hard to tell the difference?  How much pred are you on?  Feeling antsy might be a pred issue.  I was feeling that way on Sunday and I decided to taper down on my pred .5mg.  I'm fine now.  So much to consider isn't there... OY.
 
Take it easy today, regardless!  Go back to sleep!  Sounds like a good plan actually....
 
Keep us posted,
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/7/2009 1:09 PM (GMT -7)   
Melissa, if these symptoms continue, it might not hurt to call your doc, especially since this is something new for you. I would imagine that your body is about at the end of its rope right now and it's trying to tell you to stop and rest, but it's always better to play it safe whenever you get new symptoms.

I hope you got some rest and are getting some relief from your headaches. I have been having weird ones too that are a little different from the usual lupus headaches I've been getting. Take care and keep us updated.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/7/2009 1:30 PM (GMT -7)   
Hi hun, I agree with ginny and hippi your body sounds wiped out. When I've been in the hospital and they give me a shower I shake like crazy just beccause I'm too wiped out to stand up. I also hate to beat a dead horse but your breathing problems could have something to do with it. Were you having a tough time breathing when you were doing laundry or did you notice anything. Lupus is infamous for migraines but I'm not sure about the rest. I have had times when I get up in the morning I can't move my head because it pounds so bad. It usually goes away in about an hour. So to answer your question No it's not normal you need to keep an eye on it and see your doctor.
hugs
carol
 
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,Inderal
HE CALLS ME FRIEND!
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/7/2009 2:53 PM (GMT -7)   
Lupus headache and migraine respond to the same medication except lupus headache also responds to prednisone. I wish I could offer more assistance but that is the best I can think of. I would call your doctor because a bad headache like that which isn't like your migraines can also signal neurological involvement or even a stroke that has or is going to happen.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 1/7/2009 9:34 PM (GMT -7)   
Hello Ladies,

Thank you so much for your input. I took some meds and sleep much of the afternoon, I feel somewhat better, but still not up to par. I am really more conserned with the tremors in my leg than with the headache, oddly enough. I get massive migraines, and while this was not a migraine, it was or is (still with me a bit) an odd sensation.

On the leg tremor though, that's exactly what it felt like Carol, like when you are really really weak, like when you have the flu or been in the hospital and simply do not have the strength to stand and your legs shake. But I had no signs of being weak like that, I didn't feel "bueno" but not down that far, so when it happened it really threw me for a loop. Anyway, I'm beginning to wonder if the entire thing, headache and tremor isn't to do with the whole breathing issue.

I called my docs office yesterday to request the results from my tests (echo and pulm. funct.) since they had been on vacation and yesterday was their first day back. I told the receptionist to the doc and/or nurse I knew they were busy because they had just gotten back in the office, but to please call when they got a chance. Heck, they didn't call yesterday, so I thought, okay, no biggie they are trying to catch up, and no call today. So, I'm going to call again tomorrow. And seriously, if they don't call by 2ish, I think I'll go down there. I need some answers as to what is going on.

I have some other wierd things going on and it's making me crazy. I start thinking "heck Melissa, maybe this is all in your head, how can anyone person start having all these wierd symptoms all at once?" Too wierd.

Thanks for letting me ramble. As always, I appreciate you all more than you'll ever know!

Mel


Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

Post Edited (Melissa D.) : 1/7/2009 9:37:08 PM (GMT-7)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/9/2009 9:48 AM (GMT -7)   
Melissa, how are you doing today?  Any news about your test results? This isn't all in your head. We can have lots of weird and wacky symptoms happen all at once especially if our bodies are tired and we're in a flare up. Are you writing down all your symptoms so you won't forget?
 
Let us know what you find out.  Have a restful day!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 1/9/2009 9:59 AM (GMT -7)   
Good Morning Ginny,
 
How are you today? Hope all is well with you! I am hanging in there, still have a bit of a headache, but the leg tremors are gone, thank goodness for that. I have not heard from the doctor on my test results. I did call the her office and the nurse said she was consulting with another doctor on the comparing the chest x-ray to another one I had done in August as well as to a CT I had done then as well. They are also reviewing the heart echo and pulmonary function testing. I would have thought for sure she would have called me by now, but I guess it is taking longer to review than expected, I have no clue. That's probably part of my headache, I'm so antsy about that, and am still having such shortness of breath, especially upon exertion.
 
Here we are on Friday and if she doesn't call today, then I have to go all weekend again without answers. You all know how that is, it starts to wear on your nerves and your mind.
 
I do keep a journal with all of my symptoms, thank you for reminding me. I have too, my mind is so scattered without it. My husband used to get so mad at me, because I would leave the doc's ofc and say "crud, forgot to ask him ______" so, he made me get a journal and start writing things down. Now I take it to all my doctors appts., then I write down the important things from the visit too. It has saved me a lot of grief I assure you.
 
Thanks again for the support and I hope everyone is doing well today!
 
Mel
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 10:58 AM (GMT -7)
There are a total of 2,732,122 posts in 300,996 threads.
View Active Threads


Who's Online
This forum has 151159 registered members. Please welcome our newest member, webers.
248 Guest(s), 11 Registered Member(s) are currently online.  Details
Krimpet 🍔, Wdan, Michael_T, sararectenwald1, ChickNorris, rockyfords, Jingles1234, Kmuth, joee, MollieMae, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer