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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 1/7/2009 3:18 PM (GMT -6)   
I'm telling my story in hopes that this will help other people avoid what happened to me yesterday.
Somehow my meds got messed up and I didn't realize it for almost 24hrs.  I have been flaring and that means my brain fog and memory is also worse now, so it's easier to make mistakes.  Monday night I went to take my bedtime meds before bed and they were gone from the pill compartment, so I assumed I had already taken them and just forgot.  Then when I went to take my supper meds last night (Tues), my Monday night bedtimes pills were in with my Tues supper pills, so I had never taken them on Monday night. 
I kept wondering why I felt so sick yesterday and by the time I was getting supper ready for the kids, I felt really weak, had a nasty headache and some pretty severe tremors.  I was actually getting kind of scared.  My bedtime meds are neurontin and doxepin and neither one is supposed to be stopped suddenly, so I think my body freaked out on me.  I took the meds right away when I found them and then took a xanex and went to bed.  Although I'm still flaring, I don't feel nearly as sick as I did yesterday.
I realize now that I need to look at my meds in the pill box compartent before I dump them in my hand and take them to make sure the right ones are there.

Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Post Edited (hippimom2) : 1/7/2009 3:21:33 PM (GMT-7)

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 1/7/2009 3:33 PM (GMT -6)   
Hi hippi, thanks for the reminder we all need to be careful. I have taken my pills out to take with my coffeee and found them several hours later setting on the counter top! I'm sorry you are still flaring but I'm glad you got that straightened out. I know i get concerned about the xanax because I can't run out of that. It can cause seizures and kill ya if you just cold turkey.
get some rest
love ya
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,Inderal

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 1/7/2009 4:47 PM (GMT -6)   
I accidentally took my morning meds with my bedtime meds one night because I grabbed the wrong pill case thinking it was the one with my vitamins. Some of my meds are twice a day so I got double doses on a few. Thankfully none were deadly to double up on. The next day wasn't fun tho.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 1/7/2009 5:49 PM (GMT -6)   
Hippi- Thanx for sharing. I hope you feel better soon. Judy

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 1/7/2009 9:27 PM (GMT -6)   
Oh Hippi, I've done that too.  When I'm not "good in the head" or I'm flaring, I have a horrible memory and my ability to stay organized goes down the crapper.  Even with my pill box sorter!  I've been right where you were.
This is a good reminder to everyone to make sure you stay organized.  And when you're flaring or having brain fog, take extra note of when you took your meds!!
Hope tonight is clear sailing for you,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Moderator for the Lupus and Fibromyalgia forums

Forum Moderator

Date Joined May 2005
Total Posts : 6942
   Posted 1/7/2009 9:46 PM (GMT -6)   
Oy! So sorry this happened... It can really be bad when the meds get mixed up, not to mention dangerous. Can easily start a flare, so I hope you can get back to feeling well quickly.


Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 6mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex

Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

"Life is far too important to be taken seriously." –Oscar Wilde, 1982


Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 1/7/2009 10:59 PM (GMT -6)   
I'm glad you figured out what happened before you did it again! I sometimes take mine without being mindful of what I'm doing, or I'll do what Carol does and find them sitting on a counter hours later. Or I'll just forget to take them. Not good. You've done a good thing Hippi, by reminding us how important it is for us to stay on schedule and think before we pop them in our mouths!
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 1/8/2009 10:01 AM (GMT -6)   
I think my body is recovering from my med mix up. I felt pretty rotten by yesterday afternoon and went up to bed really early. So far, this morning I'm not doing too bad. I seem to be pretty sensitive to meds in general (I think a lot of us are) so anything different can really throw my body for a loop.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



Please allow HealingWell to continue helping others by donating:


Co-Moderator: Lupus and CFS Forums

Forum Moderator

Date Joined Jun 2006
Total Posts : 1533
   Posted 1/8/2009 10:18 AM (GMT -6)   
Gosh Hippi, if I wasn't lost in brain fog I might be able to count how many times I've screwed up my meds, but I doubt it. My BF says that considering how many meds I take and the adjustments docs make, he thinks that I do a great job. Still, it sure can make you feel like poo. I hope you feel better soon! Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, sleep apnea, hypertension, IBS 
 CellCept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin,
actonel, tylenol arthritis, neurontin, phenegren,
flexeril, multi vit, C, flaxseed oil, acupuncture    Welcome to lupus where the strange is ordinary and nothing is normal :Donna

Veteran Member

Date Joined Aug 2005
Total Posts : 590
   Posted 1/8/2009 3:58 PM (GMT -6)   
Hi Hippi and everyone,

As you can see I havn't been here for a long time. Sorry about that. I try. Man I have been messing up if I don't put my meds in the case. I messed up today I think as a matter of fact. My care taker wasn't sure if I had taken my meds last night because I had fallen asleep, no passed out by 830. When they checked on me to make sure I got to bed ok, it was midnight and I was lucky I could remember I had. I had not put my pills in the cases for them for the week to make sure. I am now back on my pain pills and I am starting vitamins again too. So I need to now keep track of how often I am taking my pain meds, which ones at which times so I do not overlap them too close together, ie the darvocet, tramadol, motrin, amitriptyline at bedtime to keep overdose down, and make sure I also take my supplements daily as well. What a night mare.

I know my rheumie even took me down off the baclofen due to worried I would not wake up and pass away with the amitriptyline and baclofen combo, as I told him I never took both and had backed off one of them myself due to that fear after deaths of actors had started occurring and I was scared of that before hand. I am thinking of having the pain meds in a pill case for the week of what I can take as an allowance and writing them down and if I need more than that I am kind of sol if that makes sense. That way it is written down, and I have to seek medical attention for it or suffer. LOL. It will also force me to pay more attention to how I have done for the week with my pain with activity levels so I can see how much I have taken for the week, etc.

Get better everyone,
sle 01 w/autonomic 11/05, photosensitive 04/04, sjogren's 01, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, multiple allergies 6/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06-gone, TIA 5/06, Porphyria 5/06, Vitamin D def 4/07, Iron def ferritin 8/07, Chronic migraines 01.Meds- baclofen 40 mg, prenatal tabs, potassium, calcitriol 50 mcg, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 400 mg, darvocet 100 mg, percocet 5mg, amitriptyline 10mg, chromagen, topamax 150mg,

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