mold/remodliing affect on lupus

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Date Joined Sep 2005
Total Posts : 2573
   Posted 1/8/2009 5:04 AM (GMT -6)   
So we are doing some remodeling and apparently my son's room isn't the only one with a mold problem. My bedroom has mold issues too. We had already planned to pull the carpet in our room but put it off because it was in good shape. Now I find one of my walls has to be pulled apart and treated for mold and the floor will likely have mold too. Add in the mold issue in the other bedroom and what I fear I will find when we redo the kitchen and bathrooms and you can see I am beginning to wonder if all the mold could have made me worse than I was before. Could all this mold have contributed to my flare? Does anyone have experience with mold and mildew encountered while remodeling and lupus issues? I can't move so we have to deal with the mold but is there anything special I should be doing? It's not the black mold that is so dangerous thank goodness but still it is mold and worse I am allergic to mold. Scary stuff to be dealing with. shocked
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept

Veteran Member

Date Joined Apr 2006
Total Posts : 1296
   Posted 1/8/2009 10:09 AM (GMT -6)   
Check this link out. It is a web discussion of lupus and environmental factors sponsered by LFA.  Basically, not much is known about the relationship between lupus and mold.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 1/8/2009 10:14 AM (GMT -6)   
Yes, the mold sounds scary. I have seen segments on the news about how mold in homes has caused health problems for healthy people, so I imagine it could be very bad for people who already have health problems. I don't know if I am remembering this correctly, but I think some molds can be worse than others, but any mold that gets into the walls and floors is not good. Something you could do in addition to talking to your doc is to talk to your local public health department and see if they know of the safest way to treat the mold withot releasing it into the air much.

We have a home that is almost 100 yrs old and have done some remodeling and had to be very careful that we didn't disturb old paint that might have been lead based. Also, we have one of those old stone farm basements and it gets damp and wet when it rains, so sometimes we do get some mold on the concrete down there, but my husband just goes down with some bleach and cleans it anytimes we get any, but we have not had mold in the walls or floors or anything.

I hope you are able to deal with the mold without it making anyone too sick. It's probably kind of scary worrying if it will affect your baby too. Let us know what you find out. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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