Post Edited (jhmom) : 1/11/2009 7:15:11 PM (GMT-7)
I too have the comprehension problem. Have to reread people's emails over and over, in order to respond to them. and the Right side pain that I have is not as sensitive as yours. I cannot lay on my right side for any length of time, because it is painful. It is sensitive to touch, but not that painful just being touched. I have also short term memory loss, even before I had this last stroke. Loss of balance I have had for a long time also.
Sending many prayers to you for your upcoming appointment.Hester
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Post Edited (okie) : 1/11/2009 5:52:53 PM (GMT-7)
I am just popping in from the Crohn's forum. It is likely that I have some form of reactive arthritis, but I am happy to allow my Doc to treat me only for Crohn's Arthritis. My OB/GYN who diagnosed my Crohn's is also sure I suffer from Lupus.She and a Doctor friend told me not to be in a big rush to get a DG, the treatment at this point would be the same and there is no point in creating preexisting conditions. I am still able to control most symptoms with diet, and can't use most meds used for these issues. I wanted to chime in on the brain fog discussion. When I was dg'd with crohn's in 2002, I could comprehend very little of what I read. For some reason my math skills did not seem to suffer quite as much. After we got some control of the inflammation, I regained most of my comprehension, and could retain post grad level material at about 92% where previosly I had retained about 97%. My coordination has always been marginal, possibly due to undiagnosed Crohn's. The brain thing is more frustrating to me than the pain. I too have pain disproportionate to the kind of touches that cause the pain, but in several places. I have been told this is a Fibro symptom, but again no diagnosis needed, as that also falls in the area of some forms of arthritis.
Good luck with your transplant. I have not read your other posts. Are you in line for a lung transplant? I live in Oklahoma City, are you having surgery here? Where is Pond Creek located? I can't imagine what you are going through. My energy level is so low sometimes that if I have an asthma attack (acute allergy to cedar pollen a few times a year) all I can do is move about enough to avoid stiffness. My brain only works so well when my sat drops below 85. A local brain surgeon told me (off the record) that when inflammation affects more than one bodily system, it tends to affect all vital organs including the brain, and he can see that on scans, or in surgery.
My hubby suffers from severe apnea and copd, I can't imagine that with lupus or other autoimmune illness. God bless and keep you, you will be in my prayers.
Hey Margie, Thank you so much for taking the time to reply. I'm so sorry you and hubby are going thru so much. Bless your heart! You are right the frustration of not remembering is the worst. I feel like people think I must be drunk or high or somthing. and I really hate it when they say the "Carol we had this conversation already!" That's when I feel like smacking someone in the head lol.
In regards to my transplant. No I am not on the list. Next monday is a class for people who are trying to get listed. The transplant coordinator said they do this because so many people have no idea what is all involved in a transplant so before ever getting started they have this what I assume is more like a Q@A. I know there are tests that they run that I will flunk but I don't know if it will make me uneligible for transplant or not. They need to biopsy my lungs to seen if it's the autoimmune problem that has destroyed my lungs or not. If so I can't get a transplant. They won't give me lungs if my body will just attack them again. But my lungs are so bad just the biopsy could kill me. Yes it's some pretty heavy stuff. I am trying to not think about it too much.
Anyway yes it's at the hospital in oklahoma city. at integress? Pond creek is about 30 mins east of Enid. Population 3. lol just kidding there are about 1000 people here. You know just one of those one gas station one small grocery store, no stop light towns. But it is surprisingly clean and pretty oriented for kids. usually a place like this won't spend the money on the youth but they have lots of things here for kids. Mine are grown but it's still nice to see.
Anyway now I'm just yacking so I'll let you go. Stop by any time. I'd love to hear how your crohns is getting along and your hubbys problems. feel free to give me a shout any time if I can ever be of any help/
God bless I hope the angels keep up with you all.
Hey Pat maybe we can skip the transplant thing and just go spend some money somewhere .
It's at 1:30 jan.19th IBMC concourse level room C.
it's at 3300 northwest expressway st.
I'll be the fat one with the oxygen on. of course probably a lot of people will have oxygen on lol.