Coordination/slow brain function

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 1/11/2009 8:58 AM (GMT -7)   
Just wondered if any one has had problems with comprehension. For example the trivia game we play I have to reread a couple of times to understand what it says. cry I used to be so quick witted. shakehead . Plus I noticed my footing isn't as good as it used to be. Plus my 3 month old kitten rubbed up against my right side and it hurt like crazy! I'm thinking kidney. I know I have a cyst but they won't fix it. I'm starting the gym tomorrow with a personal trainer. He's cute and about half my age lol.  devil . I have been feeling very sick to my stomach rolleyes . One more week before my first transplant appt:.
well I'm getting ready for church I just wanted to ask mostly about comprehension and if so do you know why?
thanks
love ya
carol
 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens, and so fulfil the law of Christ.
Galatians 6:2 KJV

 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 1/11/2009 10:55 AM (GMT -7)   
Carol, That's what I call brain fog. My mind works slower than it used to and I often have to stop and tell it to engage. It's as though it goes to never never land for a minute.

See you next week.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/11/2009 11:11 AM (GMT -7)   
Carol, I have noticed this happening to me more and more often. There are times I can't even remember what the preacher said during church just a couple hours after. I can also see it happening more at work too and playing the trivia games, sometimes I have to read the question more than once too.

At least you will have something "nice" to look at during your time at the gym ;-)

I pray your first transplant appt goes well! Love ya sis
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Post Edited (jhmom) : 1/11/2009 7:15:11 PM (GMT-7)


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 1/11/2009 11:41 AM (GMT -7)   

Hey Carol,

I too have the comprehension problem.  Have to reread people's emails over and over, in order to respond to them.  and the Right side pain that I  have is not as sensitive as yours.  I cannot lay on my right side for any length of time, because it is painful. It is sensitive to touch, but not that painful just being touched.  I have also short term memory loss, even before I had this last stroke.  Loss of balance I have had for a long time also.

Sending many prayers to you for your upcoming appointment.
Hester

 


Lupus diagnosed 1996, Fibromyalgia diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008, Stroke 11-4-08
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 1/11/2009 2:34 PM (GMT -7)   
Yes, I have comprehension problems now and they get worse as my symptoms get worse. Sometimes I'll just stare at something because my brain is a blank. The other day went to play and online computer game that I have played many times and I just sat there staring at it and had completely forgotten how to play it - it was kind of scary.

Hey, have fun at the gym - the trainer sounds fun. You have been in my thoughts and prayers.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 1/11/2009 4:07 PM (GMT -7)   
I can totally relate to brain fog and comprehesion problems! That is one of the main reasons I gave in and finally filed for short term disability. I was getting to the point where I would totally loose it in the middle of conversations at work, I was forgetting my passwords to my computer and would find myself sitting there totally lost, having no clue what I was in the middle of doing! Needless to say I came home crying many a day! I finally gave into my rheumy's request for me to stop work for awhile.

Lupus has a strange way of affecting our brain. Especially when we are under a lot of stress, as I'm sure you are right now Carol.

I agree with Hippi, try to enjoy that trainer!

Hugs,

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/11/2009 5:49 PM (GMT -7)   
Thanks Patty, Stacie, Hester, Hippi and Mellissa.
 
 
Patty  I am bringing a camera cause I gotta get pics of us together. So You better not be to skinny! LOL. I'm totally looking forward to it. Also pick a place to have lunch that my brother and SIL can pay for. (they don't know it yet) devil .
 
Stacie I had to laugh about the church thing. So when ever the subject comes up about what did he preach on today I just say. .........GOD. lol.
 
Oh Hester bless your heart for even answering me. I havn't been good an responding to people but I have been reading and I know you are having a really rough time. No offense but I noticed when you were writing on here before that you were having trouble with your writing and your words. You didn't make one mistake today. tongue I hope that means you are feeling better.
 
Hippi, how ya feeling hun? Doing any better? Yes spacing out is a very scarey thing. It makes me just want to cry. Somtimes people act like I'm some kind of idiot or something. At least that's how I feel. I feel like they don't treat me like I am 51 one years old. Especially my sil. She has a hot shot job and if my brain isn't functioning properly it's almost as though she acts like she's better than me. I don't know maybe it's my imagination. I'll have Patty Latty bring along a really big stick just in case! tongue
 
Hey Melissa, bless your heart. Yep I know all about the password thing. I actually had to change the password to my bank account 5 times in 5 days because I forgot it every time. Even though it was always the same password each time. Yep cried diffinently cried.
 
I have heard of the fog before and we talked about it on here many times but did we ever come up with a really good reason for what caused it? If we did I lost it in the fog. smhair
 
thanks again praying for you all
 



 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens, and so fulfil the law of Christ.
Galatians 6:2 KJV

 
 

Post Edited (okie) : 1/11/2009 5:52:53 PM (GMT-7)


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 1/11/2009 6:27 PM (GMT -7)   

Hi Carol,

  I am just popping in from the Crohn's forum. It is likely that I have some form of reactive arthritis, but I am happy to allow my Doc to treat me only for Crohn's Arthritis. My OB/GYN who diagnosed my Crohn's is also sure I suffer from Lupus.She and a Doctor friend told me not to be in a big rush to get a DG, the treatment at this point would be the same and there is no point in creating preexisting conditions. I am still able to control most symptoms with diet, and can't use most meds used for these issues. I wanted to chime in on the brain fog discussion. When I was dg'd with crohn's in 2002, I could  comprehend very little of what I read. For some reason my math skills did not seem to suffer quite as much. After we got some control of the inflammation, I regained most of my comprehension, and could retain post grad level material at about 92% where previosly I had retained about 97%. My coordination has always been marginal, possibly due to undiagnosed Crohn's. The brain thing is more frustrating to me than the pain. I too have pain disproportionate to the kind of touches that cause the pain, but in several places. I have been told this is a Fibro symptom, but again no diagnosis needed, as that also falls in the area of some forms of arthritis.

       Good luck with your transplant. I have not read your other posts. Are you in line for a lung transplant? I live in Oklahoma City, are you having surgery here? Where is Pond Creek located? I can't imagine what you are going through. My energy level is so low sometimes that if I have an asthma attack (acute allergy to cedar pollen a few times a year) all I can do is move about enough to avoid stiffness. My brain only works so well when my sat drops below 85. A local brain surgeon told me (off the record) that when inflammation affects more than one bodily system, it tends to affect all vital organs including the brain, and he can see that on scans, or in surgery.

   My hubby suffers from severe apnea and copd, I can't imagine that with lupus or other autoimmune illness. God bless and keep you, you will be in my prayers.


              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/12/2009 10:26 AM (GMT -7)   

Hey Margie, Thank you so much for taking the time to reply. I'm so sorry you and hubby are going thru so much. Bless your heart! You are right the frustration of not remembering is the worst. I feel like people think I must be drunk or high or somthing. and I really hate it when they say the "Carol we had this conversation already!" That's when I feel like smacking someone in the head lol.

In regards to my transplant. No I am not on the list. Next monday is a class for people who are trying to get listed. The transplant coordinator said they do this because so many people have no idea what is all involved in a transplant so before ever getting started they have this what I assume is more like a Q@A.  I know there are tests that they run that I will flunk but I don't know if it will make me uneligible for transplant or not. They need to biopsy my lungs to seen if it's the autoimmune problem that has destroyed my lungs or not. If so I can't get a transplant. They won't give me lungs if my body will just attack them again. But my lungs are so bad just the biopsy could kill me. Yes it's some pretty heavy stuff. I am trying to not think about it too much.

Anyway yes it's at the hospital in oklahoma city. at integress? Pond creek is about 30 mins east of Enid. Population 3. lol just kidding there are about 1000 people here. You know just one of those one gas station one small grocery store, no stop light towns. But it is surprisingly clean and pretty oriented for kids. usually a place like this won't spend the money on the youth but they have lots of things here for kids. Mine are grown but it's still nice to see.

Anyway now I'm just yacking so I'll let you go. Stop by any time. I'd love to hear how your crohns is getting along and your hubbys problems. feel free to give me a shout any time if I can ever be of any help/

God bless I hope the angels keep up with you all.

hugs

carol


 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens, and so fulfil the law of Christ.
Galatians 6:2 KJV

 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 1/12/2009 10:48 AM (GMT -7)   
Carol,

Integris Baptist Medical Center i?s in NW OKC. There's also a south branch but I'm sure you're going to the north branch. What time and where do you go? Is it all day or just morning? I'll bet it's a real interesting morning. I'll be the one who's not too skinny.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/12/2009 11:02 AM (GMT -7)   

Hey Pat maybe we can skip the transplant thing and just go spend some money somewhere confused smilewinkgrin .

It's at 1:30 jan.19th IBMC concourse level room C.

it's at 3300 northwest expressway st.

I'll be the fat one with the oxygen on. of course probably a lot of people will have oxygen on lol.

love ya

carol


 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens, and so fulfil the law of Christ.
Galatians 6:2 KJV

 
 

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