Hey you guys, thank you all so much for your responses.
I went in the other day and got my tests back and they were positive for lupus. I'm going in for a CT scan Friday, and I have to drink some dye stuff (I'm worried it'll taste really bad). I've been pretty down ever since my doctor visit but it's not like I'm just now experiencing the discomfort lupus brings. So, at least I'm use to that, somewhat. ]:
Also, I guess the ANA titer wasn't right, my mom was reading the wrong thing. He said they don't have numbers at that clinic to show how high or low it is, so I don't know what my ANA titer is.
My mom thinks I had it since I was little because I would get the rash then, whenever I was out in the sun or cold. Is that possible? Is there like an age group or can you get it when your really young.
I just want to say it's nice to have support from such a helpful group like yourselves, and I really appreciate all your feedback. It's hard trying to explain what you feel to your family, my mom is understanding, but my siblings are quite off about
it, they always say because I don't look ill I'm faking it. I've basically been dealing with that since I was little so, it's not that I'm happy to be diagnosed I'm just happy to know what's going on with my body and why I'm having these problems. I'm sure you guys understand.
My rheumatologist didn't give me any medication or anything he said he basically wanted to watch it for a while and see what happens.
Also, some of you asked for my symptoms so here are some of my major ones.
Cognitive problems - Headaches/migraines, memory problems, harder time talking (like I'll forget a lot of names for things), very hard time concentrating on things. Which started in the last 2-3 years and is getting worse from what I can tell
Achey/sore joints - A real bad one for me, every joint has had aches, my knee's, elbows, ankles, toes, wrists, fingers, shoulders. And the aching can get so bad it'll make me cry. It feels like their on fire sometimes as well.
Low-gread fever/general ill feeling - I can't remember the last time I felt perfectly fine and I was able to do every day normal things. I'm achey and I feel sick in the mornings, and mid day I'm pretty good, but when evening comes around it all comes back and I'm extremely exhausted, and I don't do anything all day.
Abdomen discomfort - I've been having a lot of that lately, and a lot of it's been in my upper left side right under, or underneath my left rib. Does anyone know what that would be?
Chest pain - I'm going to the cardiologist in February for this to know exactly what's happening.
Fatigue - I get a full nights rest and pretty good rest during that time and STILL wake up exhausted, I would be able to go right back to bed and sleep for hours. (Which I do almost everyday)
I can't really think of any other symptoms right at this moment, but all these symptoms have gotten progressively worse within the last few years.
Post Edited (LadyTsuguri) : 1/21/2009 9:06:25 AM (GMT-7)