Awwhhh...the joint pain!

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Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 1/15/2009 6:42 PM (GMT -7)   
I don't know about you all, but my joints are just killing me! Just when I thought the imuran and prednisone had finally gotten my joint pain under control, it flares up again, dang it! It's probably this colder weather, who knows but I'm just about to climb the walls I just can't seem to find any relief.
 
I had tried to wing myself of the Norco last week, perhaps that's what's done this. But let me tell you I started hitting the Norco hard yesterday. All I know is this heating pad and I are becoming pretty close again....awwhhh my aching joints!
 
I hope this weather is treating you all better than I.
 
Melissa  
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 1/15/2009 7:00 PM (GMT -7)   
Joint pain has been terrible for me as well.  This cold is awful.  I actually just got off crutches on Wednesday night after being on them for a week due to a flair in my right knee.  I've been on a high dose of pred for the last 2 days and will be for the next 7 days, but the pain is starting to come back again.  I think I'm going to make friends with a heating pad too-that sounds heavenly.  The 1st dr. said to ice it and the other just said to take it easy and call if the pred doesn't work-I miss warm weather.  I didn't realize it when I went into my rhuemy (2nd dr) but he said I had fluid in my foot, on the back side of my knee and both elbows were swollen-I guess I didn't pay enough attention because my knee hurt so bad.  Anyways, sorry to babble, but its great to know someone else is struggling as well. 
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 1/16/2009 4:29 AM (GMT -7)   
Melissa, I'm sorry you're in so much pain. Believe me when I tell you that I know how you feel. Mine has flared up more than usual too and I don't know what to do to control it. Tammy, as bad as my flares get, and as much as I want to succumb to the use of a cane, I've never experienced anything as bad as you.

Other than meds, which must be helping, but which just don't get the job done 100%, I find that massage and ice help me the most. The pain in my neck, (no pun intended) upper and lower back have recently joined my other joints in this pain fest and my hubby has been massaging those areas a lot and afterwards I use several ice bags. I believe that the massage loosens up the muscles, which get tight from the pain, and thus ease the pain somewhat.

The only thing I have for relief is lortab and I hate to use them because I'm trying so hard to baby my liver which can be comproimzed by my new med, Arava. And since my daughter's seizure a week ago, which may have been precipitated by Ultram, I haven't taken my daily regimen of ultram and tylenol arthritis.

Have either of you tried yoga? I keep promising to start but haven't done so. If you have, please let me know if it helps. I know it can't possibly hurt, and the meditative benefit has to be good for those of us in constant pain.

Hang in there both of you. I hope you're able to sleep better than I am. I've been trying to since midnight, but my body won't cooperate.

I hope you find some relief.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/16/2009 9:03 AM (GMT -7)   
Hey Melissa,
 
Do you think your joint pain is from the Lupus or the Fibro? Mine is from my Fibro, and I can't get relief from it. Is your pain moving around or is it stuck in particular joints?  If it's moving around from one joint to the other fairly quickly, it will be your Fibro.  If it's staying put for days on end in certain joints, it's probably your Lupus.
 
I can't find anything that will help the Fibro pain. Nothing. Not even the Norco type drugs. Fibro sucks.  I think it's worse than my Lupus.  For pain anyway!
 
Actually, the only thing that helps my Fibro pain to ease up or go away, is to taper down on my prednisone.  Prednisone and Fibro don't mix.  They're like oil and water.  If you know your Lupus is quiet, you could try a taper and see how you feel.  But run this past your doctor or rheumy first.
 
I'm suffering too.  But it's not the cold for me, it's 50 degrees in Calgary this week!!!  I'll try to send the warm weather eastward!
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 1/16/2009 12:28 PM (GMT -7)   
Hello Ladies,
 
I'm sorry to hear you all are suffering too, but I figured as much, unfortunately that's the nature of the beast..lupus! It never ceases to surprise me. I think it is a combination actually of my lupus and fibro, as my skin is a bit tender as well, even my scalp is a bit tender. My joint pain is remaining pretty much steady in the same place, in the hands, wrists, knees and ankles, I have some swelling that is accompanying it.
 
I am just miserable and just found out that my husbands cousin passed away and we have to leave tonight for the funeral which is in Houston. Houston is 6 hrs away! We are going to drive half way tonight and the rest in the morning, this is the last thing I want to do right now is ride in the car for hours, but it's something we need to do. Then I have an appt in San Antonio on Monday, so from Houston we will head there, so more driving. What makes it even worse is my husband needs to get his car serviced, he drives a roadster (2 seater) so we were planning on taking his car to San Antonio on Monday, because it's a foriegn car and we do not have a dealership in our small town. I am not looking forward to riding all over TX in this small car....aggghhhh!
 
I'm sure I will be in tons of pain for my appt on Monday, not sure if that is good or bad. My rheumy will get to see me in all my glory....lucky him!
 
Keep warm gals;
 
Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 1/16/2009 2:26 PM (GMT -7)   
The cold is terrible on the joints.  I live in North GA in the mountains.  Went out this morning to an app't and it was 14 degrees.  I know those of you further north and west have it much worse, but my hands hurt so bad, even with Lortabs 4-5 times a day.  I don't know if yoga would be good for me because of the pressure on my hands and feet, also I can't lay on my back due to degenerative disk disease in my back.   I have a beginner's Tai Chi video that my mom got for me.  I havn't felt up to trying it yet.  If I get around to it, I'll let you know how it is.  Try to stay warm and God Bless. 

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 1/16/2009 10:23 PM (GMT -7)   
I'm not trying to win the "cold war" (haha) but today when I woke up it was -25 in Southern Wisconsin.  Yes, really freaking cold.  I just got home and it has warmed up to -5 and tomorrow we are expecting a heat wave of possibly 22.  I'm really excited.  I also want to note that I have purchased my heating pad and although I haven't been home to use it, I've penciled it in for tomorrow after I'm done with work. 
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 1/17/2009 10:18 AM (GMT -7)   
Why is it that I love the cold weather? When I had my first flare and was in bed or on the sofa for a couple of years, I would go outside in the cold of the winter just to feel the cold air on my hands. I suppose that it has the same effect as an ice bag in controlling inflammation. But I hate to hear that you guys are suffering so much.

Melissa, I worry about you driving around Texas in a little roadster. It's important to move around and not sit in the same position for a long time so I hope your husband will be patient if you need to take frequent breaks.

Jennifer, my friend who does tai chi tells me it would be wonderful for me, so let me know how you like the video. I've taken stretch classes and may dig out the video made by the instructor and try that. My body feels like stretching would be very beneficial.

And Tammy, enjoy your nice weather. As for me, I'm waiting my Arava to tell my immune system to stop messing with my joints.

Have a good weekend all.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 1/19/2009 8:23 PM (GMT -7)   
I survived the road trip, just barely, but let me tell you this tired ole' body is soooo glad to be back home!
Pat, my husband was very patient with me, thanks..hahaha. He really felt bad that we had to take his car, he even offered to leave it home when we found out we had to go to Houston as well. I told him I would manage, so I tried not to complain to much, but he did stop quite often because he knew I wouldn't ask as much as I needed too. He's a sweetie that way!

Tammy, I feel for you girl! Oh my, I simply couldn't handle that kind of weather anymore. I am orginally from upstate NY, my sister emailed me last week and told me it was 6 there at that time, the high the next day was 1 degree! No thanks, I am suffering like heck here and our over night low is like, 28! Most days are in the 70's here lately! On a bad day it's in the 40's. So, I guess I'll stay where I am.

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

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