Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Co-Moderator: Lupus and CFS Forums
Hi all, well I'm home. Wow information overload! I learned alotand probably missed alot more than I learned. I got to meet Pat and she got to meet my family lol. Lucky Pat! She was great and I was so happy to finally meet her. There was one point I was ready to blow my top and she kept me down to a mild rant instead of a full blown one. Like they kept saying at the meeting. Transplants pre and post are very stressful. I gave the ok to do what erver has to be done to get things rolling. Surprsingly they only have a waiting list of about 31/2 months! Wow. Who ever heard of such a thing. That of course is if you get on the list. I am hopful but cautious. There are still a lot of unanswered questions that can only be answered by the dr. So anyway they should be starting my appts. by the end of the month and we will see how it goes.
Thanks everyone 1 tired puppy here.
Post Edited (PattyLatty) : 1/19/2009 7:33:08 PM (GMT-7)
I just want to say thank you guys for helping keep things light. I need that right now more than anything. Yes Good willing I get on this list the more people the better. If you don't have a good support team they won't even consider you for a transplant. Ijust keep praying I don't have and autoimmune disease in my lungs. So please keep the prayers and best wishes coming.
love ya all
Oh Marji, bless your heart. I'm sorry I havn't been much of a friend lately. I have been so preoccupied. You sound absolutely awful. What exactly is that stuff and what is it doing to ya? How much do you have to take? Is it helping? If you ever want to talk please let me know. You have my email addy. I'll be praying this time goes by quickly and you have thes med behind you.
hang in there hun love ya