I haven't posted for a while as I haven't been doing very well until recently. My alts dropped, bilirubin came up and I've been really incredibly tired and my lymphocytes are up. Anyway, probably the isoniazid I'm taking, almost done. Lots of colds and stuff going around. I'm losing fat around my ribcage, which is good but possibly a sign my liver disease is progressing.
Anyway, I had a good experience that I wanted to share with the women here who may take estrogen for any reason. Since I have so many hormonal problems I decided to go to an MD who does bioidentical hormone therapy, which is natural hormones that are complete and identical to what we produce and not synthetic. These docs test all your hormones and properly supplement, while my endos kind of guess, and only check a few things, in my experience and don't do anything for mild but problematic deficiencies.
Anyway, I had had a great deal of pain to the touch around the rib cage. I take estrogen for hormone replacement and was told since I don't have a uterus, I don't need progesterone. This new doctor believes, based on research, that progesterone is necessary for women to properly metabolize estrogen, otherwise it can bind to other hormones, like thyroid hormones, or be stored in fat, making fat difficult to lose, or feed tumors rather than being properly metabolized and excreted from the body. And we are not getting the proper benefit from the estrogen.
So I started the natural progesterone cream and within a few days the pain around my rib cage was gone and my tissue in my breasts became soft and healthy and my fibroids disappeared--which was really frightening to me because I realized I had been on the road to breast cancer. In addition, I sleep really well and have a reduction in my fibro. I'm storing less fat, which is good for my liver and have a more satiated and content feeling, so I should eventually start losing weight slowly and properly. I gained a lot of weight after my hysterectomy, when I stopped getting progesterone, hmmm....
I normally don't see a doctor that is in any way not mainstream, but I was so fed up with the current endos that are just waiting for my adrenals to be damaged before they treat me. And the hormones they give are not complete. So I felt possibly this might help. Also due to my liver based metabolic problem they are testing lots of vitamins and are helping me to take just the vitamins I need and in low doses that won't stress my liver. I also want to go on bioidentical thyroid treatment for my hashis rather than the synthroid, which contains only one of the hormones needed to properly replace the thyroid hormones I lack.
I feel so much better now and felt it was worth sharing for those women who might be in the same boat. The cream is nice because it doesn't pass through my digestive tract and liver and can be a low, appropriate dose that works quickly. It does appear to have been something I need and a very gentle change and my experience is not unique according to the doctor, many women are quite pleased with it. I'm also much calmer and my red face has improved some.
They also tested some vitamins and determined that I am deficient in one of the D vitamins and need mild supplementation. Also, they were able to hook me up with some low dose vitamins that are easy on the liver and test everything to know what you need. I'm quite happy so far. I can't imagine life without progesterone. I sleep like a baby now, have much less pain, and it seems practically the cure for fibro, or at least a great help in lessening it.
Hope this helps someone. I would recommend it to anyone on estrogen from hysterectomy, or even without hysterectomy.
Marji - I was glad to see your post. I have a follow up visit this week after my annual exam to talk about the results of the blood tests for hormones and vit d, etc. The person I am seeing is a nurse practitioner - but she orders tests and prescribes meds. She has been working with the bioidenticals for some time....and works with a pharmacy in town that compounds. On the exam visit we talked at length about my symptoms and other problems and she gave me some information and told me it was likely my thyroid was needing help and I was deficient in some hormones. I went through an early menopause at 40 - so it wouldn't be surprising....and every doctor I've ever been to wanted me on synthetic hormones - but I have resisted. I'm 54 now and the AI issues are persistant and somewhat unclear.
I have been on Plaquenil for 7 weeks now, and feel it is helping - so I'm not crazy about starting up something else that might create side effects (w/ an adjustment period) and make me wonder what might be causing what. But! I sure would like to feel even better and take care of things that the Plaq may not be addressing. The fibro has surely been acting up this winter but the fatigue and malaise has improved on the Plaq. Also my scary hair loss in the fall has slowed way down. I'm like you - started cutting my multiple vitamin in half along w/ the calcium and seem better able to tolerate it. I also have mild fatty liver - and hadn't thought about the hormone issue playing a role. Anyway - it helps to hear of your experience. I'll let you know what happens after my visit. Really glad you are feeling better!
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